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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I think I am not getting your point. I agree that Microbial transglutaminase is a concern. I have not been able to find out which products use this food additive besides, gluing pieces of meat. I think that Europe has banned its use or it must at least be identified. Have you learned anything about specific products? I would like to see some...
  2. cyclinglady
    And wasn’t I lucky to have been diagnosed? Yes, I share that I pretty much only had anemia when I was diagnosed. At the time, I did not have any obvious GI issues. Isn’t is amazing how this disease can wax and wane and adapt over the years? I thought I had addressed those GI issues by avoiding dairy, garlic, onions, mushrooms and nuts (with the help of ...
  3. cyclinglady
    Welcome to the forum! Yes, it is possible for reflux to cause shortness of breath. It is possible that celiac disease could be the culprit. It is possible that you have developed asthma (allergy season is here, at least in my area). It is possible that you have an additional autoimmune disorder or illness in addition to celiac disease. It is possible...
  4. cyclinglady
    If sensitive, I would only purchased certified gluten-free cereals. And let me share that not everything is due to a gluten exposure. Five years after my diagnosis, I was diagnosed with Autoimmune Gastritis after a repeat endoscopy. My small intestine healed (celiac disease in remission) but my body is now going after my stomach (already wasted my...
  5. cyclinglady
    I found that I feel better avoiding or reducing gluten-free grains in my diet. It also helps my blood sugar. I save my grain allotment for home baked goods (I avoid Xanthan Gum found in many commercial gluten-free grains which bothers me). Sadly, I am baking more because my daughter is home from university due to COVID-19. Today, I am serving my...
  6. cyclinglady
    @Natalie is fed up Ranitidine (aka Zantac) has been recalled! https://www.fda.gov/news-events/press-announcements/fda-requests-removal-all-ranitidine-products-zantac-market
  7. cyclinglady
    All celiac disease testing does require you to be on a full gluten diet. I am not sure if your results could be considered valid. You are right on the border. If I recall, in as little as two weeks the small intestine can heal on a strict gluten free diet. But it usually takes much longer for serum antibodies to reduce (up to a year). Some celiacs...
  8. cyclinglady
    Thanks. ?
  9. cyclinglady
    Your doctor prescribed chloroquine as a preventative for asthma or COVID-19?
  10. cyclinglady
    Yes, a lot of newly diagnosed celiacs are malnourished and could be deficient in minerals and vitamins. They should be tested. Celiacs who have other health issues, can also have deficiencies. Celiacs who do not follow the gluten-free diet carefully, can be malnourished. And finally, celiacs who consume a diet full of candy and Doritos (the Standard American...
  11. cyclinglady
    Hi! Celiac disease has over 200 symptoms attributed to it. These same symptoms often overlap with other autoimmune disorders or illnesses. The only way to know for sure is to get tested (antibodies). Consider a walk-in lab or an at-home test kit to start your diagnostic process, especially now with the COVID-19 pandemic. Your NP probably marks...
  12. cyclinglady
    I assume your thyroid is okay? Autoimmune thyroiditis is commonly linked to celiac disease. Same goes for alopecia (autoimmune hairless). Is your celiac disease under control? When was your last celiac antibodies testing or a vitamin/mineral panel? What were the results?
  13. cyclinglady
    Maybe. The body can do a great job of adapting. It happened to me. I was diagnosed when I went for a routine colonoscopy (yep, I am over 50). My consulting GI noticed that I has life long anemia (actually have two types of anemia). He ordered a celiac blood test panel, endoscopy, and the rest is history. I had no GI issues with gluten....
  14. cyclinglady
    I agree!
  15. cyclinglady
    A good start to researching something that has never been researched, but I personally am more cautious like the Gluten Free Watchdog. More studies are needed. https://www.glutenfreewatchdog.org/news/gluten-free-watchdog-comment-on-the-recent-gluten-cross-contact-study-preparation-of-gluten-free-foods-alongside-gluten-containing-food-may-not-always...
  16. cyclinglady
    I am not a doctor, but from what I read, COVID-19 cause people lose their sense of smell or taste. It sounds like you are tasting “metallic”. I can only share my story. I have celiac disease, Hashimoto’s and Autoimmune Gastritis. While my small intestine has healed (repeat endoscopy) my Gastritis and Hashimoto’s have not. Like many with autoimm...
  17. cyclinglady
    Hi! Dermatitis Herpetiformis (DH) is celiac disease which manifests in the skin. It looks like so many rashes, that it must be skin biopsied for a diagnosis or be diagnosed with celiac disease which starts with a blood test. While I do not have celiac disease, I know that DH is usually bilateral (both sides of the body). It is insanely itchy. ...
  18. cyclinglady
    It is me again! About testing for vitamin deficiencies. Very important! It is the standard of care for celiacs. My PCP orders an annual panel at my annual check-up. https://www.beyondceliac.org/research-news/new-celiac-disease-guidelines-emphasize-follow-up-care/ Take time to heal, not just your gut, but the rest of you too. I went...
  19. cyclinglady
    I am assuming the TTG result was still above the normal range despite your daughter being on a gluten free diet. How long has she been gluten free? It can take up to a year or longer for TTG levels to normalize. Why? Many reasons, but the main one is mastering the gluten free diet. Expect to make mistakes. It takes time to really get the diet down....
  20. cyclinglady
    Some celiacs are lactose intolerant due to villi damage (villi tips release enzymes to digest lactose). A huge chunk of the world’s population are lactose intolerant due to genetics. If lucky, a healed celiac can tolerate lactose. I was lactose intolerant. Now healed, I can consume dairy. To experiment, try hard cheeses or yogurt. Kraft cheese s...
  21. cyclinglady
    No way would I eat these TJ burgers, especially when we are experiencing the COVID-19 crisis. Who wants a celiac flare-up and the virus? ?
  22. cyclinglady
    I am sorry that your grandson is ill. A newly diagnosed celiac has a damaged small intestine. Digesting anything can hurt. I would suggest a simple diet of plain foods like plain meats, fish, veggies, fruit, rice. Avoid processed foods. If you do use them, look for those with only a few ingredients that you would have in your own pantry. That...
  23. cyclinglady
    Please do not discount Crohn’s just because you see improvement on a gluten free diet. The Autoimmune Paleo Diet is also gluten free and is prescribed for any autoimmune disorder and was tested on Ulcerative Colitis and Crohn’s patients with great success (though a tiny study). Remember, that autoimmune disorders are systemic. They can affect any part of ...
  24. cyclinglady
    Things will get better. Just give the diet time. As far as your injuries go. Take it easy. Soon, you will get back to normal. Listen to your body. This is a time to baby yourself. Get rest and build up your immune system. If you do not? Just wait until you are 60. You will regret being so impatient! This is from a lady who still rides her bike...
  25. cyclinglady
    Hi Gemini! I also struggled with hives. Each time a hidden gluten exposure triggered it (dang, I never even ate a gluten donut or crust sourdough bread to trigger it). Is it related to celiac disease? Who knows? But I personally think that autoimmune issues are all related. I have Autoimmune Gastritis, celiac disease and Hashimoto’s. Any of t...
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