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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! The test you described helps to diagnose IBD. There are two forms: Ulcerative Colitis and Crohn's Disease. The first affects the largel bowel and the second the entire GI tract. This test does not help diagnose celiac disease to my knowledge. http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83023 It is...
  2. cyclinglady
    Make sure your GI takes all the recommended number and placement of the biopsies!!! My visual was "normal" on the endoscopy, but the biopsies revealed patches of moderate to severe villi damage.
  3. cyclinglady
    I am not a betting woman (unless Gemini is with me), but with thyroid, a removed gallbladder, and elevated celiac antibodies, chances are you have celiac disease. The endoscopy will confirm aand convince your doctor. Guess what? I had a non-functioning gallbladder removed 10 years ago, diagnosed with Hashi's 20 years ago and four years ago, my GI said...
  4. cyclinglady
    I use the Costco brand (shampoo and conditioner). Even says gluten free on the label. The price is good, which is important when you have a very long-haired teenage girl who most likely uses too much! We also use Suave because Unilever is good about disclosing ingredients on the product label. Maybe not the best quality, but again, my teen and I tend...
  5. cyclinglady
    Vaseline Intensive Care (white bottle) is gluten free. You can use coconut or olive oil. What about just some Neosporin (antibiotic ointment)? That might help the infected areas.
  6. cyclinglady
    True. I do not suspect Synthroid as the culprit. I should have made that clear. Tuesday should consider follow-up antibodies testing as a means of determining if her current symptoms are related to a repeated gluten exposure. It might just be a virus and not related to celiac disease at all. The reality is (based in member input) that most celiacs...
  7. cyclinglady
    Victoria, I think your advice is sound. It is much easier for Newbies to avoid oats until they experience some symptom improvement and then test (and that could be months or a year). Oats are still controversial. Sure, "gluten free" oats that have been grown and manufactured under a purity protocol system may be fine for most celiacs (but not all)...
  8. cyclinglady
    I would just suggest that you ask your GI to run a celiac panel to actually determine if you were glutened or not. When I experienced my first glutening, my symptoms were so different from when I was diagnosed and I had no idea what I ingested. Turns out based on my test results that I had been glutened. I suspected a few products, but never found the...
  9. cyclinglady
    If you did not see any gluten listed, I would relax.
  10. cyclinglady
    I know. It is a lot to process, but it is doable. You ALL will have the rest of the summer to research and learn about the gluten free diet and learning how to avoid cross contamination. Planning and being prepared always will make it much easier. Your daughter will so much better in school if she is feeling well.
  11. cyclinglady
    I think your doctor was wise to order an endoscopy. My antibody result (only the DGP) was elevated at the time of my diagnosis with a Marsh Stage IIIB (biopsy moderate to severe). I have had two good glutenings (unknown source) since then and my antibodies have gone off the chart. So, I am assuming antibodies, like my symptoms, can vary). This is a perplexing...
  12. cyclinglady
    You might have had one exposure with the barley and then got zapped by eating out. This behavior could encourage your antibodies to start building. When do they stop? Everyone is different, but mine (as measured by my GI) last for months! For now, stop eating out. Read all labels and stick with easy-to-digest foods (processed as little as possible...
  13. cyclinglady
    Eat. You are most likely deficient in something and your body want it. Just reach for nourishing food instead of junk to help with healing. You can ask your doctor to check for deficiencies. Sometimes supplementation is need for a while. Welcome to the forum!
  14. cyclinglady
    On a gluten-free diet, my low iron resolved within months with supplementation. I would ask your doctor to re-check your ferritin levels and antibodies at the three month mark since you can not judge by symptoms. I would also ask for a bone scan. I fractured two vertebrae doing NOTHING two months into my celiac disease diagnosis. Found out I had osteoporosis...
  15. cyclinglady
    Wow! My kid did a 5th grade project on cancer-sniffing dogs. Besides her written report, we demonstrated a dog's ability to sniff out "cancer" by bringing in our Labrador. My daughter trained our lab to find a tiny bit of food hidden in cups. I have joked before about the need for a dog who could sniff out gluten. My bet is that the dog would beat...
  16. cyclinglady
    Just search for GIs in your area. Usually doctors post biographies. Look for someone who mentions celiac disease in his/her bio. Then call the office to confirm. Sacramento is a pretty big city. If you are not successful, there is a celiac disease center at Stanford University.
  17. cyclinglady
    Go for it! If you are converting the recipe from a gluten-containing recipe, hold back a few tablespoons of flour until you are confident that the dough is the right consistency. Reduce the sugar a few tablespoons too as this particular bread flour already has some added sugar. Chill the dough well before baking. Use a silicone mat or parchment paper...
  18. cyclinglady
    Hi! i want you to know that I ONLY tested positive on the DGP IgA (even in follow-up testing and different labs). My GI was celiac-savvy and ordered a endoscopy/biopsies to confirm my celiac diagnosis. You only need one positive on the celiac panel. My only symptom at the time was anemia. My ferritin was very low and I had already gone through menopause...
  19. cyclinglady
    Although I do not agree with your thought process of gradually going gluten free (it is not advice I have ever seen in all my research concerning celiac disease), you could certainly give it a try. Eating gluten (or any food) could be considered an addiction. Not many 12 step programs recommend just cutting down on alcohol, drugs or tobacco for a few months...
  20. cyclinglady
    Well....I like Jane Anderson. Sure, she is super conservative on her approach to gluten free, but she has DH. If I had DH, I would be SUPER cautious. Even now, I have had hives daily....all over my body...like even the soles of my feet and the palms of my hands. The itching is intense. However, I can get relief using antihistamines as prescribed by my...
  21. cyclinglady
    This is getting a bit off topic, but although there is a possibility of cc with strawberries grown in straw, the risk should be small. Why? I live in CA where commercially grown strawberries are grown in masses (I think we are the leading state in most produce). Strawberries are surrounded by plastic. Who has time to spread draw except little boutique...
  22. cyclinglady
    Welcome to the club you never wanted or thought you would join! ? What you doctor might have not told you is that it takes months to years to heal depending on the amount of damage you have sustained not only to your GI tract, but other areas of the body (celiac disease is systemic). Browse through the Newbie 101 thread under the "coping" section...
  23. cyclinglady
    You can google and research on your own, but beer is not distilled, but brewed. For this particular beer, they use an enzyme to break down the barley protein (gluten) into tiny fragments. Too tiny for normal testing to measure (ELISA). So, celiac experts agree that they can not be certain that this beer is safe for celiacs. It might be safe for...
  24. cyclinglady
    If you are diagnosed with celiac disease, I would follow the advice of the Canadian celiac disease Association. You can see by this thread that this beer is controversial. Ask yourself why you would be willing to take a risk like this? I get the feeling this more than just beer.
  25. cyclinglady
    I would never recommend tanning beds or even getting a tan. Watched my friend die from Melanoma leaving a stricken husband and children. Try green concealer under your foundation and avoid gluten like the plague!
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