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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. All great advice. I would call your doctor, because you are approach8 g six months. You should get those antibodies tests again to see if they are on a downward tread. If still very high or higher, you could be getting gluten into your diet. Do not eat oats, avoid processed foods as much as you can, or do not go out to eat until you see improvement...
  2. Welcome to the forum! It is true. All those things you listed (miscarriage, kids not thriving at birth, mental illness, obesity, osteoporosis, infertility) have been linked to untreated celiac disease. Researchers have identified the very genes that could turn into celiac disease. What triggers celiac disease initially is unknown. Some...
  3. Consider a rotational diet. Either a seven or four day diet. The goal is to not eat the same thing every day. You can Google how to do it. I was the opposite. My antibodies were high but my repeat endoscopy showed a healed small intestine. But I was diagnosed with another autoimmune disease (have three). So, not everything is due to celiac...
  4. What’s articles are you referencing? Armour Thyroid does not contain gluten. I have taken it for over 20 years and my small intestine has healed. You could have an intolerance to any of the inactive ingredients. But it should not be a reaction causing celiac disease to flare.
  5. This is important. Your celiac blood tests have normalized. Either your celiac disease is active and the blood tests are not reflective of that, you have developed a new food intolerance or you might have another autoimmune disease or illness. If things do not improve soon, your GI just might have to order another endoscopy and take a look.
  6. Read this. Those IgG tests are not accurate per several medical groups: “Due to the lack of evidence to support its use, many organizations, including the American Academy of Allergy, Asthma & Immunology, the Canadian Society of Allergy and Clinical Immunology and the European Academy of Allergy and Clinical Immunology have recommended against u...
  7. Yes, 5 ppm or below. That is as low as the equipment can detect. So, it can be zero.
  8. Ah, but.... ”Those with antibody levels lower than ten times the normal range will still require an endoscopy before the diagnosis can be confirmed.” An endoscopy is still valuable per the referenced article.
  9. Stuck song syndrome! You can not get that catchy phrase out of your head. MMMMMY Sharona! Danced to that song a lot!
  10. My ballerina little niece had a fatty liver. She gave up soft drinks (soda pop) and cut back in all the sweets she consumed. The next year, her liver was normal. She does not drink alcohol. Look to how much sugars (whether natural or processed like corn syrup) you are consuming. Research this topic. Some celiacs are seronegative (about 10...
  11. Eat dinner. Who says you can not have tacos or burger for breakfast? This is how diabetes starts. 😆
  12. A CT scan and an MRI does not catch everything. My niece was diagnosed with Crohn’s with a pill camera and after seeing four GIs and had almost every test under the sun, except that pill camera. As far as your symptoms improving, celiac disease is like a chameleon. Symptoms ebb and flow. Long term you could be doing damage by going back on gluten.
  13. I agree that inflammation may be a factor (diet which contributes to insulin resistance and leads to obesity). I also agree that if you have autoimmune disease, TD2 may need different treatment options as indicated in the study: “Indeed, T2D patients with a significant autoimmune component: (i) need insulin earlier during disease progression, (ii) ...
  14. Glad for you that metformin works for you. Bet you can get into the 5% club if you reduce your carbs. Carbs is what has driven our obesity crisis. You know, cut out the fat....but eat more grains that was pushed in the 1980s. But you do the research.
  15. Consider reading through the DH section of the forum. Look to members Ravenwoodglass, SquirmingItch or Theapprehensiveengineer. These ladies have DH and are wise! Why reinvent the wheel. Iodine does seem to contribute to DH. Remember DH has a mind of its own. Those antibodies are in the skin. It takes a lot more time for them to resolve vs antibodies...
  16. Gluttony will get you. Three apples? Moderation, please!
  17. Type 2 is not autoimmune. But are you sure you have type 2? Many doctors assume type 2 if you are an adult. They still think that TD1 is reserved for kids! But you can develop TD1 at anytime. Your doctor should check your antibodies for diabetes (e.g. GAD antibodies). But you could be a type 2. For a while, we thought that I had TD1. I am thin and...
  18. Get the GI consult. In the meantime, ask your primary for a complete celiac disease antibodies panel which includes the TTG, DGP and EMA tests. Do not have your kids go gluten free until after the GI consult. try to find a celiac savvy GI. Look for a local celiac disease research center in your area. They can do referrals and you can see who is in your...
  19. Welcome! Yes, you can be asymptomatic and still have celiac disease. I had only anemia when I was diagnosed. No GI problems. I was shocked. Two months after my diagnosis, I fractured a few vertebrae — osteoporosis as a result of undiagnosed celiac disease.
  20. Yes. We have planned vacations around them.
  21. Congratulations! I am glad you figure it out. All my pets are gluten free too.
  22. Welcome! Relax! Well, try to anyway as celiac disease does cause anxiety. It is systemic and can affect the brain! But no worries, you can heal on a gluten free diet. I must warn you, it takes time. Time to master the diet, identify any other additional intolerances you may have and address other concurrent illnesses (like I had osteoporosis...
  23. Welcome to the forum! have you considered getting that celiac disease test again? See if your antibodies have gone down into the normal range? It might be worth seeing a GI and getting that HIDA scan. My scan revealed 0% functionality and it ended up getting infected. I never had stones. So, I urge you to get it checked out.
  24. I found this: https://news.northwestern.edu/stories/2019/10/new-treatment-may-reverse-celiac-disease/ The exciting news is that if they figure out how to stop the immune process, people who have other autoimmune disease (MS, Type 1 diabetes) or peanut allergies would be helped.
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