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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Just look up a white sauce recipe. Butter, cornstarch and milk. Melt butter. Add cornstarch to COLD milk, mix well and then slowly add to the butter to avoid lumps, stirring constantly. Cook a minute or two. Add cheese of your choice, pepper and salt to taste. You can make cream of celery, chicken, or mushroom with a basic white sauce recipe
  2. cyclinglady
    Welcome! Did you get skin biopsies? Some celiacs are seronegative. They might not even have intestinal damage. Instead most of the antibodies (and damage) are in the skin. I do not have DH, but suggest you scroll though the DK section and get tips. Specifically on how to coach a derm properly on how to biopsy for DH (or find a celiac-savvy derm...
  3. cyclinglady
    The University of Chicago recommends re-testing 3 to six months after going gluten free and then annually. Most GIs wisely wait because although you can theoretically heal that fast, it takes TIME to master the gluten free diet. It can take up to a year or longer for antibodies to come down. As someone who has more than one autoimmune issue like myself...
  4. cyclinglady
    Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
  5. cyclinglady
    Maybe it was not the chili. Maybe you are sick with the flu? Sometimes, we jump to the conclusion that celiac disease is the cause of our current symptoms. I know I have done this. Hormel is NOT considered good, but it is gluten free and safe. I give it to my kid on top of gluten-free pasta or corn chips in her thermos. Add plenty of cheese and...
  6. cyclinglady
    Hey Deb, In theory (based on some studies), your small instestine should heal pretty fast (within weeks), but often there is collateral damage that can take longer (like your bone pain). For me, personally, a gluten exposure can set me back three to six months. My antibodies can last over a year. And worse, I now developed autoimmune gastritis and...
  7. cyclinglady
    Good for you for trying to manage your health. My only suggestion would be to find another doctor. Obviously, he does not even follow standard recommendations for screening. I would worry that he overlooks other things too. It never hurts to get a second opinion. Second opinions have saved my family from unwanted surgeries and incorrect treatment. ...
  8. cyclinglady
    Isabel, You did not give out any personal information that could be traced to you. Good job! Just do not mention your last name or where you live. There is a million Isabel’s out there and one is in my troop (she play water polo and the trumpet). There an advantage to being anonymous. Like when you are talking about barfing or the big “D”. Som...
  9. cyclinglady
    Sure, you should consider getting tested for celiac disease. There is no test for Non-Celiac Gluten Intolerance or Sensivity. However, you have to be consuming gluten daily for at least 12 weeks as ALL celiac tests require you to be consuming gluten. Learn more about testing: http://www.cureceliacdisease.org/screening/
  10. cyclinglady
    Welcome Isabel! It is hard having celiac disease, but after a while it does get easier. Just so you know, I am an adult, but I am a Girl Scout Leader, have a daughter who is 16 and one of my daughter’s friends was just diagnosed with celiac disease just three weeks ago! Social events can be hard, but you can bring some food that is actually b...
  11. cyclinglady
    I am sorry that I was not clear. I only mentioned your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms? It is common for celiacs to receive follow-up antibodies...
  12. cyclinglady
    I am just curious. As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit? If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive, but your doctor still suspected celiac disease. You improved on a gluten diet. Other than observation, ...
  13. cyclinglady
    I just want you to remind you that I just had a repeat endoscopy last week after my diagnosis some five years ago. Even though my antibodies are still elevated, my intestinal tract has healed. But why have I been feeling sick? I have chronic gastritis. Who would have guessed? I do not drink (rarely), take any meds other than my thyroid replacement...
  14. cyclinglady
    Teresa, You posted this same question yesterday. You did get a response, but you did not answer the questions asked which might help you. We can not diagnose you over the internet. We are not doctors, but just people who can not consume gluten. We share tips, our personal experiences, and ask questions about the gluten free diet. If you have...
  15. cyclinglady
    Welcome! Let me put your mind at ease. While is true that some celiacs have fertility issues, it is usually because they are undiagnosed and not being treated. I think your approach of focusing on your health for the next six months to a year prior to conception is an excellent idea. Not only will it help insure a healthy pregnancy, but you will...
  16. cyclinglady
    I would trust the label over what some customer rep said on the phone but consider calling back and talk to a supervisor. I looked up the product and confirmed there was no gluten. I can not imagine gluten being added. The rep might think “stuffed” is the same as “stuffing” as in turkey. ? Seriously, there was a time when blue cheese was questio...
  17. cyclinglady
    You had a positive on the blood panel. That usually means the next step is an endoscopy, which you had done. So, now you need to wait for the results. I can tell you that my doctor told me that everything looked good, but the biopsies revealed vill damage. I also only had one positive on the panel (DGP IgA). That was five years ago, some doctors have...
  18. cyclinglady
    Welcome! Get that follow-up testing. At least help confirm that you are compliant with the diet and that celiac disease is not the root cause of your brain fog and anxiety. Once ruled out, your doctors can focus on other possible AI issues that are beyond your control (unlike celiac disease). For now, you can focus on a good healthy diet. Consider...
  19. cyclinglady
    I think if you search through this section of the forum, you will find that many children see a quick drop in their antibodies. Recovery can come fast or slow in both kids and adults. We are all different! I can tell you that my antibodies are still high, yet I had a repeat biopsy done last week showing healthy villi (Marsh Stage IIIB at diagnosis...
  20. cyclinglady
    Shopping for health insurance can be a nightmare, but it was way worse prior to the National Healthcare Act. It was pretty much impossible to compare plans back then. It is still tough though. We are self employed and have been buying insurance for 20 years. If your doctor does not have a secure email system, then send it though the snail mail....
  21. cyclinglady
    The Powerade brand is most likely fine (I have not read the label lately), but they do not want red, blue or purple in your gut at the time of scoping. It must stain and look like blood or inflammation. Ever see a kid eating a blue popsicle? ?
  22. cyclinglady
    I am sorry that you are sick. Ten weeks is just a short amount of time to expect healing. Things can actually get worse. The gluten free diet has a very steep learning curve. So, expect to take a step forward and some days you will step back. Consider reducing processed foods and avoid eating out until you feel better. Check out our Newbie 101 section...
  23. cyclinglady
    Welcome! It could mean that you do not have celiac disease. What were the lab ranges? Have you been eating gluten every day for the past three months? All celiac testing requires a person to be on a full gluten diet. Was an IgA deficiency test (Immunoglobulin A) run? In the case of diagnosing celiac disease, it is used as a control test (determines...
  24. cyclinglady
    What? Have you called your doctor? Maybe, the referral slipped though the cracks. Was your insurance even contacted? Then follow-up with an email and if you do not get a response in a few days, then send a registered letter. Either a careless mistake has been make or your doctor is grossly incompetent. You have rights! Be nice. State that you...
  25. cyclinglady
    Hey Elliot! Chewing your food well can aid in digestion, but if your wife’s celiac disease is still active, then it does not really matter. A damaged small intestine can not absorb nutrients or often release enzymes necessary to aid in digestion. How long has your wife had celiac disease? Has she had follow-up testing to help determine if she is g...
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