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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I think I tried to address your earlier question on another post. Symptoms can overlap in many illnesses. Celiac disease has over 200 symptoms. Dental issues and hair loss can be attributed to celiac disease. But so can things like hypothyroidism and Crohn’s. Treatment is different for each illness. I can not tell from the information you gave m...
  2. cyclinglady
    Have you had celiac disease follow-up testing? This includes running the antibodies testing again to see if your celiac disease is active or not? Running annual deficiencies tests is also recommended. Your thyroid should be checked as well. You could have something like alopecia as once you have one autoimmune disorder, you can develop more (I have three...
  3. cyclinglady
    Oh, the USA website says it contains barley malt powder. If you are gluten free, do not eat this. Gluten free means no wheat, barley or rye (and sometimes oats). https://www.lindtusa.com/wcsstore/LindtStorefrontAssetStore/Attachment/products/nutrition-information-SKU-467103D2C.pdf But individual labeling can be different. What does the label...
  4. cyclinglady
    How old was the gluten-free flour? Where was it stored? Flour can last for a year or longer if stored in the freezer. On the shelf, for a few months or what the package date says. Some grains, like brown rice, go rancid within months unlike white rice which has a long shelf life. What grains were in your gluten-free flour?
  5. cyclinglady
    A celiac disease diagnosis usually involves antibodies testing (blood) and an endoscopy to obtain small intestinal biopsies. About 35% of the population carries the genes that could develop into celiac disease but only a few do. So, genetic testing is used to only rule out celiac disease, it is not used to diagnose it. A lot of people have the celiac genes...
  6. cyclinglady
    The only way to know if you have celiac disease is to get tested. Learn more: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  7. cyclinglady
    I just use Dove Soap. My teen uses some tea tree oil soap clearly labeled gluten free to help with oil. I used to buy Cerave, but now use a Walmart knock-off (made in Canada) to save money. It is a body lotion, but really skin is skin. Maybe a little thinner on the face, but still skin. Cerave used to have a gluten free facial sunscreen, but not...
  8. cyclinglady
    Alas, I have nut allergies! ?
  9. cyclinglady
    You can check via online: 1) the Better Business Bureau 2) confirm a company’s business license and their liability insurance (In case of injury to their crew) to prevent a lean on your house. 3) ask about their use of subcontractors and their liability. 4) customer reviews (know that some people complain about everything!) and o...
  10. cyclinglady
    Just eat naturally gluten-free foods like meats, fish, veggies, fruits, nuts, alternative grains (e.g. rice), dairy, eggs, the list is long. All available at a regular grocery store. Or am I missing something?
  11. cyclinglady
    Baking is good for the soul, but not for blood sugar — at least for me!
  12. cyclinglady
    Hey KK! I started to write this earlier today, but was distracted. It looks like you made your decision. So that is good news. What I wrote earlier: “I am sorry that your roof is leaking. My parents have a metal roof and they live in the South. It is supposed to last over 60 years compared to 15 to 20 years for asphalt. It is a...
  13. cyclinglady
    Celiac disease, as you know is autoimmune that mainly causes damage to the small intestine, but is also systemic. It can affect any organ in the body. Celiac disease is also under the umbrella of hypersensitivity (immune system). It is one of four types and you can have more than one type. This Wiki explanation is simple and to the point. You can...
  14. cyclinglady
    I am sorry that you are ill. Have you had repeat celiac antibodies testing? That can help determine if active celiac disease is the root cause of your symptoms. Antibodies should be on a downward trend at the very least. It is not uncommon to expect a long recovery. Most celiacs report on this forum that it takes a year or longer to heal...
  15. cyclinglady
    If you do end up getting an endoscopy, you should follow the preparation instructions. They only biopsy the upper end of the small intestine just where the stomach empties into it. I think you are confused with a colonoscopy. If you get that test, ask your GI for additional preparation time. You will just have to consume a liquid diet (jello, broth, etc...
  16. cyclinglady
    That looks yummy. I baked cranberry orange scones this afternoon. They were delicious. I should not be baking at all, but my kid is home studying online. Need to keep up her spirits! ?
  17. cyclinglady
    Bette Hagman was around when I started baking gluten free. Now, we can buy “ cup for cup” blends making it much easier. Here is a blast from the past: https://food.unl.edu/documents/GFbaking.pdf Garbanzo flour tastes like — beans. Years ago, I used to have to mask it with spices and dried fruit (like cranberry orange coconut cookies). Coul...
  18. cyclinglady
    I spent the day yesterday sewing facial masks. I really detest sewing, but there is a need. I am so glad that I “hoarded” a couple of bins of sewing supplies. There was no need to go out. I first used up all the scraps that I saved (I always thought they would be put to good use) as they already had been washed and shrunk. A little more time intensive, bu...
  19. cyclinglady
    Wow, Seth. I am sorry to hear about your issues with CHS. I have never heard of it. I did a quick google and found this heart breaking story: https://www.medicalnewstoday.com/articles/326357 I wonder why no one talks about this side effect. Here in California, it is legal to use it. I bet most people think it is safe. ? Not sure if...
  20. cyclinglady
    Did you know that the initial guidelines of 20 ppm were based on about 59 study participants? That is a pretty small study. While you may be asymptomatic, many celiacs who have Dermatitis Herpetiformis, report that they can not tolerate 20 ppm. Their reaction (rash) is very visible. How are your antibody levels? Have they normalized?
  21. cyclinglady
    This was a super tiny, tiny study. All celiac disease experts still recommend to be very careful and to continue to follow the existing standard gluten-free guidelines. https://www.glutenfreeliving.com/blog/video-world-renowned-celiac-expert-urges-caution-after-cross-contamination-study/
  22. cyclinglady
    Symptoms or no symptoms, if a celiac consumes gluten, it triggers an autoimmune reaction that destroys the small intestine. When I was diagnosed, I was shocked too. Anemia was my main symptom at the time of It never addressed because I had a genetic anemia as well. We determined that I had had celiac disease for a long time. As a result, I developed...
  23. cyclinglady
    Hi! How nice that you are supporting your daughter. ? I do not think you can eliminate a celiac disease diagnosis without having the entire panel. That includes the DGP and EMA tests. Why? Because I personally have never had a positive on the TTG or EMA which has been done many times over the last six years. I test positive to only the DGP...
  24. cyclinglady
    I wonder if those oats are grown in dedicated fields or are mechanically sorted regular oats? I do know that Bob’s does a good testing, but mechanically sorted oats have been controversial over the last few years. Maybe just a bad batch? You should let the manufacturer know.
  25. cyclinglady
    Thanks! I guess my “try to avoid processed foods” strategy works best for me. I do not buy any “formed” food. Who knows? I personally have never seen this on label. I do know you can buy it on the internet. I am never ordering a bacon wrapped filet mignon again in a restaurant or as a prepackaged food. I did send a email to The Gluten Free Wa...
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