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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I would ask your doctor to order a HIDA scan to check your gallbladder. A non-functioning gallbladder seems to be pretty common in celiacs. My gallbladder used to work and not work over the years (decades) until finally it became infected. It just could no longer squeeze to release the necessary bile to help digest any food. I had no stones. The HIDA...
  2. cyclinglady
    Hi! First, you should make sure your celiac disease is not actively flaring by getting repeat serological testing (e.g. TTG And DGP tests). You should also be checked for vitamin deficiencies. See the list for recommended follow-up care: https://celiac.org/about-celiac-disease/treatment-and-follow-up/ Have you had your thyroid checked recently...
  3. cyclinglady
    I am sorry that your daughter is ill. I am glad you were able to get a diagnosis and that she is on her way to recovery. Recovery does take time. Most celiacs report taking a year or longer to heal. Why? The gluten free diet has a steep learning curve. Also, most celiacs have food intolerances and allergies. Some are common like lactose intolerance...
  4. cyclinglady
    No, wine will not cause a reaction (celiac flare up). But think about inflammation and missing villi in the small intestine. Alcohol can be hard on a damaged gut. Experiment and see how you feel. I can drink now, but not when I was first diagnosed.
  5. cyclinglady
    You are right! I was definitely wrong. I went with the beer example. Why? When I went into the corporate sites, I had to disclose my date of birth! What? I refused. Are you allowed to order product on those sites? Well, let’s say I made up a year....1943 and it rejected me. But again, maybe I forgot to add a zero in front of my birth month. ...
  6. cyclinglady
    @Hellegeist I am glad that you healed and are well on your non-processed foods diet which I also follow and encourage. But I still disagree that there are gluten cross reactors. Maybe, we are just mis-communicating on word definitions. For celiac disease, only gluten (wheat, barley and rye) can trigger a celiac disease reaction. The exception being...
  7. cyclinglady
    Ever try to sue a big company? It is not easy. You better have a huge legal staff, because they do. Imagine trying to prove that a product actually cause a celiac flare-up. I can not. I take that back. Maybe, if you can get Erin Brockovich. ?
  8. cyclinglady
    Nope. I would not drink it. These products are not under the regulation of the US FDA and legally do not need to meet the gluten free guidelines. They are under the Bureau of Alcohol and Tobacco. The same goes for USDA products, though this government branch does a good job of following FDA guidelines. https://celiac.org/about-the-foundation/featured...
  9. cyclinglady
    Why would you take advice about celiac disease from a chiropractor instead of a Gastroenterologist who researches celiac disease? Cross reactors are a myth when it comes to healing from celiac disease. Read my response to your link as there is no sense repeating it. By the way, do you even have celiac disease? No offense, but you are a new...
  10. cyclinglady
    Why would you follow a diet that was recommended by a chiropractor and not a Gastroenterologist who specializes in celiac disease? Cross reactors are a myth in terms of activating celiac disease. I consume copious amounts of egg, chocolate, coffee, dairy, nightshades, corn, etc. and repeat biopsies via endoscopy revealed a small intestine healed...
  11. cyclinglady
    Celiac Disease falls under the umbrella of hypersensitivity. There are four types and they can be interrelated. This Wiki description is very simple: https://en.m.wikipedia.org/wiki/Hypersensitivity For me, when I am exposed to gluten, my immune system ramps up. Everything goes crazy. All three of of autoimmune disorders flare up. Mast cells...
  12. cyclinglady
    Taking iron? What were your ferritin levels? Are you actually anemic? If so, you should reduce your exercise routine until you are no longer anemic. Anemia can cause heart failure. https://www.mayoclinic.org/diseases-conditions/anemia/symptoms-causes/syc-20351360 I get trying to keep in shape, but this is the time to let your body heal. ...
  13. cyclinglady
    I do not have issues with nightshades. Best to keep a food/symptom journal to help you determine food intolerances and minor allergies (allergy or food intolerance testing is 50-50 (accuracy) at best: https://www.aaaai.org/conditions-and-treatments/library/allergy-library/IgG-food-test Need more calories? Consume plenty of fat! The AIP...
  14. cyclinglady
    For me, a formal diagnosis gave me the power to adhere to a life-long diet. It also has insured excellent healthcare. My doctors provide follow-up celiac disease care. I do not worry about going to jail and not being able to get food. My husband went gluten-free 12 years before my diagnosis. He will be the first to tell you that I have received...
  15. cyclinglady
    I think GFinDC left this out. Consume gluten daily for 2 to 4 weeks before the endoscopy. This is imperative! If your endoscopy is scheduled out for a few months out, take the time to consume gluten daily and insist on a repeat antibodies test (full panel) on the day of the endoscopy or just a day before or after. Please research a gluten challenge...
  16. cyclinglady
    Back in the day, oats were banned from the diet as some celiacs reacted to them. Cross contamination in the fields, distribution and manufacturing was the main culprit, but some celiacs react to oats no matter what. Today some oats are grown in dedicated fields far away from wheat fields. Some celiacs do well with those purity oats. Then not too long...
  17. cyclinglady
    I could have sworn my little teen niece had celiac disease like me. Except it was firmly ruled out. She went through 4 GIs. The last ordered a pill camera. They found damage from Crohn’s Disease out of the reach of both scopes. Why share this? You just can not make a diagnosis based on symptoms alone. There are over 200 symptoms for celiac disease t...
  18. cyclinglady
    Unfortunately, I am allergic to most OTC pain medications (not a gluten thing). I just tough it out. I do buy Kirkland ibuprofen marked gluten-free for my daughter who does not have celiac disease (tested twice). Consider subscribing to the Gluten Free Watchdog. She actually tests products and medications. I am a subscriber. It is like a Consumer...
  19. cyclinglady
    We are not doctors and can not diagnose you. There are over 200 symptoms attributed to celiac disease and those symptoms can Be the same for other illnesses. If you suspect you have celiac disease, talk to your doctor about getting tested. Learn more: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  20. cyclinglady
    Most members report taking a year to heal. Why? The learning curve to the diet is steep and celiac disease is systemic. It can affect many different organ systems bones, joints, liver, gallbladder, etc.) While it is good that you feel much better on the diet, you should give it more time. Did you have any celiac disease testing at all? I ask because...
  21. cyclinglady
    Many other autoimmune disorders, parasitic, bacterial or fungal infections, or cancer can have the same symptoms of celiac disease. That is why getting tested is the only way to know for sure. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  22. cyclinglady
    Maybe you did not get the entire celiac panel which includes not just the typical screening TTG (IgA, IgG) , but the DGP (IgA, IgG) and EMA [IgA) tests, along with an Immunoglobulin A (IgA) control test (this validates the celiac IgA tests). I would hate for you to do a gluten challenge and not get all the tests. Why? I test positive to only the DGP IgA...
  23. cyclinglady
    @ncsc Good point. NSAIDS (e.g. aspirin and ibuprofen) can cause stomach upset for some celiacs, regardless of whether it contains gluten or not. I am actually allergic to NSAIDS and even acetaminophen. I get swelling and hives all the way up to throat swelling. It is not a gluten thing, but a Mast Cell issue. Related to celiac disease? ...
  24. cyclinglady
    I suppose so. Have you searched the forum? I think I recall this topic coming up several times. I did read this article (though I bet you have researched this topic throughly). https://www.shape.com/lifestyle/mind-and-body/do-you-smell-10-sneaky-sources-body-odor?
  25. cyclinglady
    Sure, you could have celiac disease. I was the first diagnosed in my family. Anemia was my main symptom. The only way to know for sure is to get tested. The catch? You have to be consuming gluten daily for at least 6 to 12 weeks and it sounds like you are gluten free now. Consider staying the gluten-free course and get tested later after this...
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