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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hi! I can not help with any of the products you asked about, but I urge you to get tested for celiac disease before going gluten free. All celiac disease testing requires you to be on a full gluten diet.
  2. cyclinglady
    @knitty kitty I am diagnosed with Thalassemia. Besides all the bloodwork, you can have a genetic test. This is critical information to know. The Thalassemia trait can be passed on to your children. Screening should be done prior to having children. A severe version (traits from both parents) can cause death or life long blood transfusions for infants...
  3. cyclinglady
    Welcome! No doctors here. I strongly suggest seeing or consulting with a doctor. 😊. Your symptom could be due to just about anything! But if you suspect celiac disease, the only way to know is to get tested.
  4. cyclinglady
    Any PCP can run the celiac disease antibodies tests. But go in armed with your symptoms and print off the celiac disease antibodies tests. Most older doctors think of the classic textbook celiac disease cases of malnourished children who survived on bananas. You can be overweight, elderly, have constipation, another autoimmune disorder — the symptom l...
  5. cyclinglady
    @Minty Oh sorry, I misunderstood. I get so riled up when I hear an IBS diagnosis. I had a GI send me off for bio-feed back treatments back in the 1980s. Nice, but it did not solve the root cause of my problem which eventually turned out to be celiac disease. I had a repeat endoscopy five years after my diagnosis which showed complete...
  6. cyclinglady
    Welcome! When I was much younger, I was diagnosed with IBS. Told it was due to stress. But it really was celiac disease all along. I test positive to only the DGP IgA. If my doctor had not run the full celiac panel, my diagnosis would have been missed — again. Bopsies via endoscopy confirmed my diagnosis. Did you get an endoscopy? While y...
  7. cyclinglady
    The most important thing in life is good health. For you, next is probably your studies. If gluten free helps your joint pain, then I would considering going gluten free until you finish your education. There is a condition called non-celiac gluten sensitivity. There just is not a test for it. It is usually diagnosed by eliminating celiac disease and...
  8. cyclinglady
    Yes, celiac disease is genetic. What actually turns on the genes is unknown and about 30 % of the population has the genes that could develop into celiac disease. But even though you are Lisinopril, you do not think this drug caused you to develop celiac disease, do you? If so, are your kids on this drug? I think the OP is trying to figure out...
  9. cyclinglady
    Wow! It makes me feel cooler. Over 100 degrees here in roasting Southern California. Worrying about all the fires!
  10. cyclinglady
    Yikes! You are right. That is what I get from using so many acronyms. The OP, Crystal is taking an ACE inhibitor, Lisinopril. But have you ever heard that it causes celiac disease? I have just heard of Olmesartan causing villi damage.
  11. cyclinglady
    Sorry, but where is the proof? It can cause celiac-like damage, but not actual celiac disease. Once off the medication, healing occurs. Of course there could be the possibility that you already had undiagnosed celiac disease when you went on this drug. Many things (more than a dozen) can cause sprue damage to the small intestine: https://www.cureceliacdisease...
  12. cyclinglady
    Do you mean because of malabsorption (from active celiac disease), you were better able to manage your blood sugar? Or did you mean by treating your celiac disease with a gluten free diet, your blood sugar numbers have improved. Congrats on being in the 5% club!
  13. cyclinglady
    Some of the ACE inhibitors caused villi damage. The drug caused damage that looked like (mimicked) celiac disease (no positive antibodies tests, but it was not celiac disease. Small intestinal damage resolved once the patients stopped using the drugs. Ask your pharmacist if your current medication is safe. Read all the side effects and talk to your...
  14. cyclinglady
    What article? Please cite it (provide a link). Porcine thyroid products are being recalled lately due to raw material supply issues. This has pretty much impact all non-synthetic thyroid medications. Thank you pandemic! If you are having a celiac disease reaction, report it to the FDA. It could be that you are reacting to the inactive ingredients...
  15. cyclinglady
    Yes, you should be worried. Even if asymptomatic, consuming gluten will damage your gut. Ask your doctor for follow-up testing to determine if you are adhering to the diet.
  16. cyclinglady
    All celiac disease testing requires you to be on a full gluten diet.
  17. cyclinglady
    Diagnosed and treated celiac disease patients are at no greater risk than the general population. There are exceptions. For example, if you have celiac disease and are 80 years old, you may be at greater risk of dying from COVID.
  18. cyclinglady
    A HIDA scan checks for a non-functioning gallbladder. The other two tests do not. I never had stones. Everything always looked good until I had a HIDA scan. It did not squeeze properly making it pretty difficult to digest fats.
  19. cyclinglady
    You should really get to a Gastroenterologist and get screened for celiac disease (blood tests to start) and checked for other illnesses like Crohn’s or a non-functioning gallbladder. It can be impossible to diagnose based on symptoms alone because they often overlap. But it could very well be autoimmune disease. The elevated white blood cell count u...
  20. cyclinglady
    I am sorry about you and your husband dealing with dementia. Just consuming dishwashing detergent is bad for you!
  21. cyclinglady
    There is no special celiac antibodies test — just the usual ones offered. The article just states that if your celiac antibody results are very high, you can probably skip the endoscopy. Ask your doctor to get tested.
  22. cyclinglady
    Three Bakers, one of Celicac.com sponsors (who help make this forum possible), has a rye version my hubby likes. Tastes like rye, but no real rye.
  23. cyclinglady
    I imagine it is common. What other disease requires the patient to completely manage their treatment? It is stressful! With time, it should resolve. Do you feel safe at home? Can you let down your guard? If not, maybe make your house gluten free. It works for my family. There is nothing like feeling safe and relaxed when you can let down your guard...
  24. cyclinglady
    Ask the GI to repeat the celiac antibodies blood tests — all of them. This can help determine if her celiac disease is active. It sounds like she was positive on the blood tests, but her endoscopy failed to find damage because she had been gluten free. Once you develop one autoimmune, you can develop more. It might not even be active celiac d...
  25. cyclinglady
    Good luck. I have only been able to get a few of my family members tested. Further out, I have cousins who went gluten free before my diagnosis, they have told me that they have no desire to go back on gluten for over 6 weeks in order to get the blood test. Who can blame them? At least we gather and have gluten free holiday meals together! I my husband...
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