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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hopefully, these intolerances will resolve soon!
  2. cyclinglady
    @Ennis_TX -- you have both celiac disease and UC. I would not recommend fasting. You are not overweight and do not have diabetes. You need every bit of nutrition you can absorb. Fasting is the new "thing" out there in diet land. But there is no scientific evidence as to how it impacts you in the long term. Sure, historically, if you did not find...
  3. cyclinglady
    @Linda1948, if you were glutened by this product you should report the company. I was serious! We need to advocate for the safety of our foods, supplements and prescription drugs. It is nerve-wracking to take a medication and really not know if the item contains gluten or not. I personally experienced this with a recent course of antibiotics. I...
  4. cyclinglady
    If this is the case, you should report them! This product is a supplement and must follow FDA food labeling rules and regulations (unlike cosmetic products). The ingredient list does contain a highly processed Vitamin E which can be derived from wheat but most often in the US is derived from soy. Read more about the safety of this by the gluten...
  5. cyclinglady
    Welcome! First, you need to be on a gluten diet in order for any celiac testing to be valid. You should ask your doctor if in fact, he tested you for celiac disease. These are the tests (University of Chicago's celiac website): http://www.cureceliacdisease.org/screening/ Going gluten-free for as little as two weeks can impact the tests...
  6. cyclinglady
    Welcome to the forum! Check out our Newbie 101 adbpvice for some valuable tips. Most of us have temporary or sometimes permanent food intolerances due to intestinal damage. You might like this Article which features Dr. Fasano, a leading celiac GI expert which explains the possible reasons why: http://www.npr.org/sections/thesalt/2015/12/09...
  7. cyclinglady
    I looked up the website and called. Baush and Lomb said that their products do not contain gluten, but they do not test the finished product or verify raw materials for gluten contamination. This company has strict manufacturing processes (hubby once worked in pharmaceutical manufacturing). I would take them. Studies show this supplement may help with...
  8. cyclinglady
    When you get diagnosed with celiac disease, doctors (like mine) sent me on my way telling me to just avoid gluten. Because my hubby has been gluten free for over a decade, I opted out of seeing a dietitian. I knew the gluten-free diet. What I did not know was that I was pretty sick (severely anemic) and that I should have been viewing food as medicine...
  9. cyclinglady
    Karen is right. The scientific community agrees that gluten can not be absorbed into the skin. However, you can have more than just celiac disease going on. You might have an allergy or intolerance to any of the ingredients. Who knows? Personally, I make sure that all products that might come into contact with my mouth, are gluten free. That includes...
  10. cyclinglady

    celiac disease "Kait"

    cyclinglady commented on Kait and Kimi's blog entry in Kim

    gluten-free in DC is right about posting in our forum section, but I would like to address your question. Your daughter is ill. She has an AI issue and not an allergy. A gluten exposure triggers an autoimmune response (like lupus or RA) that can last for days, weeks or months). Removing all gluten is great, but it takes time for the body to heal. Most...
  11. cyclinglady
    TexasJen expressed my thoughts exactly. No beer for me. I do not care for gluten-free beers (have not tried them all), but prefer wine (vodka too which is distilled and not brewed like beer)! Nothing, I repeat, nothing is worth getting glutened over. I wonder with the gluten free craze, if beer sales has dropped? As far as your friend, he might...
  12. cyclinglady
    Honey, recovery time is often not as fast as we like. There is a steep learning curve to the gluten-free diet (you have already experienced it. You have damaged more than just your small intestine. It is going to take time. Like weeks or months. Some of us have taken over a year. Luckily, you are young! Healing should go much faster because you are...
  13. cyclinglady
    Celiacs, when diagnosed, have typically sustained substantial intestinal damage. Not only are the villi damaged, causing malabsorption, but the whole immune system is compromised. Science has shown that a majority of the immune system resides in the gut. If you get a chance watch this video. The speaker is a leading celiac researcher: So...
  14. cyclinglady
    We buy OreIra.
  15. cyclinglady
    Soups? Ham and bean, chicken rice, veggie. Baked potatoes and all the fixings. Spaghetti, Gluten free. Build a salad (egg, tuna, lunch meat). Egg casserole and fruit. But, it would be easier just to bring your own meal to someone else's house. Welcome to the forum!
  16. cyclinglady
    You can develop intolerances to just about anything. Most are just temporary and improve with intestinal healing. The creamers should be gluten free, but they are full of "junk". You could be reacting to any of the ingredients. Even though the creamers say dairy free, (lactose free), they still contain milk proteins (whey and casein). You could be reacting...
  17. cyclinglady
    The Costco rotisserie chicken is our "to go" food. Yummy and safe. At our Costco, the chicken guy only handles chicken all day long! The prep area is away from other food prep areas. We buy mostly Whole Foods (fruit, veggies, meat, fish, eggs, dairy, cheese, rice, etc.) but I buy chips and snacks that are certified gluten free and some that are...
  18. cyclinglady
    I am sorry that your husband has DH. I do not have DH, but I understand that it is awful! What I do know is that the antibodies located in the skin take much longer to decrease than a celiac who does not have DH and that even the tiniest gluten exposure can bring on the itchy, burning and unrelenting rash. There seems to be no rhyme or reason for flare...
  19. cyclinglady
    I hope you recover quickly! It is so frustrating when you can even determine the cause!
  20. cyclinglady
    Hope you feel better soon! Say, you should be dining at Gourmet Girls Girls on Oracle. Open for dinners now. Also you can get breakfast and lunch at Dedicated located on Speedway. We eat there each time we are in town. Both are 100% gluten free! Dedicated has Challah bread baked on Fridays. It goes fast!
  21. cyclinglady
    I use Gabriel lipstick too. It is certified gluten free. Red Apple is also certified gluten free (available online). I am sure that there are other mainstream companies who manufacture lipstick that is gluten free, but the ingredient list is too tiny for me to read! ? My foundation is gluten free -- just a simple mineral foundation (I am kind of big...
  22. cyclinglady
    Karen is so sharp (and so early in the morning). My glutenings were tested four weeks after my exposure (had been on vacation and could not physically get into my GI). I was sure I had SIBO (so did my GI), but we ruled out celiac disease first with antibody testing. It was celiac disease. The first four weeks were awful, with no relief. Took a full three...
  23. cyclinglady
    Exactly what follow-up celiac tests were given? Because, I have never tested positive on the TTG --only the DGP. What if your GI is just ordering one and it is not registering as positive? Make sure he is ordering the complete panel. Here is a long shot. I swore that my young niece had celiac disease. But she did not. Her last GI gave her a pill...
  24. cyclinglady
    This product is NOT suitable for celiacs! This is a paid advertisement! Although it may be gluten free, it can not protect a celiac from unwanted gluten exposures. Not one of the astricks on the article is linked to a reference. The actual product states that none of the claims have been evaluated by the FDA (nor needs to because it is a "supplement....
  25. cyclinglady
    It CAN be related to traces of gluten. It CAN be other ingredients. It is why we tend to stress Whole Foods when you are first starting out until you see signs of healing (or your antibodies are on a downward trend).
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