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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    It is possible. Anything is possible, but I think the likelihood is very low. Be sure to confirm which celiac tests were given and if you are Immunoglobulin A deficient. If you look at most celiac disease diagnostic algorithms, they will just use the TTG test. But it does not catch all celiacs.
  2. cyclinglady
    You have been gluten free for a while. Your gut has probably healed and your immune response may be slow to activate. It can take days to activate. I do know that celiac disease is like a chameleon and symptoms can change. Maybe the gluten cutter supplement helped too. Did you take them before your stomach emptied? Please report back and...
  3. cyclinglady
    @docaz We do not even know if Bobbi 73 is actually seronegative. He might not have had the complete celiac panel. If my GI had not ordered the complete panel, my diagnosis might have been missed. What a doctor posts on a patient portal is often in layman’s terms. At this point we do not have all the information at hand. I am excited t...
  4. cyclinglady
    True, but already the OP is feeling better on a gluten free diet. That seems very promising. If other lab tests improve, then this can help to solidify the diagnosis. Genetic testing can also help with the diagnosis as well.
  5. cyclinglady
    That seems like a slam dunk to me! I was lucky, with time, my lactose intolerance went away (but not other intolerances). A huge chunk of the population is genetically predisposed to be lactose intolerant. Then I was iron deficient. That resolved within a few months of the gluten-free diet and remained resolved without supplementation.
  6. cyclinglady
    Constipation, headaches, and migraines are commonly associated with celiac disease. But they are symptoms of other illnesses too. If you are questioning your diagnosis, consider a gluten challenge, but first consult with a doctor. People can get pretty sick on a challenge. If bad, the GI can order an endoscopy right away. How are your kids...
  7. cyclinglady
    That seems pretty clear to me that there was damage consistent with celiac disease (I am not a doctor), with an increase in the lymphocytes and villi damage. But other things can cause damage. You could easily be seronegative or be like me, I test positive to only the DGP IgA. No positives ever on the TTG or EMA. But my diagnosis was a little clearer...
  8. cyclinglady
    @docaz Great point about what the biopsies actually reveal. My family keeps records of all our medical history going back more than 25 years. It is our right to our records and it has been so helpful when changing doctors, practices, etc.
  9. cyclinglady
    Yep. I have smaller clothes stored for the times I have been exposed to gluten. I can drop 20 pounds fast. It is my goal for it to never happen again. In my house, I am the gluten police. I am a bit paranoid, but seriously my last gluten exposure caused me to pass out from the pain (usually does), and I developed Chronic Autoimmune (AI) hives. Almost...
  10. cyclinglady
    Sure it is possible to have positive biopsies and no positives on the celiac blood panel for many reasons. 1. You were too gluten light or gluten free 2. You did not get the complete panel which includes the DGP, EMA and TTG 3. About 10% of celiacs are seronegative The proof is in the biopsies and resolution of symptoms on the gluten...
  11. cyclinglady
    A gluten exposure from hair? I personally do not think that is possible unless you were actually eating hair products that contained gluten and who would do that? Did you swallow shampoo? Let’s say you used some hair gel that has a little gluten and the wind blew your hair into your mouth. You are not going to get enough gluten to cause a flare u...
  12. cyclinglady
    Well, it could be that your celiac disease is active. This seems pretty logical considering that it had lowered to 25 before. Take a serious look at your diet, supplements, medications, kitchen practices, eating out — anything that you can swallow. Consider the Fasano diet. I trialed that diet for a few months. It did not bring down my very elevated D...
  13. cyclinglady
    Your reading about how celiac disease is diagnosed is correct. Normally, you should probably consult with a GI when you get a positive on a celiac test. It is just slightly positive, so the test may be a false positive. Consider getting a second opinion or a GI consult, considering you were gluten light. You might need to do a gluten challenge and then...
  14. cyclinglady
    I use McCormick single (not mixed) spices. I have used nuts.com and Kirkland peanuts (certified). There are other brands. Let’s hope others chime in.
  15. cyclinglady
    I like the fasting suggestion. Even a 12 fast (overnight) can give your GI tract a much needed break.
  16. cyclinglady
    Relax! Most of us have been in your shoes. You will get better! Gluten triggers an autoimmune reaction in those with celiac disease (like lupus or MS but the trigger is unknown). How long that reaction takes to calm down is up to the individual. It could be a week, weeks or months. But each day does get better. The reason why you...
  17. cyclinglady
    My diagnosis was caught by a GI. I went for a routine consult for a colonoscopy because, yes, I was over 50 and all my friends were getting them. I did have anemia, but I also have a genetic anemia which masked my chronic iron-deficiency anemia and the old “you just have heavy periods” response. Thankfully, my GI saw this in my charts, along with Has...
  18. cyclinglady
    Yeah, despite my going to five pharmacies trying to find a gluten-free antibiotic, I think it was the antibiotic that got me. I choose one off the gluten-free pharmacist list only to find that my medication was not manufactured in Spain, but now Romania. Further research this past year, I have found that ALL antibiotics (generics) are made in China or are...
  19. cyclinglady
    Time. It takes time to heal. Time to really master the gluten free diet. Try to avoid going out to eat (it is the only time I have ever had a gluten exposure) and focus on real non-processed foods. Keep a food journal. You might have other food intolerances. Lactose intolerance is very common with celiacs. My lactose intolerance resolved with healing...
  20. cyclinglady
    I am sorry that you are going through this! Your stool? Maybe due to your medications (allergies or side effects). I assume you verified that everything is gluten free. Cysts? I just had two removed from my tonsils. Yep, super weird location. Super rare! Why? No one knows! You probably heard my story about my tooth infection...
  21. cyclinglady
    Celiac disease is like a chameleon. Symptoms wax and wane. But do not be fooled into thinking damage is not occurring. While cancer is a higher risk with untreated celiac disease (aka eating gluten), I think developing additional autoimmune disorders is much higher (i.e. Hashimoto’s, Type 1 diabetes (yes, adults can develop it), lupus, rheumatoid arthritis, ...
  22. cyclinglady
    H Tammy! I did not have this issue, but members have reported or discussed it. Just type in lymph nodes in the search box located at the top right of the page. You will find pages of comments. ?
  23. cyclinglady
    Hey, Jane Anderson wrote about peanut butter. She has Dermatitis Herpetiformis, so she has to be extra careful (you can trust her). https://www.verywellfit.com/gluten-free-peanut-butter-562820
  24. cyclinglady
    One way for you to determine if the tortillas are really a gluten reaction is for you to get repeat antibodies testing. This can help rule out a celiac flare up. The Gluten Free Watchdog has tested these tortillas. They are under 5 ppm. Again, this product is highly processed (20+ ingredients) that you could be reacting to. Maybe you are super sensitive...
  25. cyclinglady
    (Sure 1to 5 lb. small bags are available. Cal Rose is the rice. There are many brands, but here is an example on Target: https://www.target.com/p/botan-calrose-rice-5-lbs/-/A-13478836
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