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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    When was the last time your celiac antibodies were tested? This might be active celiac disease. GFInDC and Trents have given you good advice. Ditch those oats, research mast cell activation syndrome, and keep advocating for yourself. Consider a repeat endoscopy if your antibodies are elevated. Ditch the Benedryl which crosses into the blood...
  2. cyclinglady
    It is a pretty normal response in my opinion. Remember, celiac disease is not an allergy. Gluten, in celiac disease, triggers an autoimmune flare up/response. (It is not about how long gluten remains in the digestive tract.). How long your body decides to stop attacking your small intestine lasts depends on you. Think of lupus or Rheumatoid Arthritis...
  3. cyclinglady
    I use Toms of Maine and Dove soap. Have forever. I also use some fancy bath soaps. Here are some lists: https://www.verywellhealth.com/gluten-in-toothpaste-should-i-worry-562440 https://celiac.org/about-celiac-disease/related-conditions/oral-health/
  4. cyclinglady
    Maybe. Is he immunoglobulin A or G deficient? Many celiacs are deficient in IgA or IgG making them more susceptible to infections. An IgA deficiency is often caught during celiac disease blood testing.
  5. cyclinglady
    If I was not allergic to almonds, I would buy these. Nice that the company lets you know that it is manufactured in a factory with other nuts. They are good about disclosing information and I like that. If the package had said “made in a facility that process nuts and wheat“ , I would not buy them unless the package said gluten free. This would tell me ...
  6. cyclinglady
    Pharmacutical companies do not have to comply with the FDA guidelines for gluten free. Complain to Congress! In the meantime, look up the medication on pillbox. While the company will not guarantee it is gluten free (they follow their legal department’s advice), chances are it is. Look at the fillers or not active ingredients. For example, I looked u...
  7. cyclinglady
    The gluten free version is low In sodium.
  8. cyclinglady
    Because you are older like me, antibodies can take a very long time to normalize — 1 to 3 years. Look for a downward trend on those lab results. If your symptoms are not improving, you might have another illness and it might not be due to active celiac disease. TTG can be elevated for other autoimmune reasons. A repeat endoscopy might be a good idea f...
  9. cyclinglady
    Cereal is okay for a celiac. There has been controversy over oats. To place it safe, consider following the old celiac guidelines. The old rule recommended no oats for six months. Then test for a reaction as some celiacs actually react to oats. This advice is still being dished out in Australia. Oats are banned there for celiacs. https...
  10. cyclinglady
    Check the CDC guidelines for child development. My nephew was not verbal at two. By three he was diagnosed with autism. His PED never caught it, but the family did. Early intervention is critical.
  11. cyclinglady
    🤣 Yep, the “meno pot” is so frustrating Chances are you were losing muscle mass and you just did not notice. I have despite being very active (close to 60). If you go below your BMI, I would worry. Weigh loss can show up flaws. It is a common complaint from anyone who has lost weight fast. I think people in general have forgotten what n...
  12. cyclinglady
    Not my experience at all with Kaiser. Both my GI or PCP doctors order tests in advance of my annual check up (antibody testing, bone scans (every two years, but I had fractures), thyroid panel, vitamin deficiencies, etc.) Maybe you should come down to LA or get another doctor within your clinic. 😉 Kaiser did not diagnose me. My diagnosing GI never fo...
  13. cyclinglady
    I am sorry that I did not communicate clearly. It was not my intent to offend you. There is very little scientific evidence for change in hair texture. Hairdressers and doctors theorize that it may be due to many things like hormones, chemo, malnutrition or HIV. But no one knows for sure. Not the best link, but nothing I quickly found in reliable site...
  14. cyclinglady
    How long have you been gluten free? I know you do not have a formal diagnosis, but it seems that the gluten-free diet has been helping. Did you know it takes most celiacs a year or longer to feel well? Maybe consider giving the gluten-free diet more time. Or start consuming gluten for several months and get tested for celiac disease. Candida intestinal...
  15. cyclinglady
    B — plain yogurt with heavy cream, banana, cinnamon and egg “pancake”. I eat yogurt and eggs every single day: fried, soft-boiled, hard-boiled, scrambled with cheese, meat, veggies. L — turkey roll-ups. Made an egg salad with cheese sandwich for hubby. Served with cut up veggies, fruit. D — Grilled rosemary chicken, rice, green beans wit...
  16. cyclinglady
    Breyer’s Ice cream is labeled gluten free. It is good. Simple ingredients (plain vanilla). I also buy certified gluten-free corn and potato chips. But I do not have issues with soy, corn or milk which are common in processed foods.
  17. cyclinglady
    Ask any hair dresser/stylist. Hair texture can change throughout your life. It is common. Most common reason is fluctuating hormones (e.g. pregnancy, puberty, menopause). I would worry about hair loss over texture. My hair has changed. Wavy (kid) to curly (teen, wore an Afro, no permanent in the 70’s). Hair shedding after pregnancy. Menopause, ...
  18. cyclinglady
    My guess is that there will be a vaccine for COVID 19 long before a pharmaceutical treatment for celiac disease. The good news is that healing is possible with just food. That is pretty amazing!
  19. cyclinglady
    I had a repeat endoscopy five years after my diagnosis, which revealed a completely healed small intestine. Unfortunately, it found autoimmune gastritis which was not there when I was diagnosed and was the root cause of my current symptoms and not active celiac disease. Here is the kicker, at the time I had the repeat endoscopy, my DGP IgA was not normalized...
  20. cyclinglady
    Please do not think of gluten poisoning your daughter yet! Just like getting vaccinations or a blood draw, sometimes medical requirements/procedures are tough on your child and you, as a parent. An endoscopy can be very valuable. Not only can it confirm celiac disease, but the GI can check for other concurrent issues like SIBO or an ulcer that would require...
  21. cyclinglady
    “I Be Stumped.” I think too many doctors use an IBS diagnosis as a catch all. They should look for the root cause, like Scott said.
  22. cyclinglady
    Yes, you can develop ataxia if your celiac disease is untreated. It is also possible that active celiac disease will cause additional autoimmune disorders. I developed my third autoimmune after a gluten exposure. Not fun. And we will not even talk about cancer. I am sure your doctor let you know about this risk though rare. celiac disease is a...
  23. cyclinglady
    What foods does he like to eat? Five year olds can be picky. Encourage plenty of fresh veggies and fruit. Does he have a lactose intolerance? If not, dairy is a good choice. Is the rest of the family gluten free? Consuming gluten in front of your celiac child can be hard. For example, my house is gluten free. Anyone who comes into my house...
  24. cyclinglady
    I am sorry that you are unwell. I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance. When was the last time you have celiac antibodies checked? Have you had a repeat endoscopy? Symptoms for celiac disease can ebb and flow. They can change too like a chameleon making it...
  25. cyclinglady
    The IgA by itself, is not a celiac disease test. It measures Immunoglobulin A. When testing for celiac disease, the lab/doctors use this test as a control test. For example, one of the celiac disease tests is the TTG IgA. If you do not make IgA (but you do and are in mid-range) then this TTG is not going to work. Then the doctor would order a TTG IgG...
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