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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome. Sure, get tested. I am the first one in my family to be diagnosed with celiac disease. Make sure you are consuming or have been consuming gluten daily for 6 to 12 weeks or the tests will be invalid. Here are the tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  2. cyclinglady
    You would think an ER would run a standard glucose test, but you never know. The perplexing thing is that the OP had a hole in his/her gut on a scan. I think that is why the endoscopy was ordered. Hopefully, they also checked for celiac disease. You have been here a long time. Ever hear of celiac disease causing a perforation of the small intestine...
  3. cyclinglady
    Whatever you can tolerate, but a minimum of one slice of bread per day or equivalent. Make sure you get a complete celiac panel (TTG, EMA and DGP and make sure you are not IgA deficient.
  4. cyclinglady
    The TTG is the standard common screening test for celiac disease. It is good, but does not catch all celiacs. If still on a daily diet of gluten, you could ask for the EMA and DGP tests (IGA and IgG versions). But I would suggest waitIng for the endoscopy results. Again, a hole in the small intestine is not a sign of regular celiac disease. I could be...
  5. cyclinglady
    No chance in weight. But my husband had been gluten free twelve years before my diagnosis, so I already knew the diet. It was a huge advantage. I also recognized many of my intolerances and allergies long before my diagnosis. How much fat with that meal? I live on butter. 😆 Also, how thin are you? Is your BMI normal?
  6. cyclinglady
    Sorry, I can not help you with meds for indigestion or reflux. But I can offer a few suggestions that work for my gastritis. Consider 12 hour fasts. Not eating anything after dinner helps so much. It gives your GI tract a rest. Sleep on a wedge pillow or elevated helps too. No spicy foods until you feel better.
  7. cyclinglady
    Under one of the types of hypersensitivity, is mast cell issues. Research Mast Cell Activation Syndrome. It can be life-threatening or mild. It is relatively new, so many doctors are not aware of it. My allergist suspects I have MCAS, but since it is mild, we decided not to pursue a formal diagnosis (just like my GI and PCP know I probably have a 4th...
  8. cyclinglady
    I am guessing that the 250 result means that the lab can or does not measure anything higher. It could be 720 or 1000! I get that result myself. I say it is “off the charts”. Like Scott says, do not alter your diet. Keep consuming gluten until your GI tells you otherwise (not your GP/PCP). Trimble...assuming that is your name, is...
  9. cyclinglady
    Hey, I remember that I did take some enzymes for lactose, several years ago after a gluten exposure. If I recall, it worked. I used Country Life which is certified and vetted by old members.
  10. cyclinglady
    When researchers came up with 20 ppm standard in the US, the study it was based on was about 60 people. Tiny. But at least it was a start. if you have healed and have a tiny gluten exposure through cross contamination, you might not know it. Some celiacs are asymptomatic. I think some celiacs are a bit more sensitive and can have a lot...
  11. cyclinglady
    Which celiac disease blood tests were given? While you could still have celiac disease, I am glad you had an endoscopy (which your doctor could still check for signs of celiac disease). Celiac disease does not cause a large visible hole in your small intestine, but other autoimmune disorders or other illnesses can.
  12. cyclinglady
    Celiacs can safely consuming uncontaminated rice. It does not trigger the autoimmune response that can cause small intestinal damage. With that damage, however, it is common to have other food intolerances. But you could have Crohn’s, Ulcerative colitis, tropical Sprue, SIBO or any other illness that can cause food intolerances too. Do you h...
  13. cyclinglady
    Research is your best defense. Trents is correct is allergy testing is “iffy” and I am not making it up. Read the Allergist Association websites. It can help aid in identifying triggers, but often not. That is what my allergist tells me. IgG testing is the worst. IgG is a memory immunoglobulin. It remembers you had the chickenpox and remembers you...
  14. cyclinglady
    If you have issues with rice, I do not think switching brands will help. I assume you are washing and finishing your rice several times and inspecting it for trace amounts of other grains. First let’s address cross contamination with gluten. Celiacs can normally and safely consume rice. However, cross contamination with gluten has been found t...
  15. cyclinglady
    Ah, the garlic and onions would cause my face (and my daughter’s) face to itch and then tiny pustules will erupt, along with visual skin inflammation. Not to mention GI issues. We both have Rosacea. I have ocular too, so my eyes can be affected. Rosacea is linked to autoimmune (have Hashimoto’s). My face (and my kid’s) is so clear based on avoiding perso...
  16. cyclinglady
    Yes. I read the ingredients. Think about gluten this way. Gluten is the part of wheat that makes bread doughy and sticky. Commercial bakers even add more gluten to make their loaves more fluffy or to get all those whole grains to be more like Wonder Bread. If eye drops had gluten, they would be all sticky. It would gunk up your eyes. But always check...
  17. cyclinglady
    You could say the same for boys. The most important thing is making sure teeth are brushed before kissing and as always, clean hands, especially after preparing or eating gluten.
  18. cyclinglady
    We literally plan our road trips around gluten free restaurants. Washington and Oregon are terrific for celiacs.
  19. cyclinglady
    County Life has a certified gluten-free line. It is at my local health food store and is on Amazon. It works. I do become lactose intolerant after a gluten exposure (it has been three years now since that has occurred). I suggest starting with dairy that contains less lactose like yogurt, butter, and hard cheeses and use the enzymes. Breyer...
  20. cyclinglady
    Wow! This looks great. Are you going? We just got some “to go” at a dedicated gluten-free restaurant. We found a nice spot nearby to eat. Came home with a few baked goods that are in the freezer. What a treat!
  21. cyclinglady
    No, but it has been associated with celiac disease. https://www.sciencedirect.com/topics/neuroscience/mesenteric-lymph-nodes
  22. cyclinglady
    No easy remedies. For me, I must avoid gluten. I think you need to determine the root cause of your burping. It can be due to many things, including celiac disease. Learn more: https://www.healthline.com/health/abdominal-pain-and-burping
  23. cyclinglady
    My friend who is Greek and naturally lactose tolerant (ah, genetics), uses those lactaid pills. They work! I was lactose intolerant for decades. Was even diagnosed with a milk allergy. So, I consumed soymilk for decades. After my diagnosis, (about a year), I added dairy back in slowly. I started with items with the least amount of lactose...
  24. cyclinglady
    Planning a trip soon? While gluten free processed foods can be a delight to find while traveling, consuming just plain naturally gluten free foods found in markets is easy. We have learned to “tailgate” when traveling here in the US or internationally.
  25. cyclinglady
    What kind of device? If on a phone or iPad, you have to use the device vertically in order to get the search box to work. This has been my fix, but tech should know about this issue (and not just from me...😆)
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