cyclinglady
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cyclinglady
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Dapsone is the only know drug that can help with DH and the safest treatment is a gluten free diet, since DH is celiac disease. The rash can be located anywhere. Just classically, it it most often found on the elbows and knees. Consider yourself special! Please take the time to read posts within the DH section of the forum where you can find...
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Is Jello Instant Pudding Gluten-Free?
cyclinglady commented on Scott Adams's article in Gluten-Free Foods & Beverages
Kraft has a policy of just disclosing ingredients and will not, for legal reasons, guarantee that their products are gluten free (they do not test). But jello is safe. If you are still worried, consider a homemade version. You have to cook it on the stove top though. It is so, good and worth the stirring constantly! https://www.tasteofhome... -
With my celiac family and all their intolerances, I just make plain ground beef, pork or chicken, seasoned with salt and pepper for tacos. Everyone can add gluten-free salsa or taco sauce. Makes everyone happy.
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Whiskey
cyclinglady replied to Billy G. Ellzey's topic in Gluten-Free Foods, Products, Shopping & Medications
All distilled alcohol is gluten free regardless of the source. Be careful of any additives or mixers. Some celiacs complain of symptom. So, it is up to you. Read this article to find brands that are derived from corn, etc: https://www.healthline.com/nutrition/are-whiskeys-gluten-free#why-some-experience-symptoms Me? I am a nervous Nelly... -
Can Anyone Relate...?
cyclinglady replied to EmDubs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! Just make sure you keep consuming gluten. Do not go gluten free. All celiac disease requires you to be on a full gluten diet. Sad, but true. I also suffer from chronic autoimmune hives. All these allergies and autoimmune fall under the umbrella of hypersensitivity (4 types). Google it. Calm down your immune system (by treating... -
What did your doctor recommend? Since this is a celiac forum, we follow a gluten free diet because it is the only known treatment for celiac disease or Non-Celiac Gluten Sensitivity.
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@plumbago I use my iPad all the time. It is easier to use for internet surfing and our PCs are dedicated to our company. But this spell correction or mistyping. It happens to me all the time. Thanks for the clarification. 😊
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1. I never had a positive TTG (IgA or IgG) or EMA ever (even on many repeats). Positive only the DGP IgA which was around 86, but repeat tests later after suspected gluten exposures were “off the chart”. My biopsies were a Marsh Stage IIIB. The blood tests were designed to help diagnose celiac disease and not for dietary compliance. But they are the onl...
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Raynauds. My kid has it. Blue fingers and toes. The only one to wear wool socks in the summer. I had anemia all my life. I have two anemias actually. One was genetic. Doctors blamed my Thalaseemia for my low Hemoglobin. They blamed menstruation for the low iron. I went for a colonoscopy when I hit 50 and the GI took one look at my chart...
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Eye problems and celiac
cyclinglady replied to Sandra Spradling's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am sorry. Where you diagnosed legally blind before your celiac disease diagnosis? No chance of improvement? My eyes were wacky before my diagnosis. I had a hard time driving at night. I confess, without glasses, I am legally blind. I can not see the “E” on the eye chart (20/200). Within that first year of healing, the night blindness wen... -
Just know that steroids will impact the DH test results.
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Eye problems and celiac
cyclinglady replied to Sandra Spradling's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Knitty Kitty. On a gluten free diet, those eye issues should resolve with time and healing. But know, that you can develop more than one autoimmune disorder. See your doctor if you have been diagnosed for a while and have adhered to a gluten free diet. It might be something else, like MS, Graves or Crohn’s. -
I agree that the AIP diet or even the diet that Dr. Fasano uses for non-responsive celiacs might be able to jumpstart a newly diagnosed celiac. (Though I admit, Gatorade which is on Fasano’s diet, is not very healthy in my opinion, but he is a pediatric GI and must deal with kids.) I also agree that real foods and avoiding/reducing processed foods would b...
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Thanks for sharing your experiment that you discussed a few postings above. I think we have some members who strongly believe that vitamin and mineral supplementation is critical for their health. They strongly believe that it works for them. As a result they can find any study that can support their beliefs. I confess, I often cherry pick my attachments...
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Great idea. But their goal is to get customers to buy as much as possible. They encourage them to wander around the store as a result hoping they will purchase more than was just on their list. Impulse buying. It is why the meat and dairy are at the back of almost every store.
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I worry more about most all generic drugs coming from both India (very little FDA oversight) to no oversight in China (where they are not letting the FDA in for inspections). Pretty sad when all antibiotics raw materials come from China and most raw materials too for supplements. That is scary. Not some lotion you do not ingest.
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While I agree that there have been no studies and there probably never will be (it is all about the money to fund it), I still think that personal care products that are not labeled gluten free, but contain no gluten ingredients are safe. After years of learning to read labels, I still can not purchase a product that contains gluten even if I am not going...
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Less than 20 years ago, celiac disease was thought to only to affect the small intestine. Celiac researchers know now that it is systemic and can affect other organs and body systems. Some celiacs have less small intestinal damage, but have skin issues. The Dermatitis Herpetiformis rash is celiac disease. Some celiacs are diagnosed via skin biopsies....
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They probably have healed. While healing from celiac disease, go easy. It takes time to heal, master the diet, so take it easy. Listen to your body. It is trying to tell you that you need rest. Can you make a full recovery? Yes! I am old, but I bet if I entered a sprint triathlon, I could make it on the podium for my age...
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This was from Trisha Thompson, registered Dietitian, who has celiac disease and works with the FDA to help keep us Safe. She tested a few products: https://www.glutenfreedietitian.com/gluten-in-cosmetics-results-of-testing-on-lipsticks-and-lotions/ And this from Melinda Dennis. I met her once at a celiac disease conference: https...
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No! They are gluten free. I use them. The company does not test. You are not consuming them. The risk for gluten contamination during manufacturing of personal care products is nil too. The company rep is saying what the legal department dictates.
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Your thyroid medication looks good. You can check this 2017 list by a pharmacist who champions celiacs. Also, there is Pillbox, a NIH gov site: http://www.glutenfreedrugs.com/newlist.htm https://pillbox.nlm.nih.gov/pillimage/search_results.php?getimprint=&getingredient=Levothyroxine&getshape=&getinactiveingredients=&...
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No worries. I am usually in a rush myself. Trying to squeeze in a reply in just a few minutes. Ah, the dangers of multi-tasking. My grammar and spelling are awful! Typing on an iPad is not easy, but it is more convenient than my laptop.
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Red meat? We have a member who develop a meat intolerance due to a tick bite. Google it.
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No, I am concerned about lipstick, shampoo (a stretch) and hairspray. Anything that I could ingest. I should not worry about lipstick though. The Gluten Free Watchdog (aka the Gluten Free Dietitian) said that there is would not be enough gluten to cause harm because no one consumes that much lipstick. http://glutenfreedietitian.com/articles...
