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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Nah....unlikely, at least according to the most current research. Experts are leaning towards a virus triggering celiac disease. But as an athlete, cut out that processed gym crap. Eat real food! Your performance on a good diet will improve. Did you research those products? Try searching the FDA website for product recalls. You may be shocked...
  2. cyclinglady
    1. Your result was negative, but did they run an Immunoglobulin (IgA) test? For celiac disease testing, checking for an IgA deficiency can impact any IgA test (TTG IgA). It is used as a control test. Many celiacs are IgA deficient. 2. Next, some people NEVER test positive on the TTG IgA test (like me). The TTG IgA test is very good, but it is not...
  3. cyclinglady
    There are over 200 symptoms that are attributed to celiac disease. Some experience many of those symptoms and some NONE at all. Factor in the fact that these symptoms overlap with many other illinesses and you can see why symptoms can not diagnose celiac disease. Best to get tested for antibodies. How long was your challenge? Experts recommend 8 to...
  4. cyclinglady
    From your other posting, it appears that your GP went over the results. Can you talk to the actual Gastroenterologist or write an email? Some of the verbage is not familiar to me. Not to mention that I am not a doctor. Maybe wait for the pathologist’s report if biopsies were taken?
  5. cyclinglady
    If you are serious about getting a celiac disease diagnosis, you should remain on gluten. Why? Celiac Disease diagnostic tests require that you be on a full gluten diet. Testing can be important because too many other illnesses share “like” symptoms (e.g. vitamin deficiencies could be many things like Crohn’s or poor diet (lots of junk food). h...
  6. cyclinglady
    I think you will find that each person with celiac disease has a different story and varied symptoms. There are over 200 symptoms attributed to celiac disease (these often overlap with other illnesses]. You could have many of these symptoms, a few or NONE. It is why there are celiac antibodies blood tests and usually a diagnosis is confirmed by a biopsy...
  7. cyclinglady
    I am so sorry that you have struggled for so long! Let’s hope that the gluten free diet helps. I do not have DH, so I encourage you to read through the forum DH section for tips. I do have some questions. Do you have Ankylosing Spondylitis? Is there a rash, like DH, that can be attributed to AS? What do you mean you have a lack of the celiac c...
  8. cyclinglady
    All celiac testing (blood tests and biopsies) require you to be on a full gluten diet. It sounds like you might have already been gluten free when you had the endoscopy. http://www.cureceliacdisease.org/screening/ I am confused. You stated the the initial endoscopy results indicated “slightly atrophic duodenum”, but that the biopsy showed it ...
  9. cyclinglady
    It might mean that you never had antibodies specific for celiac disease. Were you tested prior to going gluten free two years ago? That would give you a baseline. To test for celiac disease after being on a gluten free diet would require a gluten challenge for 8 to 12 weeks (less for the endoscopy). There is no research indicating that antibodies...
  10. cyclinglady
    No, not off the hook. You still had a positive. He probably needs to order the rest of the panel. Even if he says he did a GI consult who said that your result is odd, but requires no further testing, I would recommend getting another doctor (within Kaiser) who migh be more celiac-savvy and complete the testing. Your IgA is normal so the TTG IgA...
  11. cyclinglady
    If everything checks out, then blame autoimmune! Whatever is flaring, my gastritis (AI) can impact my other body parts (achy, headache, blah!). My Mom has fibromyalgia. Her pain tends to move around. She can use her hands one day and then not be able to carry or hold anything. The worst usually occurs in her shoulders. She can not stand wearing...
  12. cyclinglady
    Welcome! You do have a positive TTG IgG and while not common, it is a positive. The next step is further bloodwork or a Gastroenterologist (GI) referral. What is strange is that they did not run a Immunoglobulin A test to see if you are IgA deficient or to help validate the TTG IgA test (used as a control test in the case of celiac disease). Your...
  13. cyclinglady
    Gemini, I am so sorry that your mother is ill. I can completely understand your frustration. Please keep us posted.
  14. cyclinglady
    Congratulations! ?
  15. cyclinglady
    Before I had to go gluten free, I made my cornbread in a skillet. Not sweet. Would sprinkle sugar on top of leftover cornbread and add milk as a kid. Yum! If you are new to being gluten free, avoid all cookies, cakes, and breads for a while. Give yourself time to forget what the real thing tastes like. Stick to ice cream and pudding (if you are not...
  16. cyclinglady
    I have never made pasta with a pasta maker (just used to cut noodles by hand), but I did have to part with the family lamb cake mold we used for Easter. It was so detailed and ancient, that I could not get it clean enough to give me piece of mind. Because the bottom line is that health (mental and physical) is all that matters.
  17. cyclinglady
    Well.....as a nurse, you better get used to taking orders from a doctor. Fortunately, your school doctor gave you excellent advice. You will need to see a GI. What to do now? Confirm that you took the appropriate test for antibodies (autoimmune). It sounds like you took a food allergy test (IgG) and that is not the same. If you can, post the actual...
  18. cyclinglady
    Good to know. Sometimes, I tend to respond not just to the poster, but to others who might read the thread. Sorry!
  19. cyclinglady
    I would suggest consulting with a pharmacist. Pick a time when they are not so busy (e.g. Sunday afternoon at a hospital) and ask. They have a huge resource catalog, plus they have years of education!
  20. cyclinglady
    Yum! ?
  21. cyclinglady
    I am glad that you found a GI who knows what he doing! It is a shame that GP/PCPs or doctor’s in specialities do not take the time to read up on Dr. Google. There really is no excuse. Keep us posted. It will help someone else who has struggled like you!
  22. cyclinglady
    Well, you can lead a horse to water, but can not make him drink! The good news is that you feel better. Someday your kids might come around.
  23. cyclinglady
    So glad for you! ? sort of..... At least you know where you stand. I am sure that your posting will help MANY!
  24. cyclinglady
    Celiac disease is like a chameleon— always changing. Like you, I was only anemic before my diagnosis (no GI issues). But each glutening has been different (and I had only cross contamination issues to my knowledge. Symptoms so different that I went back to my GI for confirmation each time. I have vomited. So much that my capillaries break in my face (...
  25. cyclinglady
    While you can trial the diet, I would suggest getting copies of his previous celiac testing. For a while, the screening TTG was most commonly used, but they realized that it does not catch all celiacs (like me and small children). I found this out when some of my family members were tested and they were negative. They told me that only the TTG was ordered...
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