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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hi! These results are negative. However, you stated that you knew that you had a wheat sensitivity. All celiac testing requires you to be on a full gluten diet for about 8 to 12 weeks prior to the blood tests or the results will be negative/invalid. Were you eating wheat/gluten at the time? Some celiacs are seronegative, but still have intestinal damage...
  2. cyclinglady
    I think you should seriously consider consulting with a nutritionist or dietician who works with autoimmune patients.
  3. cyclinglady
    Fine to get the shots, but why are you not absorbing the B-12? What is the root cause? Are you Vegan, take antacids, had weight loss surgery, or is your celiac disease active?
  4. cyclinglady
    Beans and legumes do contain lectins. I am not sure if pressurized cooking really removes them (and I cook with one). I would look for scientific research and not a blog to back this up. If you suspect lectins are an issue for you and are willing to experiment, then completely remove them for a few weeks. Make sure you are eating a variety of foods to...
  5. cyclinglady
    Thanks Ennis!
  6. cyclinglady
    There is light at the end of the tunnel. Like GFinDC said, the recovery time after a gluten exposure can vary due to so many different variables. I hope your recovery is fast! ?
  7. cyclinglady
    Welcome to the forum. Thank you for sharing your story. I am sorry that you have had to suffer for so long. Celiac disease is so frustrating and still people (and that includes medical) are not aware if it. Thank goodness for that home test kit. I hope your recovery is swift! Please feel free to ask questions or simply vent. We are all here for...
  8. cyclinglady
    Getting a celiac disease diagnosis is shocking. Expect to go through all the stages of grief. Your best defense is to learn how to read labels, avoid cross contamination and consider eating as few processed foods for a few weeks. It may speed healing (wish someone would have advised me to do so). You might keep a food journal because celiacs tend to have...
  9. cyclinglady
    I would read it as “high”. In any case, you were positive on the TTG and the DGP. You only need one positive. I had pretty severe intestinal damage and never even had a positive on the EMA or the TTG even when they were re-run several times during follow-up visits.
  10. cyclinglady
    This might help. You can review more by typing in “EMA” in the search box at the uppper left corner of the forum page. https://www.celiac.com/forums/topic/95734-please-explain-ema-testing/
  11. cyclinglady
    First, let me make this clear. Your diet may have contributed to diabetes a bit, but the reality is you are either genetically predisposed or not. That covers both Type 1 (TD1 — autoimmune) and Type 2 (TD2 — insulin resistance). Has your doctor diagnosed you with TD1 or TD2? TD1 is strongly linked to celiac disease. It can be determined by mea...
  12. cyclinglady
    Well, you can always trial the gluten-free diet, but do it for at least six months. Act exactly as if you had celiac disease. Worry about cross contamination and learn to read labels. My own hubby did this per the very poor advice from two medical doctors 16 years ago (and we had good insurance!). The diet worked. After a year of learning, he has...
  13. cyclinglady
    I agree with the advice given. You could also ask for the rest of the celiac panel since you were barely positive on the DGP IGG. This will help determine if the slight positive was a fluke. Make sure that you have been eating gluten for at least 8 to 12 weeks prior to the blood test. If you had been gluten free, the tests would not be accurate (invalid...
  14. cyclinglady
    We never eat at LAX. We do bring our own food or purchase gluten-free snacks while traveling through various airports. Often you can find fresh fruit options. If going international, do not rely on any airline to remember to load a gluten-free meal. You may end up starving!
  15. cyclinglady
    Your celiac test results are normal. But four weeks may not be enough time for your body to develop antibodies specific to a gluten exposure. Celiac centers recommend 8 to 12 weeks for blood tests and only 2 to 4 for an endoscopy to obtain intestinal biopsies. http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Since you already...
  16. cyclinglady
    Welcome! While it may be true for you (your biopsies may have revealed damage while you had been gluten free), researchers recommend a gluten diet for all celiac tests. Amounts and times may vary. Why because experts really do not know how each individual reacts to gluten. A person can heal in as little as two weeks or damage can last for months to...
  17. cyclinglady
    Rosalie. What kind of spices? Are you talking about Curry’s, garlic, onion, or chilis? In my case, I react because I have intolerances to those items even in whole food form. My reaction is not a glutening reaction. I use McCormick or the Costco brands. I have not been glutened by them. I use just black pepper and pumpkin spices (e.g. cinnamon) because e...
  18. cyclinglady
    If I look back to the few times I have been glutened, it was most likely food prepared by someone else (restaurants). Usually when I was traveling. But.... the travel was worth it. You need to weigh the risks vs. the benefits. It is why we keep saying there is a steep learning curve for celiacs. For some going gluten free heals them fast. For others...
  19. cyclinglady
    I have had Costa Coffee, but just plain. What we miss are their gluten free chicken wraps and brownies! We lived on those for breakfast before touring around. Starbucks, bring those to the U.S.!
  20. cyclinglady
    I buy both. Never been glutened by them. I do avoid the deli counter. I choose those that are factory packaged.
  21. cyclinglady
    Your doctor is wise. I bet your doctor said “likely”, because he wants the GI to confirm! So, keep eating gluten until you discuss with your GI. In the meantime, learn about celiac disease and treatment.
  22. cyclinglady
    Symptoms from many illnesses often overlap, so you can not diagnose celiac disease based on them (not to mention that there are over 200 possible symptoms). Best to get a simple blood test. Learn more about testing: http://www.cureceliacdisease.org/screening/
  23. cyclinglady
    Yes, even with a positive on the genetic test and feeling better on a gluten free diet, does not mean you have celiac disease. You could have a sensitivity (all the symptoms, but no intestinal damage) or you could have issues with FODMAP foods (wheat is one of them). The gold standard is still the intestinal biopsy. Again, if your antibodies were super...
  24. cyclinglady
    Hope you feel better soon. I can not take any NSAIDS or acetaminophen because I am highly allergic. So, I can not help you with brands, but someone else might. Target often has OTC products that are clearly labeled gluten-free.
  25. cyclinglady
    If you think the cause if your headache is allergies, consider taking an antihistamine. Try to solve the root cause instead of just relieving the symptom.
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