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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry that you are sick with the flu. I am not a doctor, but taking medications every two hours? Have you researched (or asked your pharmacist/doctor) about the side effects of all those medications when combined together? I know you are not feeling well and it is hard to think. Even if your fever is extremely high, I would just take the recommended...
  2. cyclinglady
    You must be outside the US because we have not had stamps that you need to lick for years. Welcome! ?. If you are getting a reaction, it is most likely an allergic reaction. It takes a while for antibodies to ramp up for celiac disease. It is not an fast IgE allergic reaction (type 1 hypersensitivity). You can be allergic to wheat and have celiac...
  3. cyclinglady
    Why? None have tested over 20 ppm for McCormick spices per the Gluten Free Watchdog. She gives an excellent explanation about spices and how much you would have to consume to even get a reaction. You have to carefully read the entire report and she cautions that you can not compare 20 ppm found in cereals with 20 ppm with spices unless you are eating the...
  4. cyclinglady
    Remember your 5th grade science project? Changing variables mid-stream can dilute the end result and your original hypothesis bombs. You and your doctor know your situation, so only you can determine what your best course of action should be.
  5. cyclinglady
    Is that a NIMA sensor? NIMA does not recommend testing spices. The GlutenFree Watchdog does not recommend it either. All spices, except for one, tested showed “low gluten” using the NIMA sensor. She has tested many spices over the past few years at a qualified lab and has rarely found gluten in spices (mixes excluded). https://www.glutenfreewatchdog.org...
  6. cyclinglady
    Your doctor is following normal diagnostic protocol in ordering the gene test. It will help him in finalizing your diagnosis, but improvement on a gluten free diet will also do the same thing. In fact, following up with another endoscopy (allowing for enough time to heal) will solidify your diagnosis without a doubt. I personally would take a follow-up...
  7. cyclinglady
    Wait! You should have been told NOT to go gluten free until all celiac testing has been completed. Your GI may want to run additional blood tests. Typically, the next step (biopsies obtained via an endoscopy) require you to be on a gluten diet. If you go gluten free, you will stop producing antibodies. Some people heal fast and some slow. What if you...
  8. cyclinglady
    Here is what the celiac experts have to say about Enterolab: Open Original Shared Link I just attended a celiac lecture and again, this lab is not recognized by the American Gastroenterologist Association. I would save my money and do the standard celiac tests. Since you have been gluten free, you would need to get back on a full gluten diet for...
  9. cyclinglady
    Hey Rachel! I am glad that you are advocating for your health. You can develop celiac disease at anytime in your life. It is recommended that you get tested every two years or so, if you have a first-degree relative (e.g. sibling or parent) even if symptom free. So, you can get retested and maybe you should since a family member (even if it is...
  10. cyclinglady
    I think before you start ordering tests or going gluten free, you should obtain all his medical records as SquirmingItch advised. Find out exactly his thyroid results (TSH, etc.). Then see exactly which celiac blood tests were given. What did the pathologist report in the biopsies? Once you have than in hand, you can determine whether or not he had...
  11. cyclinglady
    Unless you were singing in the shower and swallowed a bunch of shampoo, chances are it was NOT the shampoo. I think I would be choking or vomiting just from swallowing any soap, gluten free or not. If you are new, expect setbacks. It can take months to heal (sometimes years). It takes time to build up antibodies or time for them to stop increasing...
  12. cyclinglady
    Hi! You might have a rash rash called Dermatitis Herpetiformis (DH). It can be tricky to get a diagnosis and not all dermatologists do the skin biopsy properly. Read through our DH section to understand the technique involved. Learn about celiac blood testing here, but keep in my those with DH can fail the blood tests. Most of their antibodies can be...
  13. cyclinglady
    In my experience, celiac disease is like a chameleon. Symptoms can vary. It can be very frustrating. I have questioned it and actually have gone in for an antibodies check to confirm whether or not gluten has been the culprit (it was). I also found that a glutening (in my case) can set off a chain of other autoimmune events that can last for months...
  14. cyclinglady
    I am so glad you son has improved on the gluten free diet. I am glad that your house is gluten free. It is so nice to have a safe place to be. Shared kitchens can be done (I did it for 12 years), but after my diagnosis, the whole house went gluten free (two against one). My daughter, who does not have celiac disease, eats gluten free at home. She gets...
  15. cyclinglady
    I am so sorry about your brother and I wish him well. Have you all been diagnosed recently or as children?
  16. cyclinglady
    It could be, but lots of rashes look the same. If it is DH, it can be biopsied by a dermatologist. If positive, then you have a celiac diagnosis. Was her first test a genetic test? If so, keep in mind that some 30% of the population has the genes that might turn into celiac disease (rare). It is not used to diagnose celiac disease, but to help...
  17. cyclinglady
    If you were gluten free for Hashimoto’s reasons, you might not have been as gluten free as you think. Investigate every possibility: thyroid med, eating out, hidden gluten in processed foods, lipstick, kissing a gluten eater (or a slobbery adorable baby or child) sharing a toaster or colander, wooden spoons, etc. Some celiacs are seronegative. Y...
  18. cyclinglady
    You might see if your GP actually gave you the complete celiac panel. Often they just give the screening TTG which is good but does not catch all celiacs (like me). http://www.cureceliacdisease.org/screening/ If you do have celiac disease, five days on a gluten free diet will not reduce symptoms. It takes weeks to months, even years for symptoms...
  19. cyclinglady
    The gold standard is still getting diagnosed via intestinal biopsies. Every major celiac center in the US recommends it, the American GI Association, the British GI Association and the EU Association. If you can afford to do it, then I would recommend it. For me, it really confirmed my diagnosis and also helped me transition into the gluten free diet ...
  20. cyclinglady
    Maybe he is just small. I come from a family of little people who cling to the 5 to 10% range in the growth chart, but your son has some pretty abnormal symptoms. I am not a doctor, but just a concerned Mom. I just mention the elevated IgA (tested several times) because mine was elevated and I do test weird on the celiac panel. It might help you get...
  21. cyclinglady
    Your children have a 10 to 15% chance of developing celiac disease (first-degree relative). Not a huge risk, so I would not worry! There have been many studies about introducing gluten at specific times and dosages to children. A large one was just finished and they found that it did not matter when Gluten was introduced. The bottom line is no one really...
  22. cyclinglady
    Hi! I would be happy to give my non-medical opinion. These are just two of the celiac antibodies (blood tests) that are most often given. She did get a slight positive. That means your doctor should refer her to a GI. The blood test ps alone do not diagnose celiac disease except in cases where the results are extremely elevated. I would suggest...
  23. cyclinglady
    Welcome! I am sorry that your son is so ill. The two celiac tests given are negative (TTG IgA and DGP IgG). The IgA that is elevated is Immunoglobulin A which, when used in celiac disease testing, acts as a control test to see if any IGA related tests actually work. Outside of celiac disease testing, elevated Immunoglobulin A can mean that...
  24. cyclinglady
    Most forum members will tell you that recovery can take up to a year or longer. I think, in theory, the villi can rejuvenate themselves within weeks. But it takes time for systemic issues to resolve and time to learn the gluten free diet. I think doctors tend to forget that celiac disease goes beyond the gut. It is not uncommon for antibodies found in...
  25. cyclinglady
    The FDA just reported this product for undeclared wheat and soy: https://www.fda.gov/Safety/Recalls/ucm595459.htm?utm_campaign=Kanan Enterprises Conducts Voluntary Recall of Southern Grove Unsalted Almond&utm_medium=email&utm_source=Eloqua
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