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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    First, was the yeast fresh (even instant can go bad)? Did you test a bit to see if it activated or “proofed”. Where is the sugar? Sometimes, it helps to get the yeast going. Finally, there are a lot of flours and additives in that recipe. The end result might be a very dense bread regardless.
  2. cyclinglady
    Read up on Care. Do not wash with soap!
  3. cyclinglady
    Well, some 40% of the population carries the genes that COULD develop into celiac disease and only a few actually do. Genetic testing is most often used to RULE OUT celiac disease. Many illness symptoms often overlap making it difficult to diagnose base on symptoms alone. For example, celiac disease has over 200 symptoms attributed it. Some celiacs...
  4. cyclinglady
    Hard to say, everyone is so different. There is over 200 symptoms attributed to celiac disease. Not everyone gets the same ones. Your liver issues could be celiac related or not. Having your liver improve could be a sign that your celiac disease is improving. I took my increasing ferritin levels and hemoglobin as a good sign that the diet was working...
  5. cyclinglady
    Yes, celiac disease can mess with your liver. You should see improvement on the gluten free diet. I did not have a liver issue, but had anemia which resolved in just a few months. It took me over a year to really feel good though. I had lots of symptoms beyond my GI system that were actually attributed to celiac disease. Get your liver retested....
  6. cyclinglady
    Okay, then if you suspect gluten as the culprit, then trial the diet until you see results. This can take six months or longer. If the diet works, you really have your diagnosis. I get not having medical support. My hubby 17 years ago was advised to give up gluten by two medical doctors. It worked! There was a trial and error, but it was obvious...
  7. cyclinglady
    Rafedain Shish Kabob Restaurant, Inc. Recalls Chicken Patty Shish Kabob Products Due To Misbranding and Undeclared Allergens https://www.fsis.usda.gov/wps/portal/fsis/topics/recalls-and-public-health-alerts/recall-case-archive/archive/2017/recall-127-2017-release
  8. cyclinglady
    From what other members have said (read through the DH section), you can not diagnose DH just visually. A skin biopsy is needed. DH is celiac disease, but it resides in the skin. Some folks with DH have intestinal damage as well. That is why I suggested a celiac blood test. Others who have DH might not have any intestinal damage. Doing the biopsy is...
  9. cyclinglady
    Look into Mast Cell Activation Syndrome or a histamine intolerance. But....there is an allergy to wheat, but not to gluten. You can have both a wheat allergy or a gluten intolerance (celiac disease or NCGS). Has celiac disease been ruled out? Can you clarify what kind of allergy testing. Blood tests for IgG responses can be way off. Google it.
  10. cyclinglady
    gluten-free dough can be hard to roll. So...if you find you have difficulty, just roll the dough into balls and flatten. You can frost and decorate. Use parchment paper or a silicone make. gluten-free dough tends to stick!
  11. cyclinglady
    Keep eating gluten until the 13th. You have gone this far on this challenge. Talk to your doctor about your concerns. Research all that you can about celiac disease from reputable sources (like universities and hospitals or hit the library). Become an informed patient. Then you can make a good decision about your treatment. It has been confusing...
  12. cyclinglady
    I could not see the photo, but rashes can look alike. Consider a celiac blood test panel and a skin biopsy by a celiac-savvy Dermatologist.
  13. cyclinglady
    Again, the proper way to diagnose celiac disease is through blood test screening and then obtaining intestinal biopsies. Sometimes it is impossible to get the biopsies (via endoscopy) due to various reasons like lack of insurance/financial or long wait times (up to a year in Canada). So, the doctor will have the patient trial the gluten-free diet. For...
  14. cyclinglady
    The test should be accurate and it sounds like you have DH. That might be the reason to skip the endoscopy. Read through the DH section for valuable tips and welcome to the club!
  15. cyclinglady
    John, Didn’t you say in previous posts that you ate a burger at McDonalds just this past week and that weeks/months earlier you have had some gluten exposures? The learning curve to the diet is steep. Each glutening will set you back. I think you said your follow-up antibodies check was good but was that taken close to the times you ate gluten? ...
  16. cyclinglady
    You might have to go to a larger town to find a more competent GI. ? It is always a good idea to keep and maintain your medical records. I am glad you did! (Make sure you prin t or save from your patient portal). Share your results. Your TTG result could be elevated from something else.
  17. cyclinglady
    I am sorry that you were advised to go gluten free after your first blood test. All testing (ALL) requires you to be on a gluten diet with the exception of genetic testing (which helps to only rule out celiac disease). After your first blood test you should have been referred to a GI who would order an endoscopy to obtain intestinal biopsies (confirm a...
  18. cyclinglady
    Fantastic advice. I will add “kick him to the curb” as well. I have been married for almost 30 years. It is all about team work and caring deeply for one another in sickness and in health and during emotionally and financially rough times. If he will not support you in keeping you healthy, how will he treat future kids? I am also the mother of ...
  19. cyclinglady
    There is no way in h$)& that I would allow a gluten pizza party in my house. Instead, I would opt for something like salad and chili, tacos, a baked potato bar, stew....the list is endless and cheap. All can be easily thrown together and prepped during the week. I do get the desire to just order out though. But to risk being miserable for Christmas...
  20. cyclinglady
    Just for educational purposes, celiac disease and allergies fall under the umbrella of hypersensitivity. Wikipedia explains it well for this application. https://en.m.wikipedia.org/wiki/Hypersensitivity You can have several types of hypersensitivities concurrently. You can get tested for IgE allergies, but it is not always accurate. What make...
  21. cyclinglady
    Are you talking about rolled cookies? These recipe work: https://glutenfreeonashoestring.com/soft-chewy-gluten-free-gingerbread-men/ https://www.kingarthurflour.com/recipes/gluten-free-gingerbread-cookies-recipe Use parchment paper or a silicone mat. gluten-free flour can stick like crazy to the pan. Be sure to wrap, seal, and freeze leftovers...
  22. cyclinglady
    You have received some excellent advice. Your elevated B12 may be due to your body being unable to process unmethylated cobalamin (b12) found in supplements and processed foods. Google it! My b12 was extremely elevated and no, I did not have cancer. I could not process the non methylated version added to a daily vitamin or soy milk. Once I avoided the...
  23. cyclinglady
    All celiac testing (even intestinal biopsies) require you to be on a full gluten diet. It can also develop at any time in your life. You can either do a gluten challenge (12 weeks) and get the blood test again or remain gluten free for life. It sounds like you doubt your current diagnosis and that might make it difficult to adhere to the gluten free diet...
  24. cyclinglady
    Did the GI offer an endoscopy? You should be checked for refractory celiac disease, especially if you are confident that gluten is not getting into your diet. An elevated TTG can be attributed to other autoimmune issues like Crohn’s. SIBO and cancer should be ruled out too. Before doing so, ask for the complete celiac panel. If the DGP is elevated i...
  25. cyclinglady
    Well, some people (like me) test negative on the EMA and TTG tests. I test positive (even on follow-up testing) to only the DGP IgA. My intestinal biopsies revealed some severe damage. Then there are celiacs (about 10%) who are seronegative. All these are reasons why the intestinal biopsy is still consider the best test for making a celiac disease diagnosis...
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