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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    @Scott Adams, @pressingon, Pressingon was SO.....lucky to have even had a positive on the TTG IgA since he/she indicated that they had been gluten free. So many members who were gluten free and then tested had negative results leaving them in diagnostic limboland.
  2. cyclinglady
    Celiac disease is like a chameleon. Symptoms are always changing. It is the reason, you can not diagnose celiac disease based on symptoms (which overlap with so many illnesses like infections, cancer or other autoimmune). You might have had celiac disease prior to your diagnosis. Perhaps a recently virus, caused your body to produce GI symptoms. ...
  3. cyclinglady
    Look to your local lab for the ranges and not a national range. You have a positive. It only takes one positive on the panel to move forward. The next step is usually a referral to a GI. Know that you must be on gluten daily two weeks prior to the biopsies. This is important. What doctor says the endoscopy to obtain biopsies is in accurate?...
  4. cyclinglady
    Autoimmune Disorders fall under the umbrella of Hypersensitivity. Celiac disease is under type 4. You can have issues with several hypersensitivity types (like an IgE Type 1 allergy to cats). You can learn more here: https://www.amboss.com/us/knowledge/Hypersensitivity_reactions What I am trying to say is that all of these types are linked...
  5. cyclinglady
    I am sorry you are ill. It looks like it is gluten free: https://nationalceliac.org/celiac-disease-questions/is-zithromax-gluten-free/ Not sure about the generic. Your pharmacist (or you) can look it up on pillbox. https://pillbox.nlm.nih.gov/pillimage/search.php it sounds like GI upset is common with this drug. Consider a good probiotic...
  6. cyclinglady
    You bet! It can make you feel depressed and anxious. It is one of my first signs that I have had a gluten exposure or that one of my other autoimmune disease is flaring. But then, so many other issues can cause moodiness, like going through menopause or puberty too. Not to mention dealing with COVID 19! Do you suspect celiac disease?
  7. cyclinglady
    Do not stop consuming gluten until you get tested. Anemia was my main symptom when my diagnosis was caught. What compounded it, was going through menopause (extra blood loss), and having a genetic anemia which causes my hemoglobin to be just out of range. My ferritin was a 2 and would hardly increase in blood supplements. My ferritin dramatically...
  8. cyclinglady
    Wow! Glad you are healing fast! I am pretty active for my age. I run, cycle and swim. I taught some fitness classes in my spare time for the past 30 years (gyms are now just opening up here in California). Two months after my diagnosis, I fractured some vertebrae doing nothing (osteoporosis due to undiagnosed celiac disease). I took a year off my...
  9. cyclinglady
    My last bout of chronic hives lasted about six months and was linked to a gluten exposure. It sounds like you are healing much faster than me! Keep to the diet. My allergist prescribed a cocktail of antihistamines which eliminated at least the itching. Funny though, my allergist blamed my Hashimoto’s. Some report that it could be a stand-a...
  10. cyclinglady
    I agree, a blood draw is in order. He should be screened for celiac disease and checked for anemia. Ask for both the DGP and TTG tests. Usually the TTG catches most celiacs, but kids that young often do better With the DGP. Ask for both the IgA and IgG of both those tests to cover all bases. You only need one positive on any of those four tests. I...
  11. cyclinglady
    Excellent advice, Trents! I just want to add that everyone should get and maintain their medical records/labs. This has been invaluable for me. My doctors for years have been giving me copies of my lab tests or I can get all my online. It is your right to have this information! You paid for it. Let’s face it. When you are sick, are you really a...
  12. cyclinglady
    I always have tingling legs. I also have healed from celiac disease (based on repeat endoscopy/biopsy). But I also have two other diagnosed autoimmune disorders and most likely am developing a fourth autoimmune disorder. My tingling legs worse when my autoimmune is flaring. While I can control celiac disease, I can not control the others. I am on no...
  13. cyclinglady
    Your bouts with dizziness could easily be due to celiac disease which is a systemic disease. It can affect many body systems. Your best bet is to follow the gluten free diet as recommended by your doctor. With time, these symptoms will be eliminated if they are actually due to active celiac disease. I do not want to say for sure, because I do not know...
  14. cyclinglady
    In as little as two weeks, you small intestine can heal enough to show up negative on a biopsy. You can go gluten free now and if the GI orders an endoscopy, you would have to consume gluten daily for two weeks (6+weeks to repeat the blood tests). Your elevated immunoglobulin A is just out of range. I am no doctor, but mine is over 800. Not good...
  15. cyclinglady
    You might never develop ataxia. Maybe just Lymphoma (cancer) instead. Maybe you become very anemic. So much so that you have heart failure. You can develop osteoporosis which can cause spontaneous fractures. Untreated celiac disease is a slow death. But read from a more reliable source. https://newsnetwork.mayoclinic.org/discussion...
  16. cyclinglady
    I am the first person who has been diagnosed with celiac disease. Hereditary means that there are specific genes associated with celiac disease. Many people have the genes, but only a few actually develop celiac disease. Because researchers know about these genes, they have determined that only 20% of celiacs are actually diagnosed. Like I know that I...
  17. cyclinglady
    Thanks for the reminder.
  18. cyclinglady
    Humm...glucose syrup is usually serviced from wheat in Europe. It is supposed to be highly processed, but I would be leary. Anyone from Germany care to comment?
  19. cyclinglady
  20. cyclinglady
    Great point. My gallbladder was removed long before my celiac disease diagnosis. I did not have stones. I had a non-functioning gallbladder based on a HIDA scan (0% refractory rate). My gallbladder was actually infected and I required emergency surgery while on a business trip. The HIDA scan saved my life. If the ultrasound does not provide answers...
  21. cyclinglady
    Hi! The celiac antibodies tests were designed to help diagnosis celiac disease. They were never intended to check for dietary compliance. Doctors use them because they are the only non-evasive “tool-in-the-box”. It is expensive to reorder endoscopy and like all medical procedures, not risk free. In my case, I never tested positive on the...
  22. cyclinglady
    I have never tolerated aspartame just like my Dad. So, no diet sodas for me. When some of the newer artificial sweetners came along, I decided to avoid them. They are highly processed. So, I drink water, plain teas (hot and iced) coffee and sparkling mineral waters with a slice of fruit. I do not miss the sweetness. I save those sweet calories for...
  23. cyclinglady
    Celiacs are susceptible to lymphoma, a cancer that affects the lymph nodes. But this is pretty rare. In fact, very rare. Lymph nodes can swell with any infection, even from a simple cold virus. But if the swelling does not resolve, see your doctor.
  24. cyclinglady
    No. It will not set off a celiac autoimmune reaction, but your body might not like it. Celiacs can develop additional food intolerances, these can create GI upset, but not actually damage intestinal villi. Personally, I can not use the stuff. I stick to real sweetners like cane sugar or honey.
  25. cyclinglady
    You should follow-up with your doctor. Just keep in mind that you are more susceptible to developing additional disorders like thyroiditis, inflammatory bowel disease, etc. however, you are still a newbie, so many things can resolve, but it takes time. Lots of time. Most members report feeling better at a year. Yes, that is right, a year....
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