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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I would not worry. Things might resolve on the gluten free diet as celiac disease does impact fertility in many ways. I hit perimenopause at 40. It lasted over a decade (the range of years varies from person to person) and I experienced every single perimenopause symptom (on and off) in the book. I was diagnosed with celiac disease after I went though...
  2. cyclinglady
    Be sure to let us know how it goes! Help keep them in business by writing a review on Find Me Gluten Free! Enjoy! ?
  3. cyclinglady
    You have had celiac disease for 9 years. You know the drill. That is not in dispute. I think there is something definitely wrong. Your GI needs to do more investigative work to determine the root cause of your symptoms. Other GI issues need to be ruled out (the list is too long but stuff like ulcers, Crohn's gallbladder, ducting issues, cancer). But...
  4. cyclinglady
    I do all that stuff (pet food, a lot of make up, shampoo). My house is gluten free (hubby and I both have issues with gluten....go figure! ?) It does not make me housebound! Gee, your wife could be glutening you just by kissing! Nine years. I would do the endoscopy for that reason alone (am holding out for five years). The blood tests are not...
  5. cyclinglady
    Welcome to the forum! Ah, the original posting is a few years old. No wonder the link is no longer active. ☹️ Why would you even eat this stuff! (Just curious.....)
  6. cyclinglady
    Well, two weeks of diarrhea could be a bug if some sort (virus, bacteria, parasite, etc.), but it does not address the other symptoms that have been around for a year. Taking meds just to cover symptoms is not good either in my non-medical opinion. A follow-up endoscopy might be a good idea. Check out the villa too! My niece was recently diagnosed...
  7. cyclinglady
    Maybe time for an endoscopy or pill camera?
  8. cyclinglady
    Have other autoimmune disorders been ruled out? Like Crohn's? Unfortunately, you can have more than one AI issue.
  9. cyclinglady
    Glad to hear about the improvement! ?
  10. cyclinglady
    While Gateraid is gluten free, I prefer Nunn tablets for my long rides. Good for marathons too. Easy to transport. Just add water.
  11. cyclinglady
    Me too. We eat all their corn products. I never worry about a glutening from them, but nothing is impossible, just unlikely.
  12. cyclinglady
    I just had one positive on the celiac panel (DGP IgA), yet I had moderate to severe intestinal damage. Consider getting a GI consult. An endoscopy may be in order and usually confirms a diagnosis. I wish your child well!
  13. cyclinglady
    I would start with your doctor and get a prescription for an antibiotic. Amoxicillin is usually a first-line antibiotic for dental issues. Then, I think you will need to go back to the dentist. Your root might have cracked allowing for bacteria to enter. You will need an x-ray. You may need to have an Endodontist look for the crack. This happened to...
  14. cyclinglady
    Not so fast! About 30% of the population have the genes that could develop into celiac disease. But in a few actually do about 1% or so. So, genetic testing helps rule out celiac disease but it can not diagnose it. Blood tests and an endoscopy are the accepted means of diagnosing. just something to consider. ?
  15. cyclinglady
    Each of us has a different set of personal set of circumstances. You have to decide what is best for you. If you suspect DH, it can be biopsied and a positive is a diagnosis of celiac disease. So, if you should get glutened accidentally, it might be worth getting the biopsy. In the meantime, consider searching for a celiac-savvy dermatologist. I...
  16. cyclinglady
    @birdnflight -- Here is celiac disease testing information by the University of Chicago which is a well-written site and one of the US leading research centers. I wish you well! http://www.cureceliacdisease.org/screening/ Celiac disease is a genetic autoimmune disorder like lupus. The most commonly linked cancer is lymphoma, but that is really...
  17. cyclinglady
    Welcome! This thread is pretty old, so I am going to offer help. Learn more about celiac disease testing here: http://www.cureceliacdisease.org/screening/ http://www.montana.edu/mountainsandminds/2012/fall/celiac.php You might research Mast Cell Activation Syndrome/Disorder: https://en.m.wikipedia.org/wiki/Mast_cell_activation_syndrome ...
  18. cyclinglady
    Squirmingitch, you must read a lot of detective/mysteries!? I did not think to look at dates. I do know for sure that I am not knowledgeable about DH, but most of my research indicates it is related to celiac disease. Glad you were able to shed new light on the subject. I am concerned that Razzle, who has stated in past threads that she has been on a...
  19. cyclinglady
    Okay, I believe you. You can have DH without having celiac disease according to the government link below. About 10% of celiacs can have DH (rash and intestinal damage). But...the treatment is DH is the same -- a gluten free (gluten-free) diet. Like celiac disease, people with DH are gluten sensitive. It requires the same life-long gluten-free diet...
  20. cyclinglady
    Research and ask about Mast Cell Activation Syndrome/Disorder besides ruling out another autoimmune disorder. Jebby, a forum member, is a premie doctor who also has celiac disease:
  21. cyclinglady
    Good for you Ennis!
  22. cyclinglady
    I agree. We eat only at PF Changs after talking to the manager. The risk for cross contamination is great. I do not think that Celiac disease is well known in Chinese cultures. Another option would be to check the restaurant using the website, "Find Me Gluten Free". Look for celiac votes! I would bring food and order a drink. The goal is to enjoy...
  23. cyclinglady
    Did your doctor give you the diet? Here it is buried in this report: http://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40 I would say that based on the diet, spices are out, unless you grow them yourselves. Stick to plain foods. For example, I can not tolerate chili peppers. So, I cook a batch of shredded park without seasonings...
  24. cyclinglady
    I can not speak for mushrooms, but I live in California. Strawberry fields are everywhere. All the commercial farmers use plastic. We even pick them ourselves on several farms. No straw. What I would be more concerned about is pesticides. Strawberries are ranked number 1 for the most contamination. This is one fruit that you might want to eat...
  25. cyclinglady
    Welcome! Here is information about testing for celiac disease, but.....you HAVE to be consuming gluten daily or all tests will be negative. ? http://www.cureceliacdisease.org/screening/
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