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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. Yes, it is a myth. But I think it is just a miscommunication of words. Again, only gluten from rice, wheat and barley, produce a celiac reaction (increase TTG, EMA or DGP antibodies). But people with damaged guts can have a hard time digesting anything. For example, when my celiac disease is flaring, eating corn on the cob causes huge GI distress for...
  2. Wow! It sounds like you might a rice allergy. Washing the rice (and a visual sort) should have removed any wheat/gluten residue. I wonder if you could be reacting to arsenic levels, depending on how much rice you consume? How long have you been gluten free? I found that my iron levels improved as I healed from celiac disease. At least, my doctors...
  3. Unless you are going to eat the hair dye, it should be safe if you have celiac disease. If you have a wheat allergy (which is different fro. Celiac disease), it is then possible you could react (e.g. hives, rash).
  4. Like most words in the English language, there can be many definitions. A dictionary or a quick google search can be useful and enlightening.
  5. Cross reactive foods? This has been fake news on the internet for years. These foods (like coffee) do not cause a celiac disease reaction. They do not ramp up antibodies. Just gluten from wheat, barley, rye (and sometimes oats) can cause a true celiac reaction (again, increasing antibodies). You might get GI distress from consuming coffee or soy, but...
  6. The only way to know if you have celiac disease is to get tested. Going by symptoms alone is impossible because these symptoms overlap with other illnesses. Testing starts with a simple blood test. The catch? You have to be eating gluten everyday for six to eight weeks or the tests will not work. So, you might want to call your doctor and get the...
  7. Celiac disease is an autoimmune disorder that damages the small intestine. If you think he has celiac disease, the only way to know is to get tested because symptoms for celiac disease overlap with other illnesses like cancer, Crohn’s or a virus. In any case, he should consult with a doctor.
  8. In addition, check this government site or ask your pharmacist to check it if you know the brand name: https://pillbox.nlm.nih.gov/pillimage/search.php
  9. If you are reacting to plain yogurt purchased in the store, then you will probably react to plain yogurt you make at home.
  10. I just wanted to add that I can not tolerate coconut or any nuts (allergy). Besides avoiding gluten, you might need to create a food journal to help you identify food intolerances. If you are lucky, those intolerances might dissipate with healing.
  11. These are very trying times. It is hard to determine what might be provoking your current symptoms without a full follow-up visit to your doctor. If that is not possible now, focus on a strict clean gluten-free diet that is varied so that you are getting plenty of nutrition. Taking supplements can be helpful if you actually have a deficiency, but it is...
  12. Have you contacted local celiac disease groups in those areas?
  13. Going gluten free is not harmful, however, please consider real food. Too often people switch from a standard diet full of junk food to a gluten free version. Avoid eating out and no oats for the first six months as some celiacs react to oats. Keep a journal as it is common for celiacs or those with Non-celiac Gluten Sensitivity to have additional food...
  14. Normal. I never had withdrawal symptoms. Everyone is different. Do you have celiac disease? If not, you might want to think about going back on gluten and getting a simple blood test ASAP. All celiac disease testing requires you to be on a full gluten diet. But, with the pandemic, you might need to postpone a diagnosis and later consider a gluten...
  15. Hi! I am not a doctor, but my bet would be that sciatica is the cause of your symptoms and not gluten. It just happen to coincide with your increase in gluten. If you had neuropathy issues in both your legs, I would suspect a B-12 deficiency, but one leg? Sciatica. Not to mention that it feels best when you are walking and not sitting. Of...
  16. Be patient. It takes most members about a year to heal. Why? The learning curve for the gluten-free diet can be steep for many. It sounds like you are taking a “real food” approach which should prevent gluten exposures and expedite healing. Identifying your personal food intolerances and nutritional deficiencies is also important. The advice on con...
  17. Here is a place to start: http://www.glutenfreedrugs.com/newlist.htm The list is a little dated, but probably still valid. Look for anything labeled gluten-free, if possible. Many Target brands are labeled gluten free. I do not use any OTC drugs, but my kid uses Costco/Kirkland ibuprofen which is labeled gluten free.
  18. It depends. Is he a controlled diabetic? Using a pump? Is his celiac disease in remission (following a gluten free diet)? I would think that a getting a doctor’s opinion would be smart. A controlled diabetic who has controlled celiac disease can travel anywhere with the right precautions (e.g. cooler for gluten free food and insulin).
  19. I do this with enchiladas. I have yet to do this with cabbage rolls, but I am going for it!!!!
  20. Yes, you can feel your heartbeat in your abdomen if you are very thin. Granted aneurysms are genetic and often made worse by smoking. My Dad had one and it was thankfully repaired. Because doctors could feel a strong pulse in my abdomen and I had a strong family history, I had an ultrasound. No aneurysm was found. Get checked if you have a family member...
  21. If you really suspect celiac disease as the culprit, get tested. If your GP refuses, maybe it is time to get another GP’s opinion. You can also see if there are over-the-counter tests where you live or a walk in lab.
  22. Go on YouTube and watch how to make cabbage rolls. There are plenty of Grandmas who demonstrate. Everyone has a different method or recipe. For example, I would never use toothpicks or tie them up. I also bake them in the oven.
  23. I disagree. SIBO and Rosacea is just a theory based on the link you provided). I have Rosacea (more than 30 years diagnosed) and I do not have SIBO. Other theories are that Rosacea can be triggered by food intolerances or that it is linked to autoimmune thyroid or autoimmune gastritis (I have those as well). My Rosacea is definitely triggered by my garlic...
  24. This topic is really rare. In fact, I did a quick search within the forum and found some old posts, but there were only 4 and one was yours! https://www.celiac.com/search/?&q=Porphyria &search_and_or=and I think you are trying to distinguish a gluten exposure (attack or flare up in celiac disease) vs. porphyria. It sounds like symptoms...
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