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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Many people who have celiac disease, do not have gastrointestinal symptoms. The only way to know if you have celiac disease is to get tested. It sounds like you really should see a doctor if you suspect gallbladder or liver problems. We can not diagnose you on the internet. Take care.
  2. cyclinglady
    Hi! I think you need to get another GI’s opinion. I kept thinking that my little niece had celiac disease. She went to 4 Gastroenterologists. Celiac disease was firmly ruled out via blood tests and biopsies while still on a gluten diet. The 4th finally ordered a pill camera where they caught severe damage from Crohn’s which was out of ...
  3. cyclinglady
    I did a little more digging. While I can not find the yogurt you mentioned, the US website does indicate that all their yogurts are gluten free under the FAQ section. https://www.yoplait.com/faq/
  4. cyclinglady
    If you suspect celiac disease, ask for a simple blood test. You may be able to do this on your own, depending on where you live. You can not go by symptoms because there are over 200 for celiac disease and these often overlap with all kinds of other illnesses. Learn more about the tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis...
  5. cyclinglady
    Maybe you have an old-fashioned cold virus? Eating hot peppers? I live in Southern California where the infamous Santa Ana Winds occur. Lots of blowing dust and mold. How was your weather? As long as it is not on-going, I would not worry.
  6. cyclinglady
    Well, this did happen in 2016. But, there are some celiacs who really want a treatment (besides the gluten-free diet) and are willing to be in studies. Kudos to them! I mean that sincerely. The same goes for those in human trials for the COVID 19 vaccine.
  7. cyclinglady
    I can not find this yogurt on the Yoplait US website. Greek, yes, but not a h9ney version. Where do you live? What are the food labeling rules?
  8. cyclinglady
    I am sorry that your SNAP benefits were reduced when you moved back to Michigan. Perhaps you can contact a food bank. You can also contact a local Michigan Celiac Disease group for possible help. Buying processed gluten free food is expensive, no doubt. Look for real food like beans, rice, vegetables, fruits, meats, fish, nuts, seeds, etc. ...
  9. cyclinglady
    No. I think you are talking about COVID-19. Celiacs who are managing their treatment (gluten free diet) well, do not have a higher risk of having a poor outcome with COVID. Those who have autoimmune disorders (like lupus, Crohn’s, etc.) and are being treated with immunosuppressants are at more risk. Celiacs who react pretty fast to gluten exposures a...
  10. cyclinglady
    Take a look at old member Jebby. She has a FB/site called The Patient Celiac. She (celiac) is a premie doctor who has four kids and her adorable kids were making her sick. Not sure how old the kids are that you are watching, but some household allow kids to walk around eating and touching everything. Do they bake? Flour can last for 24 hours. Any licking...
  11. cyclinglady
    The antibodies tests were only meant to help diagnose celiac disease. It was never intended to help determine dietary compliance. However, it is the only non-evasive “tool-in-the-toolbox” that is non-evasive. My DGP IgA has never been normal. Usually, I ask for testing because I can not figure if I actually had a gluten exposure or not. I ...
  12. cyclinglady
    I am sorry that you got sick. People who have celiac disease often have additional food allergies or intolerances. Luckily, those do not trigger the autoimmune reaction that causes the body to attack the small intestine. Only wheat, barley and rye can do that. Daiya pizza (certified gluten free) is very highly processed. Geez, there are almost...
  13. cyclinglady
    Sorry that you had a gluten exposure. I hope your DH resolves fast!
  14. cyclinglady
    Read posts fro members like @squirmingitch, @apprehensiveengineer and @ravenwoodglass. These members have had horrible bouts with DH and have figured it out. Take their advice. Me? Not DH. Just chronic autoimmune hives. I respond so far to antihistamines. But read this post and see what happens as DH worsens. It is enough to make me shudder...
  15. cyclinglady
    I was not trying to dispute your MCAS diagnosis. The proof was in finding too many mast cells in your gut. Not to mention the 24 hour collection. Your GI must have order the staining when he suspected or knew about MCAS. I can see why you are doubting a celiac disease diagnosis. No lab work to support it firmly. Just some villi damage which...
  16. cyclinglady
    I can see your dilemma. Celiac disease or just MCAS. MCAS. I have a standing order to have Tryptase measured at my local ER. Since I feel better and avoid my known triggers (insect bites and Medications like NSAIDS), I have not pursued a formal diagnosis. What can my doctors do? More antihistamines? Chemo drugs? Nope. Not for me. So, I...
  17. cyclinglady
    While my thyroid nodules and enlargement are gone, I still take hormone replacement. My thyroid was permanently damaged. No longer visibly inflamed, but not working.
  18. cyclinglady
    Sure. Some celiacs are asymptomatic but that does not mean that their small intestines are not being damaged.
  19. cyclinglady
    Hard to say, without more information, but I would avoid the challenge. My last gluten exposure (2 years ago) resulted in my developing my third autoimmune disorder: AI gastritis. It was not there at the time of my celiac disease diagnosis. I had a repeat endoscopy about a year after that gluten exposure. I had developed new symptoms that could...
  20. cyclinglady
    But you HAVE to do a gluten challenge in order for the skin biopsy to work if you have been gluten free (even if you were just gluten light). Unless, you know that you have been consuming gluten daily, your skin biopsy result could be negative. We can not diagnose you on the internet. You are going to take the advice of some non-medical person...
  21. cyclinglady
    Why get a diagnosis now after being gluten free for three years? I assume you felt better going gluten free and that your initial symptoms resolved? This could very well be DH. A biopsy would need to confirm it. If you are going to spend the money, know that you must be on a full gluten daily diet for 6 to 12 weeks (just like the blood tests...
  22. cyclinglady
    Withdrawal symptoms are common. Stay the course! 😊
  23. cyclinglady
    Too bad they did not study those who have IBD and the effects of a gluten free diet. We know that if you have IBD or celiac disease, you can develop additional autoimmune disorders. A Gluten free diet may actually help those who have IBD. I guess the general population can rest easy and consume luten knowing that their risk for developing IBD is...
  24. cyclinglady
    How are you doing on the gluten free diet? Have you healed? How are all your follow-up tests? Have your antibodies gone down? Any other biomarkers improved (e.g. iron or vital deficiencies). Gluten Ataxia is a relatively new disease. It is celiac disease, but many doctors are not aware of gluten ataxia. If you already have been diagnosed with celiac...
  25. cyclinglady
    I was thinking the same thing. I know that just seeing my blood test and biopsy results left me with no doubt that I had celiac disease. Hard to deny it. Takes time to accept it too.
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