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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Here are other things that can cause villi atrophy damage (University of Chicago): http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/
  2. cyclinglady
    Researchers think that a decline in female hormones may impact your risk for heart disease. It basically puts us at the same risk as men. Lipid levels are known to increase. Your shortening periods may be due to natural decline in hormones. If your symptoms are severe, you may consider Hormone Replacement Therapy. Discuss this with your GYN. But seriously...
  3. cyclinglady
    I think you need to wait for the LDL particle test results, along with the ultrasound results. For years, my doctors congratulated me on my low cholesterol (my total was always less than 120 and my HDL was around 30). Little did I know, it was celiac disease that kept those numbers suppressed. More importantly, I discovered through my research that...
  4. cyclinglady
    The iron IV might certainly help you feel better. If I were in your shoes, I would seriously consider it. The anemia should resolve with healing if it is celiac disease related. I recall you might have been exposed to gluten at the convention you attended. I am not familiar with UC, but I know that it can also cause anemia too.
  5. cyclinglady
    Ennis, I am not a doctor, but I have had iron-deficiency anemia due to celiac disease. Do you think this is due to celiac disease or UC flare? Are you taking iron? It might help until you start absorbing it again properly. If it is celiac disease related, you should recover soon that much I know!
  6. cyclinglady
    What is IgA and IgG? Is this in reference to the TTG, EMA and DGP celiac antibodies tests? Those all were negative? Some 10% of celiacs are seronegative. Are you doubting your celiac disease diagnosis? Because gene testing is often used to help eliminate celiac disease. You had a positive biopsy. While other things can cause villi damage, celiac...
  7. cyclinglady
    There are two kinds of LDL. The hard BB-gun-type pellets that are thought to cause damage to the artery walls and the soft fluffy type that is considered harmless. Find out the ratio of types you have. Also, get the test results. Do this before making a decision to go on a statin which may help with heart issues, but have some serious side effects.
  8. cyclinglady
    How many people actually go in to report adverse reactions to food products? Personally, I would hate to slander a company when I have no real data to back it up (I do not have a lab at home to test for gluten). ? I typically just keep my mouth shut and avoid the product in the future as I am not willing to risk eating it again. I think reactions to...
  9. cyclinglady
    It might have just been a coincidence. If you have celiac disease, you can also have a permant (not just due to celiac disease, but genetic) or temporary lactose intolerance. I would imagine that consuming lactose or milk proteins (if you are allergic), could contribute to inflammation and a heightened immune response. I do not have DH, but I do have...
  10. cyclinglady
    True. Everyone is different. It can take just a few days or it can take weeks for antibodies to ramp up. I assume you have avoided buns like the plague now! ?
  11. cyclinglady
    Sorry that you are going through this! Maybe it is your current diet. Just switching could have caused physical stress. Consider adding back in a little more carbs in the form of veggies (sweet potatoes, squashes, etc.) to insure you are getting nutrients that can impact your hair growth. I am diabetic/celiac and I maintain a low carb diet, but I...
  12. cyclinglady
    Did you eat papaya? Here is a release from the CDC. They were sold in your state. https://www.cdc.gov/salmonella/kiambu-07-17/index.html Feel better fast!
  13. cyclinglady
    Does he leave his backpack outside of the classroom? We are in Southern California, so I get the heat. Can he bring his lunch into the classroom? Store in the school kitchen or in a teacher's fridge? Surely, they should accommodate him. My kid has a small cooler and I load it up with three large blue ice blocks. This year her locker is outside...
  14. cyclinglady
    Welcome! My advice (I am not a doctor) would be to insist in the complete celiac panel (EMA, DGP). Why? The TTG is good, but does not catch all celiacs like me. I have never had a positive on the TTG tests, even in follow-up testing. Any MD can order the panel. The allergy tests are not super accurate and celiac disease is not an IgE response...
  15. cyclinglady
    Thanks, Karen for posting this!
  16. cyclinglady
    Rachel, I am so sorry that your father is ill. Did the doctors run a celiac panel to determine if his celiac disease is active (getting trace amounts of gluten into his diet)? What he is experiencing might not be related to celiac disease, but testing will help rule it out. I understand that he had endoscopies recently. Were those all negative...
  17. cyclinglady
    I am sorry that you are struggling with this possible diagnosis. I have a 16 year old but she has tested negative so far even though she is symptom free. Autoimmune diseases run rampant on both sides of the family, so her risk is great. Celiac disease can be silent. Symptoms can wax and wane. The good news is that it is something that can be managed...
  18. cyclinglady
    Try reading this from the University of Chicago regarding probiotics: http://www.cureceliacdisease.org/wp-content/uploads/CdC_Newsletter_Jan16_v4-FINAL.pdf Basically, they can be good for the colon when you have issues with IBD (Ulcerative Colitis) or IBS. For celiac disease? Well, there are not many forms of bacteria in the small intestine....
  19. cyclinglady
    The best thing you can probably do is exercise. Continue to do the exercises recommended by your PT for the rest of your life. Add in other safe activities once you start to heal (discuss with your PT). My sports medicine doctor gave me that advice 25 years ago and it paid off.
  20. cyclinglady
    If you are gluten light, your tests may be invalid. One week of cramming a lot of gluten into your diet might not be effective. Experts recommend 1 to 2 slices of bread daily for 8 to 12 weeks. Google it.
  21. cyclinglady
    What does your dentist say? Celiac disease can damage teeth. Usually that damage occurs when the teeth are developing due to malnutrition during the first seven years of life. Later, as adults, (most likely because of poor enamel development, lack of calcium, etc., when their teeth were forming as kids) they have teeth that crack or they suffer...
  22. cyclinglady
    I have been anemic my entire life. It was always blamed on my being a women and Thalassemia (genetic anemia), but I also had iron-deficiency anemia that waxed and waned. Since I have been gluten-free for four years, my iron-deficiency anemia is long resolved! I still have Thals, but my body has long adapted. I am not ever going to win the Senior Olympics...
  23. cyclinglady
    You can travel internationally (land or cruise) with a little planning, restaurant translation cards, and grocery store visits. We found places that we will want to re-visit as they had a good understanding of celiac disease and the gluten free diet (e.g. Italy and the Scandinavia countries). Last summer, we visited family in Poland. Like here, family...
  24. cyclinglady
    While it is a shame that your doctor did not order a celiac blood test (are you sure?), he did find villi damage. This can occur for many reasons but the predominant one is celiac disease. You were anemic and had osteoporosis at the time of your diagnosis. It is too soon for to for a bone scan, but how is your anemia? Improved on a gluten free diet? ...
  25. cyclinglady
    Congrats! My kid tested normal too. She will get re-tested if symptoms develop. Our doctor also checked her thyroid and anemia issues too, since that was how I presented.
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