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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    McNeal is owned by Johnson and Johnson. I tell you it is all about the money. Read the history of acetaminophen. It was all a marketing scam. Really. Gluten? CYA statements? I would not trust them. They were sued successfully and fined in 2015 for metal in their Liquid products (Tylenol, Benadryl, and MOTRIN, (you know, the ones our infant...
  2. cyclinglady
    I found that I am highly allergic to acetaminophen this past winter. Had an anaphylactic reaction. I knew that I was allergic to aspirin and ibuprofen for years. I had a tooth extracted so I prepared in advance. I called and got the same response from the maker, Johnson and Johnson. Really? This company is making a bundle and they are famous for baby...
  3. cyclinglady
    I am so sorry! My heart goes out to both you and your daughter. I completely support your idea of another GI consult and to rule out celiac disease. She can have both. Without treating celiac disease, it can continue to possibly cause Crohn’s flare ups. Find out on that report how many biopsies were taken in the small intestine and the location. They s...
  4. cyclinglady

    until

    No. Too far for me (am in CA). Have fun! ?
  5. cyclinglady
    I have never taken this biocard test, but over the years I have seen many results from our Canadian and GB friends (it has been a while since they have posted anything and that is why I am responding). What you have is a strong case for asking your doctor for a celiac blood test. Take care!
  6. cyclinglady
    My GI told me that visually I looked great, but my biopsies (reviewed by a pathologist) showed moderate to severe patches. Plus, I only had one positive on the celiac panel and it was not a high result!). Damaged areas can be missed! She can have more than one AI issue going on. Even if celiac disease is firmly ruled out at this time (I would...
  7. cyclinglady
    Could be. But who knows? Being a diabetic, i have learned that frozen shoulder can affect diabetics as well (another instance of symptoms overlapping). It has happened to me a few times. I attributed it to a previously torn rotator. Recovery time is very slow, but celiac disease has taught us to be patient! Once healed, keep it strong with exercise...
  8. cyclinglady
    I only had anemia when I was diagnosed (gallbladder removed years prior) no gut issues. So, it is impossible to determine a celiac diagnosis based on symptoms because symptoms tend to overlap with many other illnesses. Some celiacs have NO symptoms at all. Talk to your GI about getting tested for celiac disease.
  9. cyclinglady
    Anemia was my only symptom when I was diagnosed. I also tested funny with only the DGP IgA elevated, yet I had some pretty severe intestinal damage. So, ask for the complete celiac panel as the TTG IgA does not catch all celiacs.
  10. cyclinglady
    It means you should get a referral to a GI as you have had some positives on the blood panel and it only takes one positive on the panel to move forward to complete the diagnosis. But it sounded like you were done with doctors.
  11. cyclinglady
    Please let your GI know that you had been gluten free for months prior to your blood draw. You may decide to undertake a gluten challenge or maybe he/she will order a biopsy without the blood tests. Do you have celiac disease? Who knows? There are over 200 symptoms that often overlap with other illnesses. The only way to know for sure is to get...
  12. cyclinglady
    This article interviewing Dr. Murray says that as in as little as two weeks, the tests for celiac disease might not be accurate: https://celiaccentral.wordpress.com/2012/10/03/going-gluten-free-before-the-diagnosis-do-or-dont/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ The problem is no one really knows because we all...
  13. cyclinglady
    When my gut is damaged from a glutening, I can not eat cauliflower. Fortunately, with healing, I can get it back. Same for dairy. It is all about easy-to-digest foods. I have a big freezer in my garage. Best investment ever! I cook soups, stews and chili to always have on hand. I freeze pre-cooked ground beef, stew meat, chicken, shredded...
  14. cyclinglady
    Did you just eat them plain? A sauce? If new, just eating anything can hurt. After all, your gut is damaged. Since celiac disease is autoimmune, it will flare up when exposed to gluten. Every little hit adds up. It can be a vicious cycle. Not to mention that celiac disease is like a chameleon—symptoms can change with each glutening. . Avoid p...
  15. cyclinglady
    Your BEST bet is to eat only foods that are Whole and not processed. At least until you are feeling better. That means just shopping the outer walls of the grocery store. Eat fruit, veggies, meats, and dairy (plain yogurt, cheese and milk), nuts in shells, etc. Do not eat out. Once you see improvement, experiment with gluten-free processed foods...
  16. cyclinglady
    I use Gabriel gluten-free lipstick and love it! My local Sprouts (like Whole Foods), carries it. My foundation is just mineral powder (not certified). There are no gluten ingredients, but I use very little and I apply it with a damp sponge, so I do not breathe it in or swallow it. If she is sensitive and touches her face a lot, I would try the certified...
  17. cyclinglady
    Welcome! The only way to find out if you have celiac disease is to get tested. When were you gluten free? You should be on gluten for 8 to 12 weeks (I would go for the 12 weeks) prior to the blood draw. I don’t know about the immunosuppressant and the impact it might have on your celiac disease test results. Talk to your doctor. Here are the t...
  18. cyclinglady
    Hi! It is highly unlikely that your nail polish is setting off your DH. I see you just joined us. Have you read the Newbie 101 thread located at the top of our “Coping” section? Have you browsed through our DH section? DH can continue to flare for months after you have been gluten free (per other member postings) making it very difficult to ...
  19. cyclinglady
    Not really necessary unless you plan on eating it. I would be more concerned with hand lotions or shampoos (greater chance of swallowing). Gluten must be ingested to activate celiac disease.
  20. cyclinglady
    It all falls under the term “Hypersensitivity”. celiac disease is classified as a Type 4 and a peanut allergy is a Type 1. This explains it: https://en.m.wikipedia.org/wiki/Hypersensitivity
  21. cyclinglady
    Ah, DH! Then you can most likely rule out celiac disease. Maybe it is another autoimmune disease. I sincerely hope you can figure it out. Keep us posted.
  22. cyclinglady
    Well, good luck on healing your thyroid. Unlike celiac disease, the trigger is not known. Stress, illness, whatever, can set up a Hashi's flare. I have had my thyroid antibodies elevated for over 20 years. My most recent test indicated that they were 300 which is down from over 2,000. There is no cure from Hashi's. The best you can do if to take thyroid...
  23. cyclinglady
    So your doctor is clueless as to what is causing item "c"? Or are you seeing these results prior to a consult with your doctor? I know you say you are not asking for a diagnosis. How can we possibly give you one? You can google the test results and take you your pick, but better to talk to your GI. He has your complete chart.
  24. cyclinglady
    When it doubt, do not let him eat it. Better safe than sorry. I personally do not trust my Mom to cook for me. She is great, but she is not living a gluten free life daily. I eat at her house, but only when I am supervising her. I also keep my own gluten-free utensils and cooking items in a bin at her house. I use a lot of foil and parchment paper...
  25. cyclinglady
    Item C. What did your GI say? The small intestine is as large as a tennis court when spread out. Easy to miss damaged areas. How many biopsies were actually taken? I would recommend a second GI consult. Obtain all your records, including those blood tests. Just looking at what you posted does not tell the entire story.
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