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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You are like my hubby. He has been gluten-free for 15 years per the poor advice of his GP and my allergist (I was formally diagnosed 3 years ago). Does hubby have celiac disease? We will NEVER know because he refuses to do a gluten challenge. I can not blame him. Eating three months of gluten for the blood tests would make him very sick and he is the...
  2. cyclinglady
    That is horrible! Time to dump those "so-called friends"!
  3. cyclinglady
    I have been really active on this forum for three years. Probably, (no way to prove this) but at least 20% of all posters post once despite getting good responses from other members. Maybe they got the information they needed or said what they needed to say. Who knows?
  4. cyclinglady
    One of the best investments we made (not necessarily financial) was getting an RV. We travel all over and bring our gluten-free kitchen with us. We have also traveled internationally successfully. I can highly recommend Italy! You and your wife deserve a vacation!
  5. cyclinglady
    I have to disagree. I don't think that Rik is a troll. I think he was trying to let you know that there are far more worse illnesses to have than celiac disease. He is right (though blunt). celiac disease is the only AI that has a known trigger -- gluten. I only wish my young niece had celiac disease. Instead she is dealing with Crohn's and had no idea...
  6. cyclinglady
    You are not over-thinking this! I am the same way. I wash my hands a lot! I make everyone wash their hands when we return home. Humm...we do not get sick often either.......I care about getting glutened far more than picking up germs. Anxiety is so common with those who have celiac disease. It can be a direct result of the disease itself or acquired...
  7. cyclinglady
    You are sick. Depression and anxiety are symtoms of celiac disease (and many other illnesses). It is hard now to look forward and imagine a great life, but it is possible. I think you are already in the thick of the grieving process right now. Reaching out to this forum can be very healing emotional (it is not just all common sense advice about gluten...
  8. cyclinglady
    I agree with all the advice you have been given. It is excellent! I just want to add that things will get better. There is a huge grieving process to go through. Do not fight it. You have a right to grieve as your health and lifestyle will change, but you will adapt! Exercise gently until you feel a bit better. There is plenty of time to exercise...
  9. cyclinglady
    Try sorting and cooking your own chickpeas from scratch, but you might just be intolerant to chickpeas.
  10. cyclinglady
    I do not worry about makeup except for lipstick. I purchase Gabriel lipstick, which is certified gluten-free. I can buy it at my local Sprouts Market (cheaper version of Whole Foods). Red Apple Lipstick is certfied too, but I like being able to see the actual lipstick at the store. I have used the same color daily for more than 20 years -- if it's not...
  11. cyclinglady
    I personally would not trust my doctor to know if a drug is gluten free. I can not find it on this reliable website (a pharmacist maintains it for celiacs) but maybe you can. http://www.glutenfreedrugs.com/list.htm I would call the manufacturer directly. Any amount of gluten could cause an autoiummuine flare-up. Each person is different as...
  12. cyclinglady
    Gluten stays in your body for as long as any food, depending on your transit time (varies per person). It is the antibodies that are circulating in your body that is causing possible damage to the small intestine. Researchers say to maintain a gluten diet until all testing is complete and the doctor has given you a diagnosis. http://www.cureceliacdisease...
  13. cyclinglady
    Stew. That is my go-to meal when I have been glutened (meaning hard to eat anything....). Nice and easy to digest. I hope you see improvement soon! ?
  14. cyclinglady
    "Accidentally marked them soy free". Are you kidding? That's fraud! Consumer Reports just issued a huge report this month on supplements. Yes, everyone thinks they are all "natural" and therefore safe. Doctors and nurses recommend them all the time, but they can do a lot of damage. Anyone can start making them in their bathroom and there's literally...
  15. cyclinglady
    Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago. The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy). Test result: less than 5 part per million which is pretty much gluten-free.
  16. cyclinglady
    What if it were something else that glutened you? Maybe you ate too much of a good thing? I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process. Paramedics, ER doc and Cardio all thought I was having a heart attack. No. It was sheer gluttony and bad bones. Not good...
  17. cyclinglady
    I think that we have to remember that celiacs often develop intolerances due to our damaged guts. Our guts do not ncessarily heal either (usually adults) for a variety of reasons even if their symptoms improve (see links below). Nuts are just plain hard to digest. I can not tolerate almonds, but can handle walnuts and cashews in small amounts...
  18. cyclinglady
    Wow! I will never complain about my measly rashes and hives again (resolves with antihistamines). DH is awful! I can see why you are so diligent about avoiding gluten at all costs! Thanks for sharing. You are bound to help many. Hugs!
  19. cyclinglady
    Are you kidding? Malt is derived from barley. Google it.
  20. cyclinglady
    I am not an expert in thyroid disease, but I have Hashimoto's and my Mom has Graves, so I can offer a personal perspective. My thyroid antibodies were off the chart some 20 years ago. My doctor said they were the highest he had seen (over 2,000 or 4,000). Taking thyroid hormone replacement helped my symptoms, but my antibodies did not decrease much. ...
  21. cyclinglady
    The Toberlone site states that they do not use any gluten ingrediants: http://www.toblerone.co.uk/faqs Maybe he reacted to another ingredient? Sometime we Celiacs tend to jump to being Glutened first. May be he had food poisoning or a virus? Just a thought.
  22. cyclinglady
    Foam, I am glad that you are doing well! After one year of being gluten free and still following the Standard American Diet (SAD), I was feeling better but not great. Then I got my diabetes diagnosis. I went grain free, cut the carbs (because any carb can raise blood sugar per my meter) and I consume lots of dairy (mainly plain yogurt), fats...
  23. cyclinglady
    Treece, I was a avid baker for years. Heck, I even made my burger buns from scratch! Cooking was okay, baking was fun! I could whip out a pie in minutes! You can make your old favorite recipes and have them turn out. It just takes some experimenting. All my baked goods are gluten free and my family and friends can not tell the difference. Seriously...
  24. cyclinglady
    Welcome to the forum. Yes, it's true. You should have your boyfriend brush and floss before you kiss! Science has determined that celiacs can handle about 20 parts per milllion (size of a crumb) before setting off a reaction. Remember, celiac disease is an autoimmune disease that is triggered by gluten. Once triggered, your body will start...
  25. cyclinglady
    You joined the forum because your boyfriend told you to. You went gluten free because your boyfriend told you have celiac disease. Gee, see a pattern here? About the boyfriend? I am not trying to sound flippant or harsh. You need to stand your ground, be your own advocate and get some real medical help. You could have a variety of medical problems...
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