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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hey, I am a member of that forum (not very active though). But that's exactly how I eat. A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email. Instructs me to improve my diet and exercise more. What? I exercise more that most my age. I run, swim, bike and teach a few exercise classes. Change my diet? I...
  2. cyclinglady
    Fat. Seriously. It is what keeps you satiated and does NOT raise blood sugar. I have been on a Low Carb, High Fat diet for 2-1/2 years. I eat to my "meter". I did a lot of testing the first month to see which foods raise my blood glucose levels (no surprise, everyone is different). Buy a cheap meter and strips at Walmart and test it yourself. I...
  3. cyclinglady
    Welcome! It is advised by all the leading celiac researchers to test to celiac disease (which is not an allergy or a food intolerance but an autoimmune disorder like MS or lupus) before going on a gluten free diet. Here's a list of the tests: http://www.cureceliacdisease.org/screening/ I can not answer your question about pain, etc. There are...
  4. cyclinglady
    Albert, welcome! This is a very old posting from 2008. If you'd like to get input from someone who is currently on celiac.com and are having issues with dapsone/floaters/eye pain, I would recommend posting under another section like "Coping" etc.
  5. cyclinglady
    Hey, happy to see your posting, Fenrir. I hope you are doing well!
  6. cyclinglady
    Well, you do not HAVE to get tested, but since Celiac Disease is genetic and you have kiddos, you should seriously consider the pros and cons. Take for instance, my hubby. He went gluten-free over 15 years ago per the very poor advice of his GP and my allergist. "Try giving up wheat and see how you feel." Well, it worked. No more sinus infections...
  7. cyclinglady
    So interesting! Please keep us posted!
  8. cyclinglady
    SugarCube, I saw your other posting today. I can not believe that I missed your original posting! Maybe I was doing something super fun that week (oh, my parents were visiting!). Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia? After treating the Giardia, your CD resolved...
  9. cyclinglady
    Welcome! Unfortunately, you would have to go back on gluten to get tested (8 to 12 weeks for the blood test and 2 to 4 weeks for the endoscopy). Here are the tests: http://www.cureceliacdisease.org/screening/ I am sorry that your doctor is so mis-informed! There are over 300 symptoms attributed to celiac disease and some celiacs are considered...
  10. cyclinglady
    Welcome to the forum! Be sure to browse through our DH section. You do need to find a dermatologist who know EXACTLY how to biopsy for DH.
  11. cyclinglady
    It is hard, Lisa! So much to learn and you can never let your guard down! Keep trying and soon you will see the benefits. I would not eat out for a while to see if that helps (unless it is popping in the grocery store for a gluten-free meal or snack). I am a diabetic and admit to cheating (NEVER on the gluten-free diet). But my meter will give...
  12. cyclinglady
    Glutened six times since July! I am sorry, but that is unacceptable. Each glutening sets off an autoimmune flare-up that can last for weeks or months. I was glutened at the beginning of July. By mid-August my celiac antibodies were higher than when I was diagnosed. Six weeks later! I am diligent about being gluten free. I have been preparing...
  13. cyclinglady
    I read it. It specifically states instant coffee. I am not here to argue about coffee. It is safe for people with celiac disease. Of course, we all know that we have individual intolerances and those need to be identified and addressed in order for us to completely feel well. I did find another research project on PUB MED and one the the authors...
  14. cyclinglady
    Thanks for clarifying! I know that you and Jebby are the MCAS or MCAD experts! ?
  15. cyclinglady
    I just gave conflicting advice regarding a gluten challenge to Dark Angel. Frankly, I would be scared to death to trigger Angioedema if it is affecting her throat in order to get a celiac diagnosis or even samples of mast cells in the GI track. Can she just go for the mast cell diagnosis first and injest wheat/gluten in the doctor's office? Test for celiac...
  16. cyclinglady
    Well, you could have celiac disease, a wheat allergy, or both. Because of your reaction (angioedema) , I would not recommend a gluten challenge for getting a celiac diagnosis. You could be tested for a the wheat allergy though. What does your doctor say? In any case, your best defense might be to remain gluten free for life! Read our Newbie 101 section...
  17. cyclinglady
    Did you already test positive on any part of the celiac blood panel? I ask because in order to get tested for celiac disease, you must be consuming gluten for both the blood tests and the biopsies taken via endoscopy. It sounds like you are on a grain free diet. The anaphylactic reactions....has Mast Cell Activation been ruled out? How do you...
  18. cyclinglady
    In the US and UK, GI doctors prefer the newer DGP over the old Anti-Gliadin tests. But some countries are still using the old Anti-Gliadin tests. Just wanted to clarify that!
  19. cyclinglady
    If your test results were typed correctly (decimals in all the right places), then you have a positive on the TTG based on the lab range you provided (a 0.5 is higher than a 0.15). But I think you meant for that range to be applied to RAST test which tests for allergies and not for celiac. You need the actual lab ranges for that lab. Can you clarify?
  20. cyclinglady
    Ugh! Your doctor was wrong. You have to be consuming gluten daily in order for the celiac antibody tests to be valid. Squirmingitch was right! http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ http://gut.bmj.com/content/early/2014/06/10/gutjnl-2013-306578.long#T2 http://www.celiac.ca/?page_id=128
  21. cyclinglady
    Sorry, you had to find out the hard way! Thanks for reporting this. It may help someone else! Feel better soon!
  22. cyclinglady
    This could be your answer. You were on the right track! Read this about a sulfite sensitivity: http://www.allergy.org.au/patients/product-allergy/sulfite-allergy http://allergies.about.com/od/foodallergies/a/sulfites.htm Be sure to see if other foods on the list bother you.
  23. cyclinglady
    It is a steep learning curve when it comes to healing from celiac disease. Not only must we worry about gluten, but we each may have different intolerances or other illnesses. May I recommend the Gluten Free Watch Dog? I pay $5 per month to get product information (gluten-free) on various products. It is like being a member of Consumer Reports...
  24. cyclinglady
    I am not inferring that you did not have symptoms. I am letting you know, that when I was a newbie, I thought I was getting glutened. It turned out that my symptoms were from Xanthan Gum and not gluten. I never consumed gluten free products before my diagnosis. Xanthan gum still bothers me. Never bothers my hubby who has been gluten-free for 14 years...
  25. cyclinglady
    I have garlic and xantham gum intolerances. So, Udi's pizza is out and bread....... I have had them, but they do not agree with me -- it is not a gluten thing. My gluten-free hubby is never bothered by them. i keep a few in the freezer for special treats! The Udi lasagne is pretty good and great when we are on the road. I eat it when I am willing...
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