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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hi! Lots of questions. I recommend continuing your research on both subjects, but I will try to help. 1. Gluten challenge: http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ 2. Endoscopy in two weeks after a gluten challenge? Sure, if you can find a GI who would do it based on blood tests and/or symptoms. Often...
  2. cyclinglady
    Welcome! Here is more information about a gluten challenge: http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ I would personally go for the maximum amount of tine and would consume as much gluten as I could tolerate 1 to 2 slices a day. Why? Researchers really do not know who builds antibodies fast. Some can do it in as few as...
  3. cyclinglady
    I have not found any that are reasonable (a gluten-free kit is available on Amazon and they want $50 ). Either you make the GINGERBREAD walls from scratch (gluten free) or just use cardboard as a base and “glue” on gluten-free gram crackers or “stucco” (fondant) with frosting or We never eat the end product; however, the kids consume plenty of deco...
  4. cyclinglady
    Looks like you tested negative on the celiac blood tests. Who ordered the tests? Reticulin has not been used for more than a decade. This makes me think that your doctor may not be so celiac-savvy. Why does that matter? Some 10% of celiacs are seronegative. If celiac disease is strongly suspected, a GI might want to confirm with an endoscopy. Also...
  5. cyclinglady
    Some people, like me, never get a positive on the TTG (even on follow-up Testing) and I stated that some celiacs (10%) have negative tests results period. Your doctor is doing the colonoscopy. Ask him if he is going into the small intestine via that route.
  6. cyclinglady
    Not necessarily. I am from the US and testing varies. It can be driven by expense. So, I would check.
  7. cyclinglady
    The problem is no one really knows how fast antibodies can go down. Researchers/experts have found that they can go down in as little as two weeks, but for some it can take a year or longer. So, to be safe and to insure a correct diagnosis, experts recommend a full gluten diet 8 to 12 weeks prior to a blood draw. Keep us posted. I am so happy for...
  8. cyclinglady
    Well, exactly what celiac blood tests were done as there are several (TTG, DGP, EMA)? The TTG is the most commonly given test for celiac disease. Unfortunately, it does not catch all celiacs (like me). Then about 10% of celiacs are seronegative. It is good that your doctor ordered a colonoscopy, but the small intestine can not always be accessed in this...
  9. cyclinglady
    Costco does. It is clearly labeled gluten free. The chicken guy does NOTHING but chickens. He unloads factory seasoned chickens in a dedicated area and puts them on the skewers, load the ovens, takes them out and packages them. I would worry more about low volume grocery store chickens. Their staff wears many different hats. That said, you can...
  10. cyclinglady
    It is not a lost cause! Just make sure you include a Gum, like Xanthan Gum, that replaces the “gluten”. You can buy that separately. Some flours, like Pamela’s, already have a Gum added to their flour mixture. This is hard to explain, but use a little less flour (e.g. 1/4 cup). You can always add more when converting from a regular gluten recipe to a ...
  11. cyclinglady
    Welcome! Recovery from celiac disease can take a lot of time. Most members report that healing took months to a year or longer. It all depends on the systemic damage that occurs throughout the body and we all have different issues. It also depends on how fast you learn the gluten free diet which typically has a steep learning curve. Check out...
  12. cyclinglady
    Maybe I will see you on this cruise..... http://glutenfreecruises.com/budapest-gluten-free-cruise-2018 or this: http://bobandruths.com/gfgetaway.html All 100% gluten free! ? Seriously, I would love to go to an adult celiac camp. No luck. No time this year, but I will be on that gluten-free cruise in the future!
  13. cyclinglady
    I think that iodine can aggravate DH (celiac rash). To help expedite healing, some people who have DH reduce iodine temporarily in their diets, along with going gluten free (for life). I have Hashimoto’s and have celiac disease. Like you, I was just iron deficient, but no GI issues. The correlation between the two is related strongly to genetics. ...
  14. cyclinglady
    Exactly how did you fail the celiac test? Many doctors just use the TTG test to check for antibodies to gluten. A great test, but it catches MOST but not ALL celiacs (like me). The other blood tests include the DGP and EMA. Learn more here at the University of Chicago: http://www.cureceliacdisease.org/screening/ Next, some 10% of celiacs are...
  15. cyclinglady
    The parent company is Johnson and Johnson (think baby shampoo or Pledge furniture polish). You would think they would be more supportive. I am personally boycotting them. They were CRIMINALLY fined for having metal particles in their infant Tylenol (liquid). https://www.upi.com/Johnson-Johnson-subsidiary-to-pay-25M-fine-over-childrens-Tylenol-recall...
  16. cyclinglady
    Linda, Are you sure you were tested for a gluten intolerance? Was it a medical doctor? Did it include these tests (read link): http://www.cureceliacdisease.org/screening/ If the blood tests were positive (any one of them), you should be referred to a Gastroenterologist who can perform a endoscopy to obtain intestinal biopsies. If positive...
  17. cyclinglady
    It could be celiac disease. The only way to know for sure is to get tested before trying the gluten free diet (all celiac disease testing requires you to be on a full gluten diet. Learn about testing: http://www.cureceliacdisease.org/screening/ I hop you feel better soon.
  18. cyclinglady
    How long have you been gluten free? It can take time to heal because the learning for the diet is very steep and there is often a lot of collateral damage. Make sure your diet is well-rounded and full of veggies and fruit. Avoid processed junk food until you feel better. Consider asking your doctor to run a mineral and vitamin panel. Supplements may...
  19. cyclinglady
    No, it is not common, but you can reach the small intestine from the colon. ? https://medlineplus.gov/ency/article/003889.htm
  20. cyclinglady
    The trip will be easy! What will be hard is for your daughter to learn to participate without eating everything. It depends on the restaurant, but many health codes prohibit bringing in outside food. When that happens, I usually head out to my car and quickly eat while everyone else is eating (think Girl Scouts). I might sneak in a treat to munch on and...
  21. cyclinglady
    Thanks for letting us know. Sometimes, we just assume that gluten is to blame, and often it is not. I am so guilty of that. I kept thinking that I was getting glutened. Turns out I can not tolerate Xanthan Gum....still to this day.
  22. cyclinglady
    I am sorry that you daughter is not feeling well. To answer your question: https://celiac.org/celiac-disease/understanding-celiac-disease-2/treating-celiac-disease/
  23. cyclinglady
    I would strongly refrain from getting accurate celiac-related information from a blogger. This just came out this year and references medical studies. https://www.gluten.org/branchnews/gigbeerstudy/ Gluten-removed beer is not considered safe by leading celiac researchers.
  24. cyclinglady
    Just two more days!!! ?. You can do it! Even if negative, consider trialing the gluten free diet if your GI can not find any issues. It might help.
  25. cyclinglady
    Okay. Hopefully, another member can provide you with some smoothies or shakes to drink that are gluten free. I do not drink those. To maintain your health, you probably need to make time to prepare some gluten free food. What about fruit, yogurt, nuts, some vegetables (like cooking a potato in the microwave)?
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