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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sure other members have some good suggestions, but I also have autoimmune gastritis. When it is flaring, find it best to sleep elevated. I bought a wedge pillow and that helps. We also have a recliner chair, so I can use that as well. The best solution is to avoid gluten at all costs. What does that mean for me? No eating out unless it is...
  2. cyclinglady
    I think you made a wise decision going gluten free now. Who know what is going to happen with this pandemic? We have already seen delays for routine healthcare. We just have to be patient and do things to keep us safe and healthy. Keep in touch with your doctors. Look for cancellations once everything is back to normal or near normal. Two weeks...
  3. cyclinglady
    I was diagnosed at 51. I just had anemia at the time. My diagnosis was caught when I went for a cancer screening colonoscopy (all my friends were getting them ?). Two months later I had vertebrae fractures doing nothing. I was then diagnosed with osteoporosis. Not saying that you have osteoporosis, but celiac disease is systemic. You can also have more...
  4. cyclinglady
    All celiac disease blood tests requires you to be on a full gluten diet (6 to 12 weeks daily) or you can get negative results. It sounds like you were gluten free or gluten light. Know too that some 10% of celiacs are seronegative. And Dermatitis Herpetiformis (DH) sufferers often do not test well serologically and should get a skin biopsy. You...
  5. cyclinglady
    Talk to your doctor. With a very positive celiac blood test (make sure it was either the TTG or the DGP), feeling better four weeks on a gluten-free diet and the fact you had inflammation of your last scope, he or she might give you a diagnosis. I am sorry that you have to wait so long for a scope (months to a year?). There are no other tests. A genetic...
  6. cyclinglady
    Did you read my link? The challenge allows you to eat any gluten as long as it is the equivalent of a slice of bread or two. Read the link I provided and research a gluten challenge. Going back on gluten after being gluten free can be awful and should be done under a doctor’s care.
  7. cyclinglady
    Can you get repeat testing? (This should be offered up annually per the celiac research centers as a standard for follow-up care.). If your tests results are lower, then it helps to confirm your celiac disease diagnosis. You would be healing. Gallstones and gastritis can still act up even if you have healed from celiac disease.
  8. cyclinglady
    I am sorry that you feel that way. There are no evidence-based studies that have been done on a diet ever. Sure, lots of small studies, but nothing of significance. There is no one specific diet that is good for everyone. We are each individuals and must find a diet that is best for each of us. I personally would not like to be on a Vegan diet...
  9. cyclinglady
    First published in 2007? The contents is way outdated! The DGP has replaced the AGA tests. Please remove this article.
  10. cyclinglady
    Wow, your TTG was a 250? If you just need an endoscopy, your gluten challenge would just be 2 to 4 weeks. https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/
  11. cyclinglady
    I agree with Scott. There is no cure for lupus. However, some people do find that diet can help prevent a flare-up or calm it down with many autoimmune diseases. Most of these diets are rich in real foods like vegetables, fruit, meats, nuts, etc. and most encourage you to avoid grains which would be avoiding gluten. Dr. Terri Wahls, MD, professor and...
  12. cyclinglady
    Supplements are covered under The FDA (Food and Drug Administration) requirements, but oddly not prescription drugs. Since Carmel coloring is very processed, it can be derived from wheat and still be considered gluten-free. I think the product is missing the last sentence below and is therefore mis-labeled. “A product that is labeled gluten-f...
  13. cyclinglady
    You might have bile or liver problems which are common in celiacs, but a gluten free diet is not the cause of a white stool. https://www.medicalnewstoday.com/articles/324582 stool color and size can change for many reasons. It can be a concern, when it happens frequently. While you might not be able to see a specialist, can you call your...
  14. cyclinglady
    Made in Minnesota? It says, like all Target private labeled products, distributed. That is Target’s corporate location. This could be made anywhere in the world. You would have to call them.
  15. cyclinglady
    If your result was very positive, chances are you do have celiac disease. I am sorry that you are doubting your diagnosis. Did you read my comments that celiac damage is often patchy and is missed because not enough biopsies were taken or damage was further down the small intestine? A vast majority of celiacs do not heal. Why? Because they either do...
  16. cyclinglady
    I saw this dietician at a lecture who also has celiac disease and works for a major celiac disease center on the East Coast. You can read her comments. She does not recommend consuming these grasses (usually wheat and barley, but it could be applied to oat as well). https://nationalceliac.org/celiac-disease-questions/do-wheat-grass-and-barley-grass...
  17. cyclinglady
    It depends. What GFinDC said is true, but I think you need to take a look at your original test results. If the positive was just slightly elevated or just out of range on the TTG, you could have had another illness. Why didn’t the GI find damage? You could have just been starting to develop celiac disease. The doctor could have missed the damaged a...
  18. cyclinglady
    What Scott says is true. I want to clarify about my comment on risk. When you are new to the diet, it can be overwhelming. Especially, when you are in the store trying to make a decision. Who has time to look up everything? I memorized all the sources of gluten. That helped, but when in doubt and there is no time to research, do not buy the product...
  19. cyclinglady
    Many celiacs are lactose intolerant. So, you may have to give milk up for a while. So your celiac blood test was positive? Did you get a diagnosis? I ask because usually the next step is an endoscopy to obtain small intestinal biopsies. This requires you to consume daily for 2 to 4 weeks up to the procedure. But with this pandemic, your doctor...
  20. cyclinglady
    I went to the website as I was not able to read the label well. The item in question might be Carmel color. In the US it is usually derived from corn. But in Europe (or wherever this supplement is actually manufactured — maybe China), it can be derived from wheat that is highly processed and considered gluten free. But US labeling laws require wheat t...
  21. cyclinglady
    Yes. Ask for a ferritin check. This is iron stores. While I process iron, I had a hard time keeping my iron stores (ferritin) stocked. Both my iron-deficiency anemia and Thalassemia contributed to very low hemoglobulin. https://www.healthline.com/health/thrombocytopenia#diagnosis
  22. cyclinglady
    Relegated to celiac disease? I do not know. I do know that my red blood cells are always elevated but that is due to Thalassemia, a genetic anemia. I also had iron-deficiency anemia when I was undiagnosed. Now healed from celiac disease, my iron-deficiency anemia has resolved. I still lots of tiny red blood cells, but again, that is due to Thalassemia...
  23. cyclinglady
    Yes. She can develop celiac disease at anytime. It is why periodic testing (screening) is recommended at all leading celiac disease research centers. She should definitely be screened for anemia. That was my main symptom when I was diagnosed. In fact, my own daughter has been tested twice and each time she is also screened for anemia.
  24. cyclinglady
    @trents So, true. Not just those with celiac disease, but doctors can also often forget that you can develop other autoimmune disorders or other illnesses. My doctors are always monitoring me for other new autoimmune disorders.
  25. cyclinglady
    Consider getting your antibodies checked for connective tissue disorders if this does not resolve in a few months. Something else can be brewing. My last gluten exposure caused a variety of issues. Some would not resolve. Almost a year later, A repeat endoscopy revealed a healed small intestine but found autoimmune Gastritis. I learned that not everything...
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