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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    This might help and it is easier to understand than the actual FDA ruling: https://www.verywell.com/fda-rules-for-gluten-free-labeling-562768 The bottom line is that if the label says it is gluten free, it should have less than 20 parts per million. But some people react to ANY gluten and 20 parts may be too much. This is something you have to...
  2. cyclinglady
    It could be the veggies or it could be the seasoning you added. It could be an off day. You could have food poisoning. Hard to say. Best to eat whole foods until you are healed or at least for a few weeks or months. Hard in the winter, but consider root veggies, broccoli, cauliflower, sweet potatoes, etc. The zucchini can be cross contaminated...
  3. cyclinglady
    @ironictruth Excellent advice!!!! When I take a gluten hit (it has happened twice and I still do not know the source, but it has been documented by my GI). I eat super safe and totally bland foods. Simple stews and soups (think crockpot). Everything well-cooked and unseasoned. Usually just fresh veggies and meats/fish/poultry. No fruit, nuts...
  4. cyclinglady
    I hope they figure it out! You have been through so much!
  5. cyclinglady
    My last cruise went well. We cruised Celebrity in July 2016. When only the buffet was opened, staff fetched food for us from the main dining floor. On that floor they have a dedicated allergy area (we toured). There were gluten-free choices on the buffet, but I did not risk it. Just the potatos, hard boiled eggs and while fruit. Why? They offered...
  6. cyclinglady
    Call NOW to let them know you must be gluten free (either the cruise line through all that pre-boarding stuff or your travel agent). The cruise lines need advanced notice. No time to tell more, but if you do this, you can pretty much be assured of eating gluten free safely. I do not personally ever eat at the buffet (except for wrapped baked potatoes...
  7. cyclinglady
    What blood tests were clean? Both the TTG and the DGP? It takes time to build up antibodies. One week or two after an exposure may reveal nothing. My antibodies were off the charts four weeks after a gluten exposure when I went into my GI's office. Took me three months to feel good and another three to regain lost weight. My symptoms totally changed...
  8. cyclinglady
    I heard her Ted Talk. Only good can come out of eating whole natural foods. Let's face it, we eat way too many processed foods. Just curious, how are your celiac antibody levels?
  9. cyclinglady
    It is probably common. Research shows that 1 in 130 (or so) of the population has celiac disease. MOST are undiagnosed. Because symptoms vary from person to person, it is hard for doctors to diagnose. Testing is best, but it would be expensive to test everyone. By the time it is caught, most damage is moderate to severe. But the gut heals FAST. It...
  10. cyclinglady
    I think i am doing well, but long time member, Peter, was re-checked at 5 years (biopsy) and he had complete intestinal healing. Those that do not heal? Research shows that a big chunk of them are still gettting exposed to gluten (either by choice or cross contamination).
  11. cyclinglady
    While it is great to become informd about celiac disease, it may not be a good idea when you are still recovering -- especially when you are anxious. Stop Googling about the disease. Instead Google about the gluten-free diet and tips in becoming successful in mastering and maintaining your new diet. MS is not strongly linked to celiac disease. TD...
  12. cyclinglady
    I can see your concern about frozen veggies from BirdsEye who continues to expand their product lines to include flavored veggies and it has crossed my mind too. I live in CA, the best place for most fresh fruit and vegggies, and we eat with the seasons. But I do buy frozen peas and corn. I wash them off just as i would a fresh veggie before use....
  13. cyclinglady
    I would put my money on hormonal imbalance. I had KP after my doctor included testosterone in my hormonal cocktail to combat some pretty severe perimenopausal symptoms. It resolved once we dropped the testosterone. But nothing surprises me about celiac disease and what it can do to your body.
  14. cyclinglady
    Lentils and beans are naturally gluten free, but cross contamination can occur as they can be grown in fields that wheat has been in. This is easily remedied by sorting them and then washing them prior cooking them. What i do not get is that if you have been a Vegetarian or even Vegan, you should have been eating nutrtionally dense foods (e...
  15. cyclinglady
    Just make sure those supplements are gluten-free! My anemia resolved within a few months with added iron. I generally do not take any supplements, but prefer to get all my vitamins and minerals through whole foods. Lab tests show I am no longer deficient. So supplementation might be helpful in the beginning, but not always necessary once healing occurs...
  16. cyclinglady
    FYI. During my endoscopy, my GI could see no visible damage. My biopsies revealed a Marsh Stage IIIB (moderate to severe damage). So....it's not over until all testing is complete. You could go gluten free, but you might wait until you get final results (if you can stand it). What if the pathologist loses your samples? What if paperwork is misplaced...
  17. cyclinglady
    What an amazing story (that is not the right word, but i think you understand). By sharing, you will help so many (as you have been for years). You are an inspiration! I can see why you continue to help so many on this forum. Not everyone has a classic textbook case of celiac disease. It is one of the reasons I remain active on this forum too....
  18. cyclinglady
    Okay, so now you know that a gluten exposure (aka "glutening") can knock you for a loop. Celiac disease does NOT produce consistent symptoms. Each glutening can vary. You still need a new Gi, but the advice that your hubby go gluten free might be good. Once I went gluten-free after my diagnosis, my hubby's health improved (he had been gluten-free...
  19. cyclinglady
    Get a new GI. At my dx, anemia was really my only issue. Got glutened last summer. I was vomiting and had all the ab symptoms. Got hives, rashes, itching, passing out......too. I just toughed it out as I was on vacation. Four weeks later, my GI tested my celiac antibodies and they were sky high. Off the charts! I was "barely positive" when...
  20. cyclinglady
    Welcome! Do not rule out celiac disease yet. People who are genetically predisposed can develop it at anytime. That is why my kid gets tested every few years even if she is symptom free. You might ask for the complete celiac panel again after getting back on a diet containing gluten. Do not settle for the screening TTG iGA. Why? I test negative...
  21. cyclinglady
    @Posterboy, I am confused as to whether or not you have celiac disease because the blog you referenced in this thread stated: "I could go on and on but will close for now only to summarize that after 35+ years of general digestive upset (NCGS, Celiac Disease/IBS, GERD, Constipation, Diarrhea, Heartburn, pain, dissention, excess gas etc) and after 4 years...
  22. cyclinglady
    Gluten free might not solve all your problems, but it can help. It did help my thyroid (see my edited response). Cured? I do not think so. Read about a blogger with RA. She improved on a Paleo diet, but after a year or so, her RA progressed. So, diet is not the complete answer, but it can help in my humble opinion.
  23. cyclinglady
    Welcome! These members have not posted in a long time, but newer members may have had the same issues, so it is good too bring it up. I do know that neurological issues that are celiac disease related, are usually the last to heal. I saw your earlier post in June. This might help, but I have not had my GAD antibodies tested, but my thyroid antibodies...
  24. cyclinglady
    Stress may be a factor in developing celiac disease. It might the "original" cause of it, but researchers/experts do not know. It could be a virus, bacteria, divorce, birth, toxin, whatever....they have not figured it out. But what they do know is that for celiac disease alone (no other AI disorder) gluten triggers the autoimmune response. Gluten is not...
  25. cyclinglady
    Congratulations!
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