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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Congratulations! ?
  2. cyclinglady
    What you can do is get follow-up testing. This might help in determining if you are gluten-free diet compliant. http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
  3. cyclinglady
    Think about this. I have only had my daughter tested for celiac disease. She tested negative. She will need to be retested sometime in the future or when symptoms develop. But genetic testing? This might impact her insurability in terms of health and life. I do not have the answers, but I would research this before having everyone tested. Some 40%...
  4. cyclinglady
    We rarely drink orange juice. Why? Because it is full of fructose which is not bad, but you would probably never sit down and eat more than 2 oranges in one sitting. Makes you wonder why diabetes is so prevalent. The other reason is laziness. I have citrus trees and juicing them takes time and work. I reserve that for special occasions. Citrus...
  5. cyclinglady
    Anything is possible. I suppose a truck full of wheat flour could drive into a pool and you could swallow gluten. You might even get stuck, like a paper mache figure. Seriously, I am in a public pool three times a week. I am sure my risk for gluten is pretty much non-exisitant. I have a greater chance of picking up a nasty bacteria. But our pool requires...
  6. cyclinglady
    Four days of being gluten free should be fine. ? If it makes you feel better, have something gluteny -- like a cupcake!
  7. cyclinglady
    I think that is just a clinical observation on his part. I had a Cardiologist once ask me during an examination (executive wellness check), if I ever had a heart murmur. I said no and asked why. He said that he noticed that people with really straight backs tend to have heart murmurs. My back was very straight. I told him both my brothers have heart...
  8. cyclinglady
    I am sorry that you are all struggling with this. My niece was diagnosed a few years ago at the age of 19 with Crohn's. She tested negative on the celiac panel twice. She did a few endoscopies and colonoscopy, but the pill camera caught her Crohn's. Does that mean that she will not develop celiac disease? No. She will need to be checked periodically...
  9. cyclinglady
    It seems like you have a lot going on, so it would be best to talk to your doctor. Lab ranges are missing, so I could not say if your celiac panel is positive or not. Each lab varies. Would hate to point you in the wrong direction. I can tell you that anemia was my main symptom. Doctors all my life blamed menstruation for my iron deficiency and...
  10. cyclinglady
    What does your doctor say or advise? I am glad that you are feeling better, we are not doctors and we can not diagnose you. We can offer you supoort and we sure know a lot about the gluten free diet. We can definitely help you with that!
  11. cyclinglady
    I hear you. Was in Italy last year. We want to go back as it was very celiac friendly. Maybe consider starting a gluten-free import business? I will buy from you! ?
  12. cyclinglady
    Just want to clarify that pre-existing used to apply even if you have had continuous coverage and you were applying to another insurance carrier. I could not get insurance a while back due to Hashimoto's. I never went without insurance ever in my life. When I did switch carriers, (could not go to the doctor for one year but I still paid my premiums), I...
  13. cyclinglady
    Ugh! I keep forgetting that this forum reaches beyond the US. If I had to wait months for an endoscopy, I would most likely skip it. I bet your doctor would be happy to diagnose you if you improve in a gluten free diet. I hope you feel better soon.
  14. cyclinglady
    So sorry to hear that you were most likely glutened. Unfortunately, there is not much you can do, but ride it out. Rest, stay hydrated, and consider comfort foods that are easy to digest. Remember celiac disease is an autoimmune disorder. An exposure to gluten can cause an AI flare-up that can last a few days, weeks, or months! Yikes! I recommend...
  15. cyclinglady
    Did you check with your insurance company? You have many symptoms that can be attributed to it. Some patients have NO symptoms and yet have intestinal damage. Anemia is common but not all celiacs have it or GI issues. The screening TTG test is around $75. Family history? I had none. I also did not have GI issues. I am sorry that your...
  16. cyclinglady
    Have you considered ruling out celiac disease before eliminating so many foods? I would hate for you to miss a critical diagnosis of celiac disease when it is just a simple blood test. http://www.cureceliacdisease.org/screening/
  17. cyclinglady
    So glad to hear that you know where you stand! I can not help you with the protein stuff for working out. I have never used the stuff even prior to my diagnosis. I am sure others will chime in. Yes. You can get "glutened" by kissing someon who ate gluten. Supportive significant others will wash their hands and brush their teeth before kissing...
  18. cyclinglady
    You will be fine. Karen is right, it can take time, lots of time for antibodies to come down. So, do not beat yourself up, if they are still not "normal". ?
  19. cyclinglady
    Although not common, a GI can obtain biopsies of the small intestine via colonoscopy. http://www.cureceliacdisease.org/faq/is-a-colonoscopy-better-than-an-endoscopy-for-taking-a-biopsy-of-the-small-intestine/ Glad Hatbox is getting the celiac panel. She should be sure to keep eating gluten. In as little as two weeks, the blood test can become...
  20. cyclinglady
    You could wait until your biopsy results come in. It is only a few more days. But in any case, Put that request in writing. List the symptoms. Letter or patient-portal email, it works every time for me. I nicely ask and tell my doctor my concerns. It is hard for them to disregard a letter. It subjects them to a potential lawsuit. You child...
  21. cyclinglady
    Think about something that could be unrelated to celiac disease. What about posture? Just being crunched over a phone or tablet for hours might impact the valve from your stomach to your esophagus. Google it. I would really worry about PPIs, I do not think it is all about producing stomach acid. Medical is great about fixing symptoms, but terrible...
  22. cyclinglady
    Two months after my celiac disease diagnosis (age 51), I fractured two vertebrae doing NOTHING! It was a result of osteoporosis that I had not been aware of -- thanks to celiac disease. As a swimmer, cyclist and runner, I was devastated. I was and still am very active. I took a year off of biking riding and running (trails) due to fall risks and...
  23. cyclinglady
    Here is a travel card. http://www.celiactravel.com/cards/spanish/
  24. cyclinglady
    No, it will not affect your celiac testing, but it is CRITICAL that you are on a daily diet of gluten (1 to 2 slices of bread or equivalent about 8 to 12 weeks prior to the blood draw): Read about the test here: http://www.cureceliacdisease.org/screening/ I hope you feel better soon!
  25. cyclinglady
    I would skip advice from bloggers who do not even have celiac disease. Jane Anderson has DH. She usually has excellent advice for celiacs. She is very conservative though (so would I if I had DH). https://www.verywell.com/does-coffee-contain-gluten-562352 Your Maxwell House is safe. I drink Yuban. I have not been glutened yet. And that cross...
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