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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You just need to worry about gluten found in wheat, rye and barley. Oats are naturally gluten free, but are often contaminated in the field, transport, or factory. Look for “gluten free” oats. Some celiacs react to even gluten free oats, but that is not common. It is one reason, experts recommend avoiding oats for a few months before adding them int...
  2. cyclinglady
    Southern California is expected to get our first big winter rain on Monday. It may be my last ride for while. We need it. It should extinguish the last of the fires.
  3. cyclinglady
    I make killer gluten-free scones. So no worries about finding replacements, I do not eat bread. I have yet to make or find a good gluten-free sourdough. For the most part, I am grain free because I have diabetes too. Bread or any grain really spikes my blood sugar. I save carbs for nutritionally dense foods like sweet potatoes. I do bake for my gluten...
  4. cyclinglady
    Four months in is such a short amount of time to expect healing. Most members take a year or two. Why? The gluten-free diet has a steep learning curve and most people have collateral damage like your neuropathy. Nerve damage can take the longest to heal. Keep up the good work! Soon you will be running again (though I think you are crazy!). ?...
  5. cyclinglady
    Can not argue with a reputable celiac center — the University of Chicago. Me? I did not really have GI symptoms, so I ate gluten like crazy. I bid a fond farewell to my old gluten favorites. It backfired on me. By the end of seven weeks, I knew for sure that I had celiac disease. Made it easy for me to give up gluten for life! ?. That and positive b...
  6. cyclinglady
    Here are the tests: http://www.cureceliacdisease.org/screening/ Because he is little, insist on the DGP tests as well. He may be too young for TTG antibodies to show up. Here is more information from Jebby who is a member and is a Neonatal doctor (preemies) who also has celiac disease: http://www.thepatientceliac.com/2013/04/18/update...
  7. cyclinglady
    Welcome! I think you are going to have to wait for the endoscopy results (are you sure you are scheduled for an endoscopy and not a colonoscopy?). As far as your celiac antibodies tests, who knows? Just saying that your IGA was positive does not reveal anything as this test can be just an Immunoglobulin A test used as a control test in celiac...
  8. cyclinglady
    I have been following Dr. Lustig for many years. I originally saw his lecture on UC TV (University of California, Television), called “Sugar: The Simple Truth”. I enjoy watching free university lectures while doing simple tasks around the house. Not to mention that I do not have to pay tuition!
  9. cyclinglady
    Mystic, I applaud your efforts to improve your psoriasis and psoriatic arthritis. I think a good diet can really improve your health. As celiac.com members, we know that a gluten diet has scientifically been proven to trigger celiac disease. There have been plenty of medical studies and dietary guidelines to guide a celiac or one with a gluten...
  10. cyclinglady
    These are awfully high in sugar. Who would eat just a 1/4 cup? Eat a bowl and you might as well have eaten a big slice of birthday cake! Weren’t you worried about diabetes? Try baking a sweet potato and add butter and cinnamon. Yum! The cereals can be fine for many. If you eat them, start slow, because they have added fiber (like insulin) that h...
  11. cyclinglady
    Another reason to avoid many processed foods? “Two bacterial strains that have plagued hospitals around the country may have been at least partly fueled by a sugar additive in our food products, scientists say. Trehalose, a sugar that is added to a wide range of food products, could have allowed certain strains of Clostridium difficile to become f...
  12. cyclinglady
    Think about it. Did the Inuits (Eskimos) have access to wheat in the past?
  13. cyclinglady
    Matt is absolutely correct. I just wanted to add that my hubby went gluten free 12 years prior to my diagnosis. His GP and my allergist suggested the diet and never discussed or tested for celiac disease. The diet worked. Does he have celiac disease or NCGS? Who knows? What we do know is that the diet works for him and it has been 17 years! Your...
  14. cyclinglady
    I am sorry that your diagnosis is not clear. I think you need to ask about the number of biopsies actually taken and from what part of the small intestine. Villi damage can be patchy and damaged areas missed. Ask if the pathologist correctly cut the tissue samples (this has happened to other members!). If many biopsies were evaluated, consider trialing...
  15. cyclinglady
    I think you should listen to your doctor. If you have a confirmed wheat allergy (IgE and NOT IgG), a gluten challenge could be dangerous. Consider a second opinion from another board certified allergist. That might convince you. Read up on celiac disease dietary tips, as they can help someone with a wheat allergy. At this point, eating out could...
  16. cyclinglady
    1. Who knows? Over 30% of the population has the celiac genes, but only a tiny few actually go on to develop celiac disease. 2. Very slim....but the possibility exists. 3. If you want to rule out celiac disease, consider getting the full celiac panel or ask your GI for the endoscopy as some celiacs are seronegative. I am concerned that...
  17. cyclinglady
    Perhaps all the lab results are not in. The TTG (IgA and IgG) tests are the most common. The control test, Immunoglobulin A (IgA) should have been done as well. In the case of celiac disease, it validates any IgA test.
  18. cyclinglady
    Jen, When you described the nerve pain, it sure sounded like my MIL’s — burning. She had MS (we suspect celiac disease as well now as her son has been gluten free for 17 years). Ten months into the Gluten Free diet is a pretty short amount of time. I can tell you that members report that nerve pain takes the longest to heal. So, keep at ...
  19. cyclinglady
    Thank you for satisfying my curiosity. I have no idea why your GI issues would have surfaced after going gluten free. When I was diagnosed, my symptom was anemia. I had no GI issues. I was shocked when my GI suggested celiac testing after he read my chart (anemic all my life or at least since I was first tested). I just went in for a cancer screening...
  20. cyclinglady
    It might not be gluten in canned tuna hat is causing your issues. You could be reacting to other ingredients like soy.
  21. cyclinglady
    Jen, Has MS been ruled out? You can have more than one autoimmune disorder.
  22. cyclinglady
    Sure, ask for the rest of the celiac blood panel (EMA, DGP IgA and DGP IgG). It would be worth the few extra dollars, not to mention that if my GI had not ordered the complete panel, my diagnosis would not have been caught. Did they check to see if you are IgA deficient? That is a separate test used as a control test in the case of diagnosing celiac disease...
  23. cyclinglady
    I would suggest seeing a gastroenterologist. You still might have elevated antibodies in your blood work and he/she might want to order an endoscopy. You might not even have celiac disease (unless your parents gave you the lab results), or if you do, it might have progressed to refractory celiac disease, Inflammatory Bowel Disease, or cancer. I would...
  24. cyclinglady
    This granola cereal does not specify gluten free sourced oats. It also says that it “may contain wheat....”. So, I would not eat it (based on the company website). This cereal is not even listed under their gluten free product listing. I used to eat this cereal prior to my diagnosis and I gave it up. Anemia was my only main symptom when I w...
  25. cyclinglady
    I am sorry that you are still struggling. I read your old posts and you have had skin biopsies (might not have been taken correctly), antibodies testing, a negative endoscopy/biopsies, but I think you may have been on steroids while being tested. It sounds like diagnostic h#@$! Have other autoimmune disorders possibly related to to DH (e.g. pemphigold...
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