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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hi Cynthia! You might find this useful: https://celiac.org/about-the-foundation/featured-news/2014/08/fda-gluten-free-food-labeling-information-page/ Ok. Want to know the inside scoop? Sure you can switch over to a gluten free diet that is comparable to the Standard American Diet which is typically full of processed foods (often junk). ...
  2. cyclinglady
    I do not have RA, but my mother does. She is on hydroxychloroquine and is doing well. You sound like me attempting to treat without drugs. I also fast, but only intermittent (12 to 16 hours). It helps my blood sugar and gives my GI tract much needed breaks. Longer fasts? Not much research has been done, especially on women, so I am wary. In...
  3. cyclinglady
    It depends. What are you making? I add it to regular milk to curdle it. It is a substitute for buttermilk. Think biscuits. I add it to bone broth. It helps leach out all the minerals, etc. I also add it to my apple pie crust to make it flakey.
  4. cyclinglady
    Sure you can have juices. Juices are safe for celiacs. I assume bottled juices, so just read the label to insure that gluten is not in it. If you are reacting (not a gluten reaction) to fruit, say a strawberry, then I would avoid juices that contain strawberries.
  5. cyclinglady
    Yes, rice is only allowed in this temporary diet. Why? Because other alternative gluten-free grains can be cross contaminated by wheat (field, transportation, mill). Today, there are many certified gluten-free grains compared to 20 years ago. I think he just went back to the basics. Sweet potatoes are a vegetable. Steam, sautéed, microwave, bake,...
  6. cyclinglady
    While the TTG tests catch most celiacs, they do not catch all (like me). I test positive only to the DGP IgA tests, not even the EMA and not even in repeats, and I am biopsy-confirmed and biopsy-healed. And then there are seronegative celiacs. I think it is about 10% of celiacs. If you feel better on a gluten free diet, then I encourage you to...
  7. cyclinglady
    No, potatoes are fine on the Fasano diet. Remember, some people have identified food intolerances (like you can not tolerate dairy). Others have trouble with nightshades. I can not have onion or garlic. But do you actually have issues with nightshades (tomatoes, potatoes, eggplant?). If not, eat them. We eat copious amounts of potatoes (well mostly...
  8. cyclinglady
    So glad you are doing well now. My mom, also has RA and is on hydroxychloroquine as well. We joke that she has an edge on the rest of us (her children are all in their 50’s).
  9. cyclinglady
    Good to know! My mom also has RA and is on hydroxychloroquine. We hope COVID-19 spares her as well. From what I read, it can be effective. Unfortunately, they have only been giving it to COVID-19 patients when they are very ill — too late. When were you diagnosed with celiac disease? Consider participating in the forum. I bet you have a lot o...
  10. cyclinglady
    Maybe. The only way to know for sure is to get tested for celiac disease. There are over 200 symptoms for celiac disease. The problem is those symptoms often overlap with symptoms from other diseases (autoimmune, cancer, infections, etc.) Do not go gluten free as all celiac tests will be negative then. This is important. https://celiac.org...
  11. cyclinglady
    Where is the fat? Since you are lactose intolerant, choose oils like olive, avocado or coconut. I know the other two oils are not on the Fasano list, but those are safe. For instance, your veggies should have olive oil on them (fresh or cooked). I eat lots of avocados. Eat the tasty meat fat. Add meat drippings to your rice. Make sure that canned tuna...
  12. cyclinglady
    It should be safe (some celiacs with DH must be extra strict). The USDA does a good job in making sure all agricultural and meat/fish products comply with the FDA guidelines. So, you can be assured that it “meats” the 20 ppm criteria. ? I based this on the Walmart website that showed the ingredients and that it is labeled gluten free. I do not pur...
  13. cyclinglady
    Welcome! Here is a link to the OC local celiac group: http://www.occeliacs.com Please make sure you are still on a gluten diet. It sounds like your PCP advised you to go on a gluten-free diet. However, all celiac disease testing requires you to be on a full gluten diet and that includes the endoscopy to obtain small intestinal biopsies...
  14. cyclinglady
    I would and have. For example, my rice is in old giant peanut butter and pretzel containers. I washed them well, obviously. I think plastic can be suspect for hidden gluten if it is well used, scratched and worn out. I tossed a lot of Tupperware. It became icky from age. Nothing lasts forever.
  15. cyclinglady
    Gluten challenges are not being recommended by Dr. A. Fasano, a world leading celiac disease researcher. This was released:
  16. cyclinglady
    This was just released. Dr. Fasano, a world leading celiac disease researcher, does not recommend a gluten challenge during this COVID-19 pandemic.
  17. cyclinglady
    Hi! Dr. Allessio Fasano, a leading celiac disease researcher, is NOT recommending a gluten change during this COVID-19 crisis which may last for three years! It can be dangerous for some and you have a family to rear. This just came out: I had anemia when I was diagnosed. No huge GI issues. Had significant damage though. Now when I have...
  18. cyclinglady
    Only you can decide if a diagnosis is critical. At your age (close to mine) a few benefits can be 1) easier to get first -degree family members tested as some celiacs are asymptomatic, 2) you can get gluten-free food in jai” or a hospital, and 3) your doctors can keep an eye out for additional autoimmune or other illnesses (like osteoporosis). Please r...
  19. cyclinglady
    Did you already have the celiac testing? This is important because all celiac testing requires you to be on a regular full gluten diet. In as little as two weeks, some people can reduce antibodies. Then they get a negative on the celiac disease antibodies blood tests. Diagnostic limboland! Please get back on gluten if you want an accurate result. Symptoms...
  20. cyclinglady
    My hubby went gluten free 20 years ago per the advice of his PCP and my allergist. The diet worked. Twelve years later, I received my celiac disease diagnosis. They say after marriage, that you become one. Oddly, a recent study finds that spouses can both have celiac disease. It adds to the theory that environment comes into play. Me? I think that...
  21. cyclinglady
    Ugh! I still can not tolerate garlic and onions. Makes for some pretty bland cooking. Now my kid is the same way. Not only do we get GI problems, but our faces breakout. We both have Rosacea. Thankfully, we can now consume dairy! Research Zonulin. Celiacs have too many of them thus maybe causing “leaky gut”. It s a real thing. Here is an ...
  22. cyclinglady
    Sure. This can be due to many things like vitamin deficiencies. You should get your Vitamin B levels checked. In fact, it is recommended as standard celiac follow-up care: https://www.beyondceliac.org/research-news/new-celiac-disease-guidelines-emphasize-follow-up-care/ I have had tingling or numbness for years. My Doctor does run annual tests...
  23. cyclinglady
    Did you know that Type 1 Diabetes, Hashimoto’s Thyroiditis and celiac disease are strongly linked? (Same genes.) In fact, your endo should be screening you for celiac disease, even if you are symptom free and you have symptoms. It certainly sounds like your Dad has celiac disease. If he does have it, your risk is 44%. Sounds like T1D was the first t...
  24. cyclinglady
    There are many different types of anemia. Your mother’s may have been genetic (i.e. sickle cell anemia, Thalassemia, etc.) Milk products are safe for celiacs. That is different from being lactose intolerant. If milk causes you problems then do not drink it. Again, the only way to tell if you have celiac disease is to get tested. I w...
  25. cyclinglady
    We can not diagnose you over the internet. We are not doctors, just people who have celiac disease. It sounds like you have several issues and that your doctor is on the right track. Lactose intolerance (milk sugars) is very common. A vast majority of the world’s population is lactose intolerant. Maybe the infection you had triggered your lactose i...
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