cyclinglady
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cyclinglady
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HELP WITH HLA RESULTS
cyclinglady replied to adobs80's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is my opinion (lame that it may be). Years ago, doctors thought celiac disease occurred only in children (signs of malnourishment/extended bellies) and that you had to be of European decent. Even when Dr. Fasano came to the US, there were very few people who being diagnosed with celiac disease. He and other researchers discovered that celiacs can... -
Hey Micki! Your posting seems to have overlooked most likely due to the holiday season. Sorry about that! Is your celiac disease active? Are your celiac antibodies coming down (was that tested when you went for that follow-up visit? Liver issues are common with celiac disease and we know that healing can take months to years. I am...
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Let me state that I am not a doctor, but just a celiac who is a Mom. 1. No, if possible, have her blood work checked again (full panel) and consider the biopsy (please make sure she has been eating gluten for 4 weeks daily prior to biopsy). Why? Obtaining a 504 educational plan can be helpful while a school or university. My hubby went Gluten...
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The reality is there is not much research done on celiac disease especially on patients after their diagnosis. Be careful reading studies that are clinical in nature or very small. I can not tell you how many times people who have been diagnosed with non-responsive celiac disease have made a minor mistake in their diets. The problem is unless researchers...
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Did you know that once on a gluten free diet, all the horrible statistics diminish for celiacs? So, I would not worry. Celiac disease is genetic, but it is some environmental trigger that sets it off. So, it is perfectly reasonable for you to be the only known celiac in your family. I am. A few of my family members have tested negative. A few...
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Running hyper can cause fatigue and anxiety for sure! The thyroid can also impact you in different ways. For example, my allergist thought my bout of chronic hives (daily for six months) was related to my Hashimoto’s which has been known to swing from hyper to hypo within days (I was a mess when that happened and it drove my doctor crazy!) was it related t...
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I am so sorry that you have to have a repeat endoscopy on top of having to consume gluten again. I hope you have a new GI who is celiac-savvy. A gluten challenge can be very difficult and should always be done under a doctor’s care. You only need a 1/2 piece of bread per day for the challenge. Some patients are not able to complete the challenge. That a...
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Celiacs do not react to skin products that contain gluten unless they are being ingested. I am referencing a very reputable celiac dietician who has quoted one of the world’s leading celiac researchers: https://www.glutenfreedietitian.com/personal-care-products-do-you-need-to-worry-about-gluten/ If you are reacting, you might have a wheat allergy (...
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I would skip the Pepto Bismal. It has an aspirin derivative that is dangerous for kids - Reyes Syndrome. It is excellent for adults though. Keep her hydrated. Soups and stews, applesauce, popsicles, (think soft foods that would be easy to digest). Lots of hugs, blankets and distractions. I hope she feels better fast!
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I agree, information seems to be missing. I assume that TNP means “test not performed”. So, no EMA IgA or TTG IgG probably because your Immunoglobulin IgA is most likely normal (ranges are normally provided and this lab likes to save costs. Not sure of the range for the TTG IgA, so I would hate to guess. It might be negative. Ask the lab for complete res...
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I do not get it either. While nice to check on follow-up visits, the jury is still out on the relationship of antibodies and intestinal damage. I test positive to only the DGP IgA. My GI has ordered the the entire panel a few times and now just orders the DGP IgA if I request it. It saves money for sure. I confess that I have mostly returned a...
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Ha! Karen is right. You may find friends/co-workers envying your gluten free food. I pack lunches for my kid and hubby and she ends up sharing (not hubby). You should see the looks of envy we get a high school football games (we are marching band parents). I even would bring my favorite soy milk into Starbucks (did not like theirs) when I was lactose...
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It is never too late. Anemia was my symptom when I was diagnosed. Not only was my ferritin habitually low (blamed on menstruation), I also have a genetic anemia. So, two different types of anemia. Who knew? (Thank goodness my GI was up to speed when I went in for a colonoscopy (yep, I am over 50 ?). Doctors can be so misinformed. Do they not...
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Celiac, Colitis and chronic UTI's
cyclinglady replied to Jeanne E. Schneider's topic in Related Issues & Disorders
Why wait until February? Your PCP (or any medical doctor) can order the celiac antibodies blood panel before you even see the GI. http://www.cureceliacdisease.org/screening/ I have a family member who struggled with UTIs for years (and she runs the nursing department at a teaching hospital). She has not suffered from one since she went Gluten... -
You should definitely get tested! Celiac disease is strongly linked to TD1 (about 10% of TD1’s have celiac disease). In fact most Ped endos are recommended to screen all their TD1 patients. You must be on a diet full of gluten in order for ANY of the celiac tests to work. It is just ONE reason to get tested before going gluten free. Another reason i...
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Push for the complete panel. If my GI had not ordered the complete panel (TTG, EMA, DGP), my diagnosis would have been missed. I test positive to only the DGP IgA, even in follow-up testing. The TTG is good, but does not catch all celiacs. If you are at risk, celiac testing should be done every few years or sooner if symptoms warrant. It can develop...
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Welcome! You are not alone. I went to the GI for a routine colonoscopy (yep, I am over 50). The GI noted my life-long anemia. I already knew that I had Thalassemia (genetic anemia) and that my iron stores were probably low due to menstruation and menopause (I have Hashimoto’s too). He said he wanted to screen me for celiac disease. I had no GI i...
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I can not find this product for sale. I assume they are private labeled mints sold to a restaurant. You could ask to see the carton they came in (read the ingredients label). I personally would skip it. Go buy some JUNIOR Mints or Pearson’s Mints at the local grocery, big box, or drug store as theses are gluten free and made in the USA.
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I will stick with science on this shampoo issue: https://www.glutenfreedietitian.com/personal-care-products-do-you-need-to-worry-about-gluten/
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Thanks for sharing!
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I am sorry you are not well. If you do not have access to medical testing and suspect DH or celiac disease, you can try the gluten free diet which is the only known cure.
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Egg Allergy/intolerance After Effect Of Celiac?
cyclinglady replied to a topic in Food Intolerance & Leaky Gut
Learn more about Mast Cell Activation from member Jebby who is a medical doctor and has celiac disease: https://www.celiac.com/gluten-free/blogs/entry/1931-mast-cell-activation-syndrome-madness/ -
Egg Allergy/intolerance After Effect Of Celiac?
cyclinglady replied to a topic in Food Intolerance & Leaky Gut
Good luck with the egg whites! Some of my food intolerances, improved (like lactose) and some have not (like garlic/onions). I keep testing, but no luck so far. It is hard cooking without garlic or onions. ? I developed allergies to ibuprofen, acetaminophen and aspirin, along the way making me wary of trying any medications. I react in the hospital... -
Unfortunately, cosmetics do not have to comply with gluten free FDA regulations. Companies are expected to be truthful, so you could report them. Prescription medications also managed to slip through the FDA gluten free guidelines (you can see just how powerful drug companies can be), which is way worse in my opinion. We all need to fight this! Me...
