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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    How long ago were you diagnosed with celiac disease? It can take many months to heal and to begin to absorb nutrients. You should be able to gain weight once healed.
  2. cyclinglady
    Welcome Denise! Since you are already gluten free, consider reviewing our Newbie 101 thread located at top of the “Coping” section of the forum. Browse through old threads and read the many articles that celiac.com has to offer. They are a great resource. Make sure you avoid cross contamination and that may mean not eating out until you have seen imp...
  3. cyclinglady
    Consider pushing for that GI consult. The reason is you stated that he was skeptical about the diet and how it impacted the test results (or was he skeptical that you might have celiac disease)? This sounds like he still has not consulted any medical books or Dr. Google about celiac disease. ALL celiac blood tests and intestinal biopsies must be done while...
  4. cyclinglady
    I found this today. GERD might be a result of inflammation and not too much acid as once thought: https://www.medscape.com/viewarticle/863413 Note: It was a very small study.
  5. cyclinglady
    Thanks for responding. I hear you! So many others on this forum are like you. Like....my husband. Medical doctors were not able to help him. He had chronic sinus infections, horrible snoring and felt like he always had the flu. My allergist and his GP advised him to go gluten free some 16 years ago. It took a year to get the diet down (no cheating...
  6. cyclinglady
    It is hard to answer your question without more facts. Why did you go gluten free? Have you been diagnosed with celiac disease? Have you had follow-up testing? Your issues might be related to something other than celiac disease. I have celiac disease. Within months my anemia resolved. I felt better at one year, but it took two years to really...
  7. cyclinglady
    Yikes. I have Osteoporosis and have already experienced vertebrae fractures. My hubby has used a chiropractor for a shoulder injury (recommended by our medical doctor), but I would not feel comfortable having anyone manipulate my back. My fractures occurred while I was doing NOTHING. I also had rib and hip pain while lying down. All that resolved in...
  8. cyclinglady
    Wow! So glad you shared your story. It is bound to help someone with comparable issues. It is shocking how celiac disease can affect people so differently. Keep us posted on your progress. Learn about follow-up care: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
  9. cyclinglady
    Welcome! Most people on this forum either have celiac disease or non-celiac gluten intolerance. That means they can NEVER consume gluten again. A tiny exposure to gluten can trigger an autoimmune response that can last for weeks or months. If you suspect celiac disease (which is an autoimmune disorder like lupus), consider getting tested. It would...
  10. cyclinglady
    I went in for a routine colonoscopy (yep, I am over 50). My GI reviewed my chart and told me he suspected celiac disease. If positive, he would scope both ends! I had no GI symptoms. I was shocked. Shocked because I knew exactly what I was getting into. My hubby had been gluten free for 12 years prior to my diagnosis. Grieving is normal. Rant...
  11. cyclinglady
    All that can be attributed to celiac disease. There are over 200 symptoms that are attributed to celiac disease. You might have many, a few or NONE. Yes, there are documented asymptomatic celiacs! Keep going on your challenge. Talk to your doctor if you get really sick (I assume he/she knows you are doing the challenge). Celiac symptoms can also...
  12. cyclinglady
    If you think you have celiac disease, you should get tested before going gluten free. Learn more: http://www.cureceliacdisease.org/screening/ KP seems to run in families. Celiac disease might not be the cause, but malabsorption might be and celiac disease causes malabsorption (so can other things like a food famine). You can learn more here...
  13. cyclinglady
    There can be a cure for reflux/GERD. If celiac disease is the cause, your symptoms should resolve with time and if you maintain a gluten free diet. It did for me. Try to determine the root cause. In the mean time consider the suggestions given. For me, not eating well before bedtime or sleeping in a elevated position helped me temporarily.
  14. cyclinglady
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  15. cyclinglady
    Keep eating gluten! All celiac tests except the non-diagnostic gene test (when standing alone) require you to be on a full gluten diet or the results could be negative! http://www.cureceliacdisease.org/screening/
  16. cyclinglady
    Ha, ha! I have dug through a stack of cups and lids myself. ?
  17. cyclinglady
    I worked in a bar when I was in college. Glasses back then, never went through a dishwasher. They were washed and then dunked into a sanitizer solution. Weekend nights were so busy that the bartender was forced to speed things up. You would find lipstick markings on glasses. As a barmaid, I checked. I wanted to be tipped well. Not sure how much gluten...
  18. cyclinglady
    Hummm...dumb question, but are you careful to avoid putting your hands in mouth or washing them before you eat? I consider myself to be very sensitive. I am on a low carb diet (diabetes), am mostly grain free and avoid processed foods and eating out. My house is completely gluten free. Like you, I travel and follow the same precautions. I...
  19. cyclinglady
    Smiley, To answer your question, if you have NCGI (and only way to get this officially diagnosis is to rule out celiac disease), you have to be very careful on your diet. Cross contamination is a huge issue. You can be gluten free on your own. You do not need an official diagnosis. There are tons of people who do not have an official diagnosis...
  20. cyclinglady
    Was EOE discussed? Your doctor might be trying to rule this out. http://apfed.org/about-ead/egids/eoe/
  21. cyclinglady
    I hope it works out for you. No one wants a sick child. My heart goes out to her. Again, I have NEVER had a positive in the TTG or EMA tests. I have had the test run at least four times in either a follow-up visit or after a severe glutening. Only my DGP IgA is ever elevated. I have researched like crazy. I know everyone thinks the TTG is the...
  22. cyclinglady
    General Mills VOLUNTARILY decided to remove the gluten free label on their boxes of Cherrios in Canada. The dispute seems to be about the testing methods for oats. General Mills was on a team of researchers, manufacturers, etc. to help determine safe and valid testing just for oats. It appears GM gave up. http://www.aoac.org/AOAC_Prod_Imis/AOAC...
  23. cyclinglady
    Run and find another doctor! Your endo obviously is not celiac savvy! If you have celiac disease you can never have gluten again. Avoiding gluten is the ONLY known treatment for celiac disease. Even a tiny crumb can harm a celiac by setting off a autoimmune flare-up. I would also find a new endo who might handle your Grave’s treatment better. If h...
  24. cyclinglady
    Well, you are in a tough spot. You only need to consume 1 or 2 slices of bread per day for 2 to 4 weeks prior to an endoscopy (University of Chicago). Damage can occur quickly in the small intestine, but it takes longer to build antibodies found in your bloodstream. Consider staying on gluten and try to get a cancellation. Call every few days. That...
  25. cyclinglady
    Can you get a second opinion? Consider a challenge? I was officially diagnosed (4 years ago), but my hubby had doctors who advised him to go gluten free 16 years ago. We know that gluten makes him ill. He will not consider a challenge (we like paying our bills). He will say that I have had way more medical and family support. Karen is right...
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