Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Oh, anxiety is SO common in celiacs or anyone with Autoimmune diseases. Just managing an illness can make anyone anxious. Not to mention that autoimmune is usually systemic. Like celiac disease can harm other parts of the body like joints, nerves and the brain. Side effects for drugs to treat anxiety (like benzos/Xanax) are super addictive and hard to...
  2. cyclinglady
    When my celiac disease is flaring (active), I consume fruit, veggies, rice, and meats that are well-cooked and easy-to-digest. Think homemade stews and soups. I will literally eat the same thing for breakfast, lunch and dinner for a week or longer. Any food can be hard to digest when your gut is inflamed. Once healed, I still try to consume real food...
  3. cyclinglady
    Yes, gastroparesis can be a complication of diabetes. I have experienced it myself. Besides, celiac disease (which is in remission), I have autoimmune gastritis. This can lead to B-12 deficiencies. I also have Hashimoto’s too. Food can stay in my stomach for hours. I am pretty sure it is autoimmune related. It comes and goes. Here is an article a...
  4. cyclinglady
    I am sorry that your son is ill and in the hospital. How is he been managing his diabetes and his celiac disease? His symptoms could be attributed to actively flaring celiac disease or uncontrolled diabetes. Maybe I am confused. Has he been diagnosed with celiac disease? If not, as a type 1 diabetic, he should be screened for celiac disease.
  5. cyclinglady
    It would be nice to know what the study participants were actually eating. 1. Were they eating in restaurants, but still ordering gluten free versions? 2. Eating at home using processed foods that do not contain gluten per the label ingredients? 3. Eating processed foods labeled gluten free? 4. Eating processed foods that are...
  6. cyclinglady
    Hi! Not sure I understood you. You have celiac disease and now have DH? Consider browsing through the DH section of the forum if you suspect it might be the cause of your rash and since you have celiac disease. I think you will find that those with DH who have successfully treated their DH are SUPER careful. It seems that 20 ppm threshold...
  7. cyclinglady
    Eat real food. Be patient. You have read my other posts, so I will not repeat myself. Hang in there! ?‍♀️
  8. cyclinglady
    Hey, Jennifer! I do not have DH. I encourage you to browse through the DH section of the forum to see if others who have DH have experienced your issues. Oats? Back in the day, oats were not recommended at all. Then researchers realized that only a few celiacs react to oats (gluten reaction) and they advised waiting for at least six months...
  9. cyclinglady
    If you are on a gluten diet (6 to 12 weeks) it might be worth getting tested. At least rule it out for now. Migraines are common with those who have celiac disease. Do a search in the forum for more migraine experiences. Anemia was my main symptom. I once had that IBS diagnosis, which really means “I be stumped”. Please do not settle. Tr...
  10. cyclinglady
    Hi! Genetic testing is used to help rule out celiac disease and not to diagnose it. https://rarediseases.info.nih.gov/diseases/11998/celiac-disease/cases/43805 If you suspect celiac disease, get the antibody testing from your PCP. Can you develop later, if your result is negative now? Yes, if this particular genetic test is accurate. I...
  11. cyclinglady
    In the old days, it was advised to avoid oats for at least six months. That is because some celiacs react to them (causing small intestine damage). Is that you? Who knows? The only way to know for sure is to have a repeat biopsy three months after consuming oats. Some countries do not advise oats at all. https://www.coeliac.org.au/uploads/65701...
  12. cyclinglady
    And to get you going, just think single ingredient foods like a banana, carrot, rice, ground beef, or egg. You can not go wrong or make mistakes (wash raw agricultural products though). Real food.
  13. cyclinglady
    I use a zinc oxide product on my face with added zinc oxide on my nose and cheeks for cycling. The more chemical sunscreens can really burn my eyes. A sweatband helps too. I use regular chemical sunscreen (based on Consumer Reports recommendations) for the rest of my body. While gardening or walking I cover up (e.g. hat, sun shirt) after getting...
  14. cyclinglady
    An endoscopy to obtain small intestinal biopsies or a skin punch biopsy are the gold standards for obtaining a celiac disease diagnosis. Your blood test result is not common and just having the celiac genes is used to rule out but not diagnose celiac disease. That is because 30% (that is a ton of people) carries the genes but only a few of those go on to...
  15. cyclinglady
    Looks gluten free to me. Here is a list of ingredients that contain gluten: https://www.vanicream.com/skin-basics/common-gluten-ingredients-in-skin-care-products Remember, you really have to ingest it to cause a celiac disease flare up. But I avoid gluten in personal care products because I am have been rewired to look for gluten. Just gives...
  16. cyclinglady
    Hi! You have to go by your own lab values and not one published by another lab. It appears that your result is negative and that you are not IgA deficient. The Immunoglobulin A (IgA) test is run as a control test to determine if other IgA tests are accurate (e.g. the TTG IgA). You can ask for the rest of the panel. I personally have never had...
  17. cyclinglady
    I just wanted to add that I only test positive to the DGP IgA and I had moderate to severe intestinal damage. I have had the full celiac panel run many times too. Never a positive on the TTG.
  18. cyclinglady
    Hey, the Gluten Free Watchdog just tested this product. You should consider subscribing. Like Consumer Reports, the GFW does not take advertising dollars. If you can afford a magazine subscription or Hulu, you can afford to subscribe. It is well worth it!
  19. cyclinglady
    Is there any way for her to get the rest of the celiac blood panel? I completely get the blood draw. (My kid (19 years) always needed a pediatric needle. We always asked for the best phlebotomist, but my kid always passed out. It was always painful. Her veins were so tiny.) I doubt the blood sample was damaged. Or is the doctor willing to give her...
  20. cyclinglady
    I can not recall the brand, but Lowe’s definitely has gluten free plaster. I bought the last batch myself (5 minute set, but I wish we had used the longer time). Pretty sure Home Depot has a comparable one. Every product has material safety data sheets (or whatever they are call now). You can google the product brand. Things like what are the i...
  21. cyclinglady
    The fact that so many celiacs are not healing is disheartening. Note that the study said in the conclusion: “Quantitative histology in well‐oriented biopsy sections reveals villus atrophy in the majority of patients with coeliac disease who appear well controlled on gluten‐free diet.” I have been participating on Celiac.com forum for six years. ...
  22. cyclinglady
    Please read the link to the Celiac Disease Foundation. It tells you what tests your doctor needs to order.
  23. cyclinglady
    Get your celiac blood tests that you had a few years ago. Everyone should maintain their own medical records. What if you were arrested? If you had the documents, you could insure that the jail would be required to give you a gluten free diet — at least in the US. I waived my diagnosis (letter from my GI) at the high school stadium when they refused t...
  24. cyclinglady
    Life goes on as usual. What researchers have found is that many celiac disease patients do feel like they have end stage renal disease or cancer. That is because the burden of treatment falls on the patient. I think it is the only illness where the treatment is the responsibility of the patient. Every bite of food, medication or a kiss, can contain...
  25. cyclinglady
    If you were two months gluten free, chances are that you will not have antibodies floating in your blood. Granted you consumed gluten for the past two days and had GI upset, but again, it takes time to build up antibodies that leave the GI and circulate in the bloodstream. This is not about an allergy which is a different immune response. Your only...
×
×
  • Create New...