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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    No.
  2. cyclinglady
    No. But if you hang out in a bakery for a long period of time, then maybe yes. Some people report feeling ill by smelling bread, but that might be psychosomatic. I know just shooting past the flour packages in the grocery store makes me nervous even though I know that my chances of getting a gluten exposure are slim to none. My brain is like the character...
  3. cyclinglady
    But other than gluing meat strips together in restaurants and some processed meat products, where in the US have you found it being used and not included in an ingredients label? I certainly want to avoid this product since it is unclear that it can cause or harm those with celiac disease. The USDA is just using this on meat products...
  4. cyclinglady
    We like this product. We purchase this at our local Sprouts! Yum!
  5. cyclinglady
    Oh, where do you get your food? Dorm food is can be a gluten nightmare. Think about informing the disabilities office on campus. You can get things like access to a kitchen or more time on tests in case you have to run to the bathroom. Maybe a refund on your dorm food too if they can not keep you safe.
  6. cyclinglady
    You might be able to consume dairy without any problems. The villi tips normally releases the enzymes to digest lactose. When the villi are very damaged, no enzymes. Makes for bad GI symptoms. But you might not have much damage. Dairy could be fine for you. I was lactose intolerant, but now I can consume a lot of dairy. My daughter, your age, can consume...
  7. cyclinglady
    That is true! The old 1 in 10 chance seems to be no longer the case.
  8. cyclinglady
    Fast response...your results are most likely going to be negative. Does your GI know that you have been gluten free for four months? You need to tell him or her. This is critical! All celiac disease testing requires you to be on a full gluten diet. Make sure they rule out Inflammatory Bowel Disease. If you are extremely lucky, they...
  9. cyclinglady
    We are both doing well. The gluten free diet does work! I can suggest consuming foods (containing gluten) that are soft and mushy and cooked because anything can be hard to digest. Think chicken noodle soup, beef barley soup, saltine crackers, etc. You can also give your GI tract a break by doing a 12 hour fast (only water, coffee without cream or...
  10. cyclinglady
    Welcome! I am sorry that you are in this predicament. Because of the pandemic, it was reported that the British (you spelled celiac differently) Society of Gastroenterology has been back logged on getting procedures done. This is pretty understandable. You can read about it here: https://www.bsg.org.uk/covid-19-advice/covid-19-specific...
  11. cyclinglady
    In theory, the small intestinal lining can regenerate in just a few weeks. But the reality is that autoimmune response takes time to stop after ceasing to ingest gluten. Another factor is the actual gluten free diet. The learning curve is steep. It takes time to master and mistakes are typically made. Finally, concurrent and systemic issues (e.g. osteoporosis...
  12. cyclinglady
    I politely disagree. The EU guidelines for diagnosing patients without biopsies now includes adults (at least in the UK) who have a positive TTG, but that result must be 10 times the cut off. A slightly elevated TTG is not considered 10x the limit. Celiac disease: a comprehensive current review, published July 2019 Authors: Giacomo Caio...
  13. cyclinglady
    What did the biopsies reveal? How many tissue samples were taken and from which locations? You should get a copy of the pathologist’s and the endoscopy reports. My GI told me right after the procedure that everything looked good when he went in. The biopsies revealed the damage which was microscopic. I think you need to wait for the biopsy results. ...
  14. cyclinglady
    I am not disputing the need for biopsies or not. I am disputing the summary published on Celiac.com that contains incorrect information. I encourage you to read the original source on the topic of diagnosing celiac disease by blood test only following the current BSG guidelines: https://www.bsg.org.uk/covid-19-advice/covid-19-specific-non-biopsy...
  15. cyclinglady
    Yes, you quoted the article you penned, but I am quoting what the British Society of Gastroenterology has directed for diagnosing celiac disease this year: “In guidance on restarting endoscopy services the BSG has suggested treating patients (< 55 years) with suspected coeliac disease and a tTG >x10ULN without biopsy. Here is the protocol f...
  16. cyclinglady
    You should see your GI. Your celiac disease might be active due to gluten exposures or you could have another illness. Once you have one autoimmune disorder, you can develop more. Your GI can help you figure this out.
  17. cyclinglady
    I made the assumption that might they not be first- degree relatives. If it were her parents or siblings, she might have asked them first instead of us, but I could be wrong.
  18. cyclinglady
    I disagree. The article source (Linked in the celiac.com article) stated that the TTG result must be 10x over the top of the range. Otherwise, an endoscopy is still recommended. “Those with antibody levels lower than ten times the normal range will still require an endoscopy before the diagnosis can be confirmed.” For kids, they normally do ...
  19. cyclinglady
    Yes. The label says gluten free. I have not had the need to use it. I hope you are feeling okay.
  20. cyclinglady
    No hepatitis here, but I can say that my thyroid antibodies were very high, yet the rest of my thyroid tests were normal. It took a few years before everything went wonky. Perhaps this can occur with autoimmune Hepatitis. Ask your doctor. I also was diagnosed with autoimmune gastritis (biopsy-confirmed) five years after my celiac disease diagnosis...
  21. cyclinglady
    Did you get a complete thyroid panel which includes antibodies? My thyroid panel was normal except for very elevated thyroid antibodies. It took a long time before I really needed thyroid hormone replacement. Also, except for iron (just ferritin), I had no deficiencies. Not all celiacs are malnourished.
  22. cyclinglady
    You must be consuming gluten (about 1 to 2 pieces of bread daily or equivalent) for any celiac disease test to work as Trents indicated. Talk to your doctor about retested after you go back on gluten for a minimum of 6 weeks.
  23. cyclinglady
    You can use toaster bags in any toaster and remain safe, but I do not think this is your problem. I think you need to adhere to safe gluten-free kitchen practices or build that second kitchen. Another option is to have the entire household go gluten free. Your SO can get his gluten fix from take out, etc. Shared kitchens can work, but you have...
  24. cyclinglady
    I am pretty sure it is used to help diagnose Crohn’s.
  25. cyclinglady
    I am sorry about your miscarriages. Celiac disease can definitely contribute to fertility problems. Thyroid issues can also lead to miscarriages. Has that been checked? If yes, did they check for thyroid antibodies? A positive ANA can be attributed to celiac disease or other autoimmune like Hashimoto’s Thyroiditis. The only way to know for s...
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