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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    True links....but typically this occurs in severely immune compromised people (e.g. AIDS). "The mortality rate of invasive candidiasis is high in critically ill hosts."
  2. cyclinglady
    How long have you been diagnosed with celiac disease? If you are just in the first year, your body needs to heal and not workout so hard. I get wanting to exercise. See me on my bike? I ride centuries and used to do Triathlons. I love exercise, but not when it is harming my body. Get your immune system and a vitamin/mineral deficiency workup...
  3. cyclinglady
    Read the DH section of the forum. You will find out that many DH suffers can be seronegative on the celiac blood tests. A skin biopsy (taken in a very specific way) can diagnose DH. Taking steroids can ruin test results. Consider finding a celiac-savvy GI or Derm. In any case, some thing is wrong. Keep advocating for your health!
  4. cyclinglady
    I agree with Tessa. This came up pretty fast. I would ask to rule out Lyme Disease and get copies of the celiac blood panel. Are you sure you got the complete panel? What were the biopsy results? Intestinal villi damage needs to be reviewed by a pathologist. My own endoscopy was visually normal, but my biopsies confirmed a celiac diagnosis. celiac...
  5. cyclinglady
    Well, many celiacs resend to become more sensitive the far they get into their diagnosis. I was just anemic without GI issues, but now....I get the usual GI symptoms after a gluten exposure. Eating with a group? I always bring my own food. Sometimes, I bring a gluten-free dish for everyone to share, but I stick to foods that came out of my kitchen...
  6. cyclinglady
    Are you sure you typed the ranges correctly? I would be surprised if the TTG tests had two different ranges. I am not a doctor, but that seems odd. If the ranges are correct, then a GI visit would be recommended.
  7. cyclinglady
    Congratulations! You seem to be doing well and I am so happy for you.
  8. cyclinglady
    Not sure which sensor you are referring to, but the NIMA has been reviewed by the Gluten Free Watch Dog (comparable to Consumer Reports which is funded by members and not sponsors). Read their thoughts: https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-position-statement-on-consumer-use-of-the-nima-sensor-to-test-food-for-gluten/ i...
  9. cyclinglady
    I do not have any answers for you, but I have many theories. I have been gluten free for over four years. My house is gluten free because my hubby has been gluten free for 16 years (not diagnosed, but gluten is an issue for him and what nut would stay on the gluten-free diet if there was not a benefit?) I seem to be more sensitive than him. I have...
  10. cyclinglady
    Here is an old thread. Interesting discussion.
  11. cyclinglady
    I am sorry that your son is ill. My heart goes out to both of you. The only thing I can offer is that my niece (at age 19) was diagnosed with Crohn's via a pill camera. The damage was out of reach of both scopes. I could have sworn she had celiac disease, but all celiac tests were negative -- no villi damage. Her symptoms were sporadic. She could...
  12. cyclinglady
    I suggested testing her now for dietary compliance. No one should ever do a gluten challenge without being under a doctor's care and preferably a gastroenterologist. It can be dangerous! Tessa is right. You have to be able to do your own research and make good safe decisions. It is obvious that you are not a celiac expert. You are not a doctor...
  13. cyclinglady
    I think this is one lab. You order, go to a designated local lab for the blood draw and you are done. I have never done this, so call and confirm. Read online reviews, etc. https://www.directlabs.com/mobile/Home/tabid/15890/language/en-US/Default.aspx
  14. cyclinglady
    Well, the IgG test is not very accurate and is not accepted in the traditional medical community for a variety of reasons. You could just view the results as one of the tools in helping to identify some food intolerances. Best to keep a food journal and test as Victoria suggested. Leaky gut is real per Dr. Fasano. They just do not know how it works...
  15. cyclinglady
    It only takes o e positive to move forward in the diagnostic process. Keep eaten gluten. The next step is usually a GI referral to obtain biopsies via endoscopy. An elevated TTG can be due to other autoimmune issues. Not sure of your lab ranges, so not sure if your positive was REALLY elevated or not. What was the other test?
  16. cyclinglady
    You should find the cause of blood in your stool. I do not think that blood in the stool is common for most celiacs. You can have more than one autoimmune issue or cancer going on. We have several members who have both celiac disease and Ulcerative Colitis or Crohn's. Either end of the small intestine can be biopsied for celiac disease. The most...
  17. cyclinglady
    I would suggest the Fasano diet (mostly Whole Foods) for a few weeks. She might be reacting to low levels of gluten in even gluten free products. It might be worth running a celiac antibodies panel even though your household is gluten free. I get itchiness without a rash if exposed to gluten.
  18. cyclinglady
    You can see how we were confused. Your earlier postings did indicate that you thought a slow withdrawal from gluten would be best for you. Thanks for clarifying. The learning curve for the diet is very steep. It takes most people a while to recover for this very reason. It takes time to master the diet and to heal. I hope you feel better soon...
  19. cyclinglady
    Welcome. I recommend reading the Newbie 101 thread located under the "Coping section". Focus on Whole Foods that are naturally gluten free (meat, fish, veggies, fruit, nuts, rice, etc.). My kid does not have to eat gluten free, but she enjoys the gluten-free diet. She gets gluten-filled treats away from home (e.g. School). I am sure you will both adjust...
  20. cyclinglady
    I guess the "gradually going gluten free" tactic is not working for you. I would recommend going 100% gluten free. You should experience some relief in a few months. Unfortunately, neurological damage tends to take longer to heal. I can share that I was only anemic when diagnosed. No GI issues at all. Each accidental glutening has caused a different...
  21. cyclinglady
    This is beyond my capabilities as I do not wear a white coat. Best to talk to the GI.
  22. cyclinglady
    I don't get it. Isn't all powdered milk "instant" vs. fresh or canned?
  23. cyclinglady
    Many of us are lactose intolerant at the beginning (damaged villi tips can not release the enzymes to digest lactose), so experient. Choose lactose low foods like hard cheeses and yogurts. If she has no issues, add in milk and ice cream. Leafy greens are great sources of calcium too. Make sure she is exercising (weight-bearing) too. My kid is ...
  24. cyclinglady
    Your doctor is wrong, you should be getting an annual test to see if you are doing well. This is standard care for celiacs. Learn more: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ By checking your celiac antibodies, you can determine if celiac disease is causing your current problems. You might be getting gluten...
  25. cyclinglady
    You can always just sub regular milk for the powdered and liquid. Powdered milk is nice if you are using a bread maker and setting up the night before or storing a dry mix to save time. It is nice to have powdered milk on hand for earthquakes. I had to drink it as a kid. It was cheap and when money was tight or we were snowed in, my Mom had it in...
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