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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I know I needed the confirmation. My hubby went gluten free per the very poor advice from my allergist and his GP. It worked, but we really do not know if he has celiac disease. He refuses to do a gluten challenge and I do not blame him. We do know that gluten makes him sick. He has been gluten free for 16 years. So, when my GI suspected celiac...
  2. cyclinglady
    Any medical doctor can help rule out celiac disease. It is a simple blood test. You do need to be consuming gluten for the testing to work. Learn more: http://www.cureceliacdisease.org/screening/
  3. cyclinglady
    I agree that you should consider getting tested for celiac disease before you try the gluten free diet. It is a simple blood test. Learn more about the exact tests here: http://www.cureceliacdisease.org/screening/ I hope you feel better soon.
  4. cyclinglady
    There is nothing you can really do about the high antibodies. If it is any consolation, mine have been as high. Your TSH is too high. The acceptable range now is around 1 to 3. You might benefit by increasing your thyroid replacement (or starting) if you are not taking it now. I feel best when my TSH is closer to a 1.
  5. cyclinglady
    Welcome! At age 13, she should recover easily from Osteopenia on a gluten free diet. It will take time to heal and master the diet, so patience is needed. The great news is that kids tend to heal much faster! Try reading our Newbie 101 thread pinned at the top of the "Coping" section of the forum. There are lots of tips throughout the forum too...
  6. cyclinglady
    My GI told me that everything looked great visually (endoscopy), but my biopsies revealed moderate to severe intestinal damage. ☹️ You just have to wait for the pathologist's report.
  7. cyclinglady
    It is hard to wait and be patient! Hang in there!
  8. cyclinglady
    You had a positive on the celiac blood test, right? So, based on the algorithm, you should proceed to biopsy. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Now, keep in mind that the small intestine is vast (size of tennis court). So, even if negative, your GI may recommend trialing the gluten...
  9. cyclinglady
    I am not sure this was handled properly by ALL the adults in charge! Most restaurants discourage bringing in food because of local health regulations -- not because they are trying to make you buy their food. Some restaurants will overlook this. I suspect this was handled poorly by the child's parent. He should have called in advance and talked directly...
  10. cyclinglady
    Just keep eating gluten! I took the time between blood tests and endoscopy to bid gluten goodbye. I ate all my favorite things! It made me sicker, but it also made it easier for me to give up gluten for life. You will just have to address other issues if discovered by your doctor, when you cross that bridge.
  11. cyclinglady
    I am so sorry that you are sick. Many some fruit might be okay? Bananas? You could live off those for a week. Add in some fresh raw veggies? Any local stores that carry American products? I found one importer of American food, but they are on vacation (family run). ☹️ Amazon might work. Maybe the pre-cooked eggs are fine. Read this: http://w...
  12. cyclinglady
    Migraines can be associated with celiac disease, but the only way to know is to get tested as there are as many as 300 possible symptoms. Learn more: http://www.cureceliacdisease.org/screening/ I wish you well!
  13. cyclinglady
    Welcome. I think that the IgA and IgG tests are ordered as control tests for celiac disease testing. If in range (or close to it), the TTG IgA and the TTG IgG tests are considered to be valid (results accurate). Those tests also let a doctor know if there is an immune system issue. You are talking about immunoglobulin tests, right? The EMA and DGP celiac...
  14. cyclinglady
    I am sorry that you are sick! Ennis has offered some great advice. With small children, they can be glutening you. I recall member Jebby getting glutened by her kids. She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc. Jebby had the household go gluten free. That might be something to consider...
  15. cyclinglady
    Celiac disease is not diagnosed by symptoms alone. Why? There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses. Learn more about proper testing: http://www.cureceliacdisease.org/screening/ I am formally diagnosed. My hubby is not. His mis-informed doctors told him 16 years ago to give up gluten...
  16. cyclinglady
    While you could very well be vitamin/mineral deficient, you could also have issues with your thyroid. Autoimmune thyroid is common with .......autoimmune celiac disease. Your doctor should order a full thyroid panel, including thyroid antibodies. Your blood sugar should also be checked (autoimmune diabetes). I am not saying you have these issues, but...
  17. cyclinglady
    Why not give up supplements for a while? Not everyone is deficient in vitamins and minerals -- or at least dangerously so. Ask your doctor to check. I take no supplements. My doctor runs a vitamin panel at my yearly check-up. I do make sure my diet is healthy and varied -- like eating veggies even at breakfast! People who are gluten free and eat...
  18. cyclinglady
    Most of the articles you presented were blogs. They focused in one article pushed by the American Chemical Society. The research looked at ground coffee in Brazil ONLY. https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country. Just...
  19. cyclinglady
    Okay, a positive on thyroid antibodies, but what about the rest of the thyroid panel? That tells more of the story. Is rest of the thyroid panel all in the normal ranges? Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement? Many doctors try a tiny dose of thyroid hormone replacement. Was this considered...
  20. cyclinglady
    You are normal! All the things you are going through are normal for someone with celiac disease....probably with any life changing illness. What you need is patience. Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage. The nervous system seems to take the longest. Ask your doctor to check you for any deficiencies...
  21. cyclinglady
    Yes! Ask for the IgA deficiency test! Why? Well, your doctor did not even follow protocol. In order to validate the IgA celiac tests, he should have determined if you are IgA deficient or not. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf I have never tested positive on the IgG tests and only...
  22. cyclinglady
    Almost EVERY single celiac expert in the world and/or groups like the U.K./U.S. Gastroenterologist Associations recommend obtaining biopsies for diagnosing celiac disease. There are some exceptions. If you are too ill to even risk an endoscopy, your celiac panel is extremely high on several of the celiac tests (this is still debatable), you have long wait...
  23. cyclinglady
    Yes, I would ask for the rest of the celiac panel (including the IgA deficiency test). Discuss this with your child's GI. He/She may be able to order for you. Share the CBC results too with him/her. I would want to know for sure before giving up gluten to support my child, but you need to determine what is best for you!
  24. cyclinglady
    I am sorry too. I did not mean to imply that you have a sugar issue (though it may contribute to our obesity problem, but that is another debate). I do not think that is the cause of your symptoms. I brought it up because the American Academy of Pediatrics just issued this on juice for infants, toddlers and adolescents: http://pediatrics.aappublications...
  25. cyclinglady
    Welcome! It looks like you are on the right path. Now, you just need to be patient (believe me, it is hard to be patient). I choose not to supplement. Instead, I insure that my diet is varied and full of good nutritients. I am not deficient in anything per my doctor. Everyone has to determine their needs because we each come with a list...
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