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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Thyroid and parathyroid are not the same thing as they have completely different functions.
  2. cyclinglady
    Thanks for clarifying!
  3. cyclinglady
    Have you researched Mast Cell Activation Syndrome? https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/ http://www.jessicamaddenmd.com/JESS-Blog/January-2014/Mast-Cell-Activation-Syndrome-Madness
  4. cyclinglady
    Make sure that cereal (brown Rice Krispies) is gluten free. The most popular version contains barley malt! The candy sounds yummy! ?
  5. cyclinglady
    You bet! I am biopsy confirmed and tested positive ONLY to the DGP IgA. Even in follow-up testing, my DGP IgA is the only positive on the entire panel. There is a reason that there are a few different celiac antibodies tests. They are all good, but are not perfect. It is one reason why the vast amount of celiac researchers still believe that biopsies...
  6. cyclinglady
    Welcome! You did not provide the lab ranges, but I suspect that you exceeded them! My best guess is that your lab stats that anything over 20 is a positive. I am not a doctor, but if my guess is correct (about the lab ranges), you probably have celiac disease, the next step is to obtain biopsies via an endoscopy. You might consider doing them to...
  7. cyclinglady
    Your results were comparable to my kid's. She was negative. She had no symptoms. But....if she develops symptoms (like abdominal pain, bloating, anemia, etc.), she will get retested as she can develop celiac disease at anytime in her life. We are hoping that she never gets celiac disease, but we do not want for her to go undiagnosed for years (like me...
  8. cyclinglady
    Welcome. The IgA test in this case (celiac testing) is a control test. It determines if the celiac antibodies tests are valid (working). In your case, you are a little over, but doctors are looking at results being under range or close to zero. So, all your IgA tests (e.g. TTG IgA) should be accurate. So....I am not a doctor, but your tests would...
  9. cyclinglady
    Seriously consider getting tested. It starts with a simple blood test. http://www.cureceliacdisease.org/screening/ Is a diagnosis important? It can be difficult for some to maintain a strict gluten free diet without a formal diagnosis, but it can be done. A diagnosis can help, not just you but others in your family. Let's face it, IBS is really...
  10. cyclinglady
    Celiac disease is like a chameleon -- always changing. My celiac disease symptoms are rarely the same each time I have been glutened. I suspect, like most of us, that I suffered from celiac disease my whole life. I had symptoms that waxed and waned over the years. When I was actually diagnosed, I had no GI issues, just anemia (had that my entire life...
  11. cyclinglady
    Why not get tested for celiac disease and at least help rule it out since you are consuming gluten almost daily? http://www.cureceliacdisease.org/screening/ When I was diagnosed, anemia was my only health issue at the time. I had no GI issues. You can not go by symptoms alone when diagnosing celiac disease.
  12. cyclinglady
    Sure, you could have all three issues. We have plenty of members who have exactly those intolerances. I am assuming you have celiac disease. Have your antibodies been re-checked several times over the last six years? Your lactose and fructose intolerances might be due to active celiac disease (flare-up). They could just be temporary. In the meantime...
  13. cyclinglady
    Sorry, I saw that the EMA test was run and it was negative. Still, I personally tested negative to that one as well. Talk to your doctor first before going gluten free. You need to be on a gluten diet for even the endoscopy/biopsies to work. He still might want to do the endoscopy to rule out other issues. If everything is okay, then consider the gluten...
  14. cyclinglady
    Have you noticed that some sites fail to post a date? it drives me crazy!
  15. cyclinglady
    Learn more about celiac disease testing here: http://www.cureceliacdisease.org/screening/ This talks about celiac disease and the risks of developing it (e.g. Already having an autoimmune disorder or a family member with celiac disease): https://familydoctor.org/condition/celiac-disease/ The TTG test is a good test, but it does not catch...
  16. cyclinglady
    ?
  17. cyclinglady
    Hi Waiting! It has been a long time! I am so sorry that you are ill. I can not help you. I have only been on short term disability when I had my daughter and that was a long time ago! I hope someone with an HR background can provide some assistance.
  18. cyclinglady
    Country Life has some digestive enzymes and they are certified gluten. I have used their products. You won't have to call to insure they are safe. Amazon carries them and some local food stores. When glutened, I become temporarily lactose intolerant and ANYTHING hurts to digest. Mushy meats, veggies and fruit (yeah, cook it....think applesauce...
  19. cyclinglady
    Having issues with pasting a link.....here is the testing algorithm for celiac disease: http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf
  20. cyclinglady
    Gemini is right. Your doctor is dead wrong!!!!! You should try to find another GI, preferably one who is celiac savvy! Need more proof? Keep researching celiac disease and you will see that we are right and not some kooks in the internet giving you advice.
  21. cyclinglady
    Everyone is unique. You might not test the same as your Mom. You might be developing celiac disease or you might have another autoimmune disorder or the test could just be a false positive. Of course, getting to a GI is part of the normal process when seeking a diagnosis of celiac disease. I understand that you do not have insurance. You have two options...
  22. cyclinglady
    Welcome to the forum. I think members might be more willing to share experiences, if you shared your own experiences with your symptoms and your path to a diagnosis.
  23. cyclinglady
    You are NOT unique (well...not in terms of describing your reaction to the granola). I do best (less risk for exposure) on a whole foods diet too. You could be reacting to the oats. Were they certified or dedicated grown oats? I am sure General Mills is considering or is already selling their mechanically sorted oats to other gluten free suppliers. This...
  24. cyclinglady
    Here is the deal. You can NOT diagnose celiac disease by symptoms. Why? Because there are over 200 attributed to celiac disease. I personal was just anemic. No gut issues at all. Only a blood test caught my celiac disease diagnosis. Later, an endoscopy showed significant damage. You could go gluten free, but this diet can be hard if you have...
  25. cyclinglady
    Welcome. Corn and soy do not contain gluten. They can be contaminanated during food processing. Be sure to read all labels. Learn more: https://celiac.org/live-gluten-free/glutenfreediet/sources-of-gluten/ Some people with celiac disease have food intolerances. Corn and soy are possibilities. To test, try eating corn ? on the cob or soy in...
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