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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    What? No need per the GI Association. Ok, in theory, it can take a few weeks to heal from celiac disease. The lining of the small intestine can recover pretty quickly depending on the damage. However, most celiacs take a year to heal based on member input. Why do some doctors think that patients can master the diet in just a few months? Here...
  2. cyclinglady
    Consider prescription drugs. Almost all generics are manufactured in India and China. Are they really gluten free even if they do not list gluten as an inactive ingredient?
  3. cyclinglady
    I am sorry that your GP does not know about celiac disease or what is required for testing. With Dr. Google, there really is no excuse anymore. Celiac disease is an autoimmune disorder like lupus or rheumatoid arthritis. The difference is that the trigger is known— gluten. Damage is done to the small intestine and can be systemic as well. A gluten i...
  4. cyclinglady
    I know of no brand that is certified gluten free that is safe. Did you see my link to the Gluten Free Watch Dog’s website? I’d you do not like clicking on links, then consider just googling it. The problem is that legumes are mechanically sorted. Worse is that lentils (unlike chickpeas or pinto beans) are small. Like wheat pieces. It is really hard to ...
  5. cyclinglady
    No time for me to respond well, but please, if you are going to a see a GI, make sure you are consuming gluten daily. All celiac disease testing requires you to be on a full gluten diet.
  6. cyclinglady
    A flare up is the same as your celiac disease being active. It is active when you are first diagnosed. It can take time to deactivate. Gluten is the trigger, but once set off, it is up to your body (immune system) to deactivate (stop attacking your small intestine). For a few, healing can occur within a few weeks, but for most it takes up to a year or...
  7. cyclinglady
    Doctors are just looking for a downward trend at the 3 to 6 month mark. I can tell you that my DGP IgA was very elevated when I had a repeat endoscopy/biopsies that revealed healthy villi. My GI was as perplexed as me. So, use it a just one tool. Look at other health markers (e.g. in my case, hemoglobin) or vitamin/mineral deficiencies or how you feel...
  8. cyclinglady
    Her thyroid maybe functioning now (and those tests capture functionality) but not autoimmune. There are a few thyroid antibodies tests that can be ordered if symptoms arise. For example, my doctor 20+ years ago, felt my thyroid which turned out to be enlarged. Yes, he was old school and felt my neck. He also felt nodules. My lab tests were normal except...
  9. cyclinglady
    I will add that celiac disease is autoimmune. That means gluten is the trigger that sets off a flare up (those with IBD, lupus or Rheumatoid Arthritis never really know what triggers their immune system). Antibodies can take time to ramp up. So, just because gluten is physically no longer lingering in your gut, does not mean your immune system has turned...
  10. cyclinglady
    It can take a year or longer for antibodies to normalize. So, it sounds like you are on the right track. Remember, the antibodies testing was designed to help diagnose celiac disease. It was never meant to check for dietary compliance. However, it is the only non-evasive “tool-in-the-toolbox”, so doctors use it.
  11. cyclinglady
    I am so sorry. My doctors always blamed my life-long anemia on 1) menstrual cycles (iron-deficiency anemia) and 2) a genetic anemia called Thalassemia. I was so fortunate to have insisted on a cancer screening colonoscopy when I reached 50 years. My consulting GI took one look at my chart (history) and recommended a celiac disease blood panel. If positive...
  12. cyclinglady
    GFInDC was right that many celiacs have elevated liver tests and those typically resolve when celiac disease goes into remission (via the gluten free diet). However, when you have one autoimmune disorder, you can develop more. Autoimmune Hepatitis is always a possibility. My hives erupted every afternoon like clockwork. They would start with a tummy...
  13. cyclinglady
    Welcome. I am so sorry for the loss of your wife. Since your wife had small bowel cancer and the fact that your daughter has very high antibody results and a celiac gene, I would assume that your pediatrician is correct and that your daughter has celiac disease (I am not a doctor). New research has indicated that biopsies may not be necessary...
  14. cyclinglady
    @Jill Harris Welcome! Have you been diagnosed with celiac disease for long? If you are new, know that most celiacs have additional food intolerances with the most common being lactose. Any food can be suspect. For example, I have issues with Xanthan Gum found in most commercially processed gluten-free foods. So, I have to avoid them or I experience...
  15. cyclinglady
    Yes.
  16. cyclinglady
    These results seem to indicate that your daughter probably has celiac disease. The next step would be to biopsy the small intestine via endoscopy. Some new studies suggest that biopsies may not be necessary in children. So, talk with your doctor. Consider just a PED GI consult as he or she may be more celiac-savvy than your PED or family doctor. They...
  17. cyclinglady
    I am assuming you have celiac disease? Acne and Rosacea might have an association with celiac disease, but so can so many other illnesses.
  18. cyclinglady
    Welcome to the forum! I think you need to get back to your “RA” doctor (an endocrinologist?) and ask for your celiac disease test results. If positive, he or she should refer you to a Gastroenterologist. Symptoms are meaningless as some celiacs are asymptomatic and so many symptoms overlap with other symptoms. Know that once you hav...
  19. cyclinglady
    Go for the DGP IgG test. It is applicable to anyone. I test positive to only the DGP IgA (am not IgA deficient) and never to the TTG (IgA and IgG), EMA IgA and DGP IgG. I am old! I have had the complete panel repeated many times, so it is not a fluke. Know too that about 10% of celiacs are seronegative. In that case, push to see a GI who can go...
  20. cyclinglady
    The Gluten Free Watchdog has reported a few problems with lentils. I would be care about buying processed foods that contain lentils or those that have been mechanically sorted even if certified. https://www.glutenfreewatchdog.org/news/general-product-warning-check-your-lentils-including-certified-gluten-free-lentils-for-foreign-grain/ But I...
  21. cyclinglady
    The “Find me Gluten Free” app/site is a good place to check as well. Best to look for (in order of best choice): 1. Dedicated 100% 2. dedicated prep area 3. gluten-free menu and....good reviews written by celiacs for choices 2 and 3. Looks like Ojai has a dedicated gluten-free restaurant. Maybe worth a drive? Call first as ...
  22. cyclinglady
    Thank you for catching my error. Rice is safe for those who have celiac disease or NCGS!
  23. cyclinglady
    I completely agree with Trents. Either you are still getting gluten exposures in your diet, or you have refractory celiac disease which is very rare and I hope you do not have. I have healed, but I started at a Marsh Stage 3B. I follow a pretty strict diet. That includes NEVER eating out unless it is a dedicated 100% gluten free restaurant. If...
  24. cyclinglady
    While you tested negative now, know that celiac disease can develop at anytime. A recent Mayo Clinic study found that 44% of first degree relatives had celiac disease and about 80% had no symptoms at all. https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ My kid has...
  25. cyclinglady
    This fairly recent study suggests that a gluten free diet could help those with thyroid antibodies. The important thing is feeling well! ? https://pubmed.ncbi.nlm.nih.gov/30060266/
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