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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    What were the ranges for the TTG and Gliadin tests? And what is a “Gluten” test (the result 23.3)? I am not familiar with that test. Is it an allergy test? If so, IgG allergy tests are not very accurate (like only 50%) accurate. There is no gluten allergy, but you can have a wheat allergy. All grains have gluten. Only celiacs react to those glu...
  2. cyclinglady
    Hi! I am so sorry that you are ill and are still recovering (for the most part) from COVID-19. We are not doctors and we can not diagnose you. You could have celiac disease or Non-Celiac Gluten Sensitivity. It is possible that COVID triggered it. Researchers think that maybe a virus can trigger celiac disease. Only an endoscopy with biopsies...
  3. cyclinglady
    Your theory might work. I do not have DH, but just one gluten exposure might not get the results you want. Most members report that you still need to consume gluten for 6 to 12 weeks, even for a skin biopsy. The rash needs to be very active. A dermatologist would need to biopsy it. The skin punch must be adjacent to the rash (please find a celiac savvy...
  4. cyclinglady
    Maybe you actually have celiac disease. Stomach swelling after consuming bread is not a Hashimoto’s symptom. Did you get the complete celiac panel (all TTG, DGP and EMA tests)? Did you know that about 10% of celiacs do not have the antibodies? Did you know that Hashimoto’s is strongly linked to celiac disease? But you are gluten free now. G...
  5. cyclinglady
    Like you, I had no noticeable symptoms. I was anemic, but doctors always blamed A genetic anemia. I actually had a second anemia — iron-deficiency anemia. My body learned to adapt over the years until I hit menopause and then I became very anemic which was concerning for my doctors. Finally, I was diagnosed with celiac disease went I went for a cancer s...
  6. cyclinglady
    I have not heard of this, but it probably would not hurt you. Best bet is to avoid gluten at all costs. For this who have DH (Dermatitis Herpetiformis/celiac rash ), they usually report that avoiding processed foods, even gluten free foods, is the best treatment. They focus more on real whole food. Do not eat out until you see relief and are willing...
  7. cyclinglady
    Going gluten free (no wheat, barley or rye) should not cause rectal pain. Do you have celiac disease. Celiacs can develop other concurrent illnesses. You should consider seeing a doctor.
  8. cyclinglady
    If you suspect celiac disease, ask to be tested. If your doctor refuses, find another doctor.
  9. cyclinglady
    If you have celiac disease, gluten free grits are safe. But a diabetic? If you are counting carbs to help lower your blood sugar, grits have a lot of carbohydrates as does any grain.
  10. cyclinglady
    Maybe consider a condo. One that is near a gluten free restaurant. You can cook and dine out. Not ideal, if you do not want to cook, but safe, maybe more affordable (big recession here) and still fun. Another idea is to stay at a Bed and Breakfast Inn that is dedicated/or trained gluten-free. I am sure that you have found sites like this: https...
  11. cyclinglady
    Some researchers in the EU are diagnosing patients (especially children) based on just the antibodies test results and a resolution of symptoms on a gluten free diet. In the US, doctors still prefer biopsies via endoscopy. This can be helpful in adults where long term damage may have incurred and not just from celiac disease (e.g. H. pylori, SIBO, IBD,...
  12. cyclinglady
    I use antihistamines, like cetirizine Hydrochloride (Costco Allertec), Claritin, or Zyrtec and they are gluten free. But that just helps with runny noses, itchy eyes and hives. I do use a Nedi pot (found at any big box store) for sinus congestion. It works great and is safe. Has she been evaluated for sinus polyps? Those are often related to autoimmune...
  13. cyclinglady
    We can not really diagnose anything as no one here is a doctor. However, RA is commonly linked to celiac disease. Once you have one autoimmune disorder, you can develop more over a lifetime. Note that each lab has different ranges, so the number you posted are meaningless. If you could post them, perhaps we could help, at least for the celiac...
  14. cyclinglady
    We have had a few members who have had this issue. Not sure they will respond, but I hope they do. In the meantime, use the search box. I think you will find plenty of past responses. I am pretty sure your daughter can heal. How long has she been on the gluten-free diet?
  15. cyclinglady
    True! Sometimes piece of mind is priceless! My shampoos and conditioners are clearly marked gluten free. You can have a wheat allergy in conjunction to celiac disease. And those with DH? They must be extra careful. Some report that gluten on their skin is a no go! Please read the DH section of the forum for tips if anyone struggles with Dermatitis...
  16. cyclinglady
    I am glad that your mother kept advocating for you! Be patient, it takes time to heal! Think about creating a 504 plan for school. It might be prudent to have in place before going off to university. My daughter’s friend found in useful in High School. She was in culinary when she was diagnosed. Her teacher worked out a way for her to safely complete t...
  17. cyclinglady
    Yes, you can have other issues, like IBS, in conjunction to celiac disease. So, if your symptoms are not resolving on a gluten free diet, then you should see a medical doctor. Things like cancer, Crohn’s, Ulcerative Colitis, SIBO, etc. should be ruled out. I could have sworn my niece had celiac disease based on her symptoms, but she does not (i...
  18. cyclinglady
    My girlfriend’s sister was diagnosed years ago with celiac disease as a child. She was told that she would outgrow it. Some 40 years later, she discovered that her celiac disease never did go away. My girlfriend was tested because the olds of first-degree relatives having celiac disease even if asymptomatic, is high (almost 44% per a recent Mayo C...
  19. cyclinglady
    What do you mean by safe? As long as you are not eating your night cream, it should not set off a celiac disease reaction. I worry about sunscreen, because sweat can run off my face and into my mouth (when riding my bike). I use just a Walmart knock-off that is comparable to CeraVe. I like an unscented lotion that just moisturizes. Those wrinkle...
  20. cyclinglady
    If you have been diagnosed with celiac disease, you can develop DH. Celiac disease is like a chameleon, symptoms can come and go and you can develop new ones. The way to avoid DH is maintain a strict gluten free diet. It sounds like you are consuming gluten, or do you mean you must be getting gluten exposures into your diet? Those with DH must...
  21. cyclinglady
    Stretch marks? Your arms can plump up when you are pregnant and nursing. Stretch marks just do not just appear on your belly. They can occur after weight loss.
  22. cyclinglady
    Sophie. Something is not right. How can you not be absorbing your food and yet be healed from celiac disease based on your last endoscopy? You might have something else. You can develop more than one autoimmune disorder. Get back to your GI or PCP for answers. Sorry, but it sounds like you are doing a great job remaining gluten free. We...
  23. cyclinglady
    Chances are you have had a gluten exposure since you are a newbie. It takes a while for celiacs to master the gluten-free diet. Most adult celiacs take about a year to heal. Once you stop consuming gluten and then reintroduce it (either through cross contamination or accidentally consuming gluten), the result can be severe. This happened to me...
  24. cyclinglady
    Welcome! Four months in. Have you had your celiac antibodies retested? This can give you an indication of whether or not you are on the path to healing. Follow-up testing can occur the 3 or 6 month mark (annually after the first year). You should also be checked for vitamin and mineral deficiencies. Your diet sounds good with plenty of vegetables...
  25. cyclinglady
    Where was this study published? Can you please provide a link instead of an email address (which seems dubious). I have determined that the report you cut and pasted indicates that this was done in a lab, on not on humans. Please correct me if I am wrong. The only known treatment for celiac disease is a gluten free diet. I found a study...
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