Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    No. The ingredients are gluten free, but.....think about it. Do they make a spray oil that also contains flour commonly used for bakery items (cookie sheets and bundt pans)? Cross contact during manufacturing could be an issue. The other problem? A store brand. Hard to tract down the manufacturer to call and ask. I just use California Grown olive...
  2. cyclinglady
    I would wait for your repeat TTG test. This is what happened to me. First gluten exposure (restaurant) developed GI symptoms (had none when diagnosed). Second exposure (restaurant), severe GI symptoms lasting more than one month. Third exposure (unknown, suspect an antibiotic, plus tooth infection and bout with the flu), GI symptoms lasted months...
  3. cyclinglady
    @MissiMissi Welcome to the forum! It certainly unfortunate that you have been in diagnostic limboland. It is frustrating to know that you had the endoscopy, but because you were already on a gluten free diet, your biopsies came up negative. Only you can decide whether or not it is worth getting a formal diagnosis. I am formally diagnosed (antibodies...
  4. cyclinglady
    Ask her doctor to run a vitamin and mineral panel to check her for deficiencies (it is recommended follow-up care). Have her thyroid checked as autoimmune thyroiditis can go hand-in-hand with celiac disease. Alopecia is another autoimmune disorder that can occur as well. Chances are, her hair will come back with more healing. It just takes time (up to...
  5. cyclinglady
    Hi! It is hard to say how you will react when you start consuming gluten about two weeks from the date of your endoscopy (or what the GI instructs). This is called a gluten challenge. Celiac disease is like a chameleon. Symptoms can and do change. I am sure you will be instructed by your GI as to what to expect and what to do if your challenge...
  6. cyclinglady
    Easy peasy. Get sedated. I have had it done twice. ?
  7. cyclinglady
    Oh my! Consider getting a new doctor. Celiac disease can develop at anytime! As someone with Hashimoto’s (I was diagnosed in 1997), you should be screened periodically, especially when symptoms develop. Also, you need to see which celiac tests were given to you. In my case, I test oddly. If my GI has not ordered the entire celiac panel, my diagnosis w...
  8. cyclinglady
    You can have more than one illness. To make matters harder, celiac disease symptoms can change. While you might vomit after a gluten exposure, the next time, you might just get bloating or constipation. It is why it can be hard to tell if you actually had a gluten exposure. In my case, when I was pretty sure I had a gluten exposure and my symptoms...
  9. cyclinglady
    While this canned chicken may not have gluten ingredients, it does contain additional items that you may not be able to digest well. Keep a food and symptom journal to help you identify additional food intolerances that can cause discomfort, but do not trigger celiac disease (autoimmune response that damages the small intestine). It is easier, in the beginning...
  10. cyclinglady
    You can have soy! Just make sure the soy sauce is marked gluten free! When newly diagnosed, besides reacting to gluten which sets off an autoimmune response, many celiacs have concurrent intolerances or allergies to other foods. This has been attributed to a damaged, leaky gut. Every celiac is unique. But the most common intolerances often include...
  11. cyclinglady
    Consider subscribing to the Gluten Free Watchdog. They test products. It is kind of a mini “Consumer Reports” for those who need to be gluten free. They have tested many products and out of those about 98 or 99% are labeled correctly and are safe for celiacs. I love it! Of course, each celiac has some uniquely individualized intolerances and new...
  12. cyclinglady
    Celiac disease is like a chameleon and symptoms can change. I think you were diagnosed by a Naturopath and I am not sure your tests (saliva, if I recall) were the standard blood tests. Blood in your stool can be something serious. You should see a medical doctor. Know that Ulcerative Colitis or Crohn’s is commonly linked with celiac disease. I would h...
  13. cyclinglady
    No matter what the form, I can not consume garlic.
  14. cyclinglady
    I don’t know. Those are not the standard, medically-accepted tests for celiac disease screening. Blood tests (antibodies) and endoscopy to obtain small intestinal biopsies are used. Learn more about the tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Ask your primary care doctor to order the appropriate tests. ...
  15. cyclinglady
    There are some pretty good Certified gluten free beers out there. My fav is Ground Breaker brewed in Oregon. My local liquor store (CA) carries it. https://www.groundbreakerbrewing.com/faq-gluten-free-beer But.....you are just newly diagnosed. Anything you eat can wreak havoc on your sore gut (intestines, liver, etc.). Can you wait a few more...
  16. cyclinglady
    Thanks for the heads up!
  17. cyclinglady
    If your celiac disease is well managed, you are not any any higher risk compared to someone without celiac disease as of this date. This link contains a lot of information and additional links from leading celiac disease research centers: https://nationalceliac.org/celiac-disease-and-covid-19/ As a mom, I would advise you to keep to the gluten...
  18. cyclinglady
    McDonalds would not be my choice for a last meal, that is for sure! ?
  19. cyclinglady
    No way! Consuming gluten and setting off the autoimmune reaction before going into the hospital when you are struggling with COVID-19 could be the “nail in the coffin”. Dr. A. Fasano said something like managed or treated celiacs are at no greater risk than the general population. But untreated/undiagnosed celiacs? Who knows?
  20. cyclinglady
    One summer I developed KP (Keratosis pilaris) just on my upper arms. This was long before my celiac disease diagnosis.
  21. cyclinglady
    Hi, I do not have DH, but I do have celiac disease. Celiac disease can cause many rashes. The worst is DH. If the rash resolved with antihistamines (or at least the itch went away, it might just be hives. I have had bouts of autoimmune hives which started with a gluten exposure. My allergist thought they were more related to my autoimmune thyroiditis...
  22. cyclinglady
    Did you see or meet with the dietician last week? I am concerned that you are not eating enough (eat until you are full and eat frequently for now). and that your diet is not varied. Did you doctor run a vitamin and mineral panel? Consider starting dairy. Start with yogurts and cheeses. Why no coffee? That could cause withdrawal for sure, if...
  23. cyclinglady
    While I think an endoscopy to obtain biopsies can be very valuable (benchmark), getting one now during this pandemic seems risky. Your blood tests were high and you responded to the diet. You would have to do a gluten challenge of 2 to 4 weeks (for endoscopy, longer for blood tests) which can be pure misery once you have been gluten free. If you need a...
  24. cyclinglady
    Hang in there. Seriously, I finally felt better around the one year mark. And I knew the diet well. My hubby had been gluten free for 12 years prior to my diagnosis. What I did not know was that we are each unique. We can have different food intolerances. I thought I was getting gluten exposures from commercial gluten-free bread. Oddly, hubby was not...
  25. cyclinglady
    I am guessing the legal department advised the shelf labels to be removed. Why? Because I have experienced first hand items marked gluten free, but they were not. It is a lawsuit waiting to happen. Always read the labels each and every time.
×
×
  • Create New...