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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Are you kidding? (Actually, I used different words that were not appropriate to publish). I do not have time to really respond, but kudos to you for running. Heading over to the school to fit band uniforms.
  2. cyclinglady
    My opinion? Wait to go gluten free. It is just a month or two. I waited seven weeks for my endoscopy due to work constraints. I took the time to bid farewell to some of my favorite foods. If you do have celiac disease and go gluten free, many folks find that their symptoms are worse when going back in gluten for testing.
  3. cyclinglady
    You should not condem a product based on "home testing". The NIMA and the gluten strips are not exact science. They should be used (if you are even going to use them) as a simple tool. Better to read labels and verify with the manufacturer. This certified gluten free brand has been tested by an independent laboratory and was below 10 ppm. Spices can...
  4. cyclinglady
    Found this today on the USDA website. This product (Lou's Garrett Valley Natural, All Natural black forest seasoned uncured ham) contains undeclared ingredients barley (contains gluten): https://www.fsis.usda.gov/wps/wcm/connect/FSIS-Content/internet/main/topics/recalls-and-public-health-alerts/recall-case-archive/archive/2017/recall-088-2017-release
  5. cyclinglady
    Many US universities require that you buy a meal plan if you are in the dorm. Problem is not all are really safe for celiacs. It depends on the staff (remember most are students working there). . I happen to be on a state campus all the time. I would never eat in the dining rooms. It is something I need to champion when I get the time! I am also not...
  6. cyclinglady
    You, your son and the rest of the family will learn the gluten-free diet. It takes time, but soon it will become normal and routine. Glad to hear you have a benchmark on his small intestine. Keep copies of all his records and look into a 504 plan for school. PErsoanlly, I would not trust our district to provide a gluten-free lunch, but it will...
  7. cyclinglady
    Welcome to the forum. I assume that you mean that you are controlling your Hashimoto's and celiac disease with a gluten free and/or grain free diet. There is no cure for any autoimmune disease. Decreased antibodies indicates that the disease is not active, but not cured. Congrats on having a healthy baby! Enjoy him.
  8. cyclinglady
    Oh, make sure your celiac disease is not active and you are not anemic again. Just something else to consider for your fatigue. It is not always just one thing.
  9. cyclinglady
    Yes! Lab ranges vary and are based on the population. Per an old doctor, he said that the range was much lower 40 years ago (1 to 3 for TSH). It speculated that TSH ranges increased due to more hypothyroidism. So, what to do? Find a doctor who would be willing to prescribe a small dosage if thyroid replacement. Here is a link that discusses the thyroid...
  10. cyclinglady
    Sorry, I keep looking at the lab results. The AGA (Anti-Gliadin)is an older test which has been replaced by the DGP test years ago. Do you think your doctor ran the old tests? I assumed the lab was using the old name, but that the celiac test was new. In any case, it is still very positive but it makes me wonder how celiac-savvy your GI is. These...
  11. cyclinglady
    Here why I think you should continue to advocate for your daughter's health. This is not related to celiac disease. My niece was diagnosed with Crohn's. We thought for sure she had either the family gallbladder curse or celiac disease. Everything was negative. Nothing found. Four GIs (two were PED GIs). Finally the fourth GI did a pill camera. Caught...
  12. cyclinglady
    Wow! Those were not just Immunoglobulin tests. Those were actually celiac antibodies tests! I wonder why the (AGA) IgA was not flagged as a high result? Your daughter's results were comparable to mine. I test ONLY to the DGP IgA (gliadin) even in follow-up testing. Her results are very high! My biopsy did reveal damage. Do you know if they took...
  13. cyclinglady
    Yes, there is an issue with arsenic as reported by Consumer Reports and other agencies. For example, rice cereal is often one of the first cereals an infant consumes. It can affect the celiac and NCGI community as it is a common substitute for wheat in a gluten free diet. Moderation is probably key and obtaining rice containing less arsenic would be...
  14. cyclinglady
    You are in a difficult situation. I hope another Canadian can offer advice, but in the meantime, I think you have a few options. You could keep eating gluten until your endoscopy. You can periodically call to see if there have been cancellations. You could go gluten free and then reintroduce gluten 2 to 4 weeks prior to the endoscopy to get an accurate...
  15. cyclinglady
    While I am sad that you received a celiac diagnosis, I can totally relate to knowing where you stand. Being in diagnostic limboland is so frustrating. Here's to a speedy recover!
  16. cyclinglady
    Arsenic poisoning is not common. I understand that water and some foods are suspected of being potential problems for many people. For celiacs, it is typically rice as it becomes a "go to" grain that is free from gluten. Arsenic is found in soils and water sources. Some areas of the country have higher levels. What caused your levels to increase...
  17. cyclinglady
    Sorry that you are ill. I just want to add a link regarding the celiac blood tests that your doctor should order to help confirm a diagnosis of celiac disease as many other things can damage intestinal villi. http://www.cureceliacdisease.org/fact-sheets/
  18. cyclinglady
    Yes. Consult with an allergist. Keep in mind that testing for a corn allergy is complicated. Often an allergist will recommend food elimination diet.
  19. cyclinglady
    Your issue with corn could be an intolerance, allergy or maybe even a cross contamination issue. The study you provided with just a "theory" and was not proven as stated by the Study's Conclusion: "Maize is one of the most commonly consumed grains in the gluten-free diet. Despite the low content of zeins in maize-containing foods compared with...
  20. cyclinglady
    So, true!!!!!
  21. cyclinglady
    I agree. I ONLY have tested positive on the DGP IgA. Even in all follow-up testing (four years). The TTG could be elevated by other AI issues. Again, COULD, because I have active Hashi's (another AI) and my TTG is never elevated. Some studies do suggest that the DGP would be better for dietary compliance. Some people are seronegative. My thinking...
  22. cyclinglady
    I am sorry you are sick. I can only remind you that celiac disease is an autoimmune disease that is triggered by gluten (sets off an autoimmune response). It can take days or weeks for antibodies to ramp up and then decrease after a gluten exposure. Each time I have been accidentally glutened, my response (symptoms) vary. It drives me crazy trying to...
  23. cyclinglady
    Waiting for the pathology report is hard! My GI said that visually he could see no damage, but my biopsies revealed moderate to severe damage. Did your doctor order celiac blood tests? Many things can damage intestinal villi: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ The...
  24. cyclinglady
    Hi Wendy! I am so happy to meet you. Your daughter and Zeus are such an inspiration!
  25. cyclinglady
    Okay, so you have a TTG IgG result of 20 when anything over a 5 is considered a positive? Where did the 0 to 10 range come from? You have to use the ranges that the lab provides with the test result , not from another lab. Lab ranges can vary. Maybe I am not getting this.....☹️
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