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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Just make sure you are consuming 1 slice of bread or equivalent daily in order for celiac disease testing to work.
  2. cyclinglady
    I think it might be related more to gastric issues and not perimenopause unless it is migraine-related (perimenopause) and can cause nausea.
  3. cyclinglady
    We have had members say they have experienced this. Best to avoid gluten. Hang in there!
  4. cyclinglady
    Fresh green beans are just fine. Wash them like you would with any raw agricultural products (like lettuce or broccoli). Dried beans can have wheat in them. Rare, but possible. So, put a cup of dried beans on a cookie sheet, and sort them. We have always done this because the USDA allows other things in raw foods like sticks and rocks. Who wants to...
  5. cyclinglady
    Are you referring to the corn tortillas? I only buy the traditional corn (which is certified) because the gluten free version has lots of ingredients that could make someone sick. What is all that stuff? For example, I still can not tolerate Xanthan Gum. Just bought some new WOW certified gluten free cookies at Target. The lemon ones are delicious...
  6. cyclinglady
    Good to know! I confess, I buy 25 pound bags of California Japanese rice. It has a very long shelf life. When the big earthquake hits we will be cooking a lot of rice on the camp stove. ?
  7. cyclinglady
    I test positive to only the DGP IgA when exposed to gluten, yet biopsies revealed Marsh Stage IIIB damage. When I was diagnosed, I was shocked because anemia was my only symptom. There were other little symptoms that I learn to deal with like a milk (lactose) intolerance (actually tested positive for milk allegories when young) and garlic/opinion intolerance...
  8. cyclinglady
    I use California grown rice and wash it well. We have cut back on grains in general for other health reasons. Thanks for the article.
  9. cyclinglady
    Wow! Thank you for sharing! Celiac disease intestinal damage can be missed during an endoscopy. I also have osteoporosis (fractures about three months after my celiac disease diagnosis). No improvements, but I am not worse and better yet — no more fractures.
  10. cyclinglady
    I wonder if your GI took biopsies. Celiac villi damage is microscopic. For example, my diagnosing GI just told me in the recovery room that everything looked good. Days later, the pathologist’s report indicated a Marsh Stage IIIB damage. I had celiac disease. I also have Autoimmune Thyroiditis (20+ years) and autoimmune Gastritis (2 years). My only k...
  11. cyclinglady
    Try researching the Autoimmune Paleo Diet. It can help you identify food intolerances and possibly heal. The AIP diet was tested at Scripps with Inflammatory Bowel Patients. It was a tiny, tiny, study, but patients achieved over 70% remission just with real food! Dates are incredibly high in sugar. Not sure if that is good for SIBO (and I would...
  12. cyclinglady
    Hi! Sorry no one had your exact symptoms. Do you have celiac disease? Celiac disease is an autoimmune disease that attacks the small intestine. Once destroyed digesting foods can be difficult because enzymes can not be released, etc. It takes time to master the gluten-free diet. I would suggest researching this topic more to make sure you...
  13. cyclinglady
    Sorry, but I am not familiar with those tests. They are not standard for celiac disease testing which does require you to be on a full gluten diet months before a blood draw or weeks before an endoscopy. Your symptoms could be celiac disease or even something like Crohn’s. Were those firmly ruled out by the GI? If your GI visit was years ago, c...
  14. cyclinglady
    Did you have any positives on the celiac blood tests? Small intestinal damage can be spotty since it is larger than the size of a tennis court! If you went on an elimination diet, you probably avoided foods that you had intolerances to. Maybe you ate healthier and did not feed your SIBO with foods bacteria love. Unless you find the root cause of...
  15. cyclinglady
    An endoscopy offers a benchmark of damage and to rule out concurrent illnesses (like H.pylori or SIBO). In the meantime, stay on a full gluten diet or your endoscopy results for celiac disease could be inconclusive. You want to avoid being in diagnostic limboland. Good luck!
  16. cyclinglady
    No matter how long you have had celiac disease, always read the labels. Products can change. I hope you recover fast.
  17. cyclinglady
    I had a friend who ended up being pregnant 20 years after her last child. She just though she was going through menopause and was gaining a “Meno Pot!” She did not go full term without figuring it out, but I recall she was like five months along. She delivered a healthy baby at age 46!
  18. cyclinglady
    Thank you for reporting back. I am sorry that you had to wait two years before getting a correct diagnosed (missed small intestinal damage during the first endoscopy). Glad the pill camera caught damage allowing for the second endoscopy. I am going to bookmark your post to show persistence in obtaining a diagnosis and the supporting fact that small...
  19. cyclinglady
    I agree. Clarification is needed.
  20. cyclinglady
    @faithjoy Interesting subject. Do you have celiac disease? https://www.healthline.com/health/pregnancy/cryptic-pregnancy https://m.youtube.com/watch?v=KSNLfuzJQGQ
  21. cyclinglady
    Ha! I get it. My local group has several very old members. I attended a few meetings, but it was not very productive. San Diego has a more active group. They collaborated last year and brought in Dr. Shelia Crowe (Head of GI Association) for a lecture along with Melissa Dennis, MS, RD, LDN who is out of the Celiac Center at Beth Israel in Boston...
  22. cyclinglady
    That result is either a positive on the celiac panel or your Immunoglobulin A (IgA) is in the normal range which indicates that most celiac IgA tests (like the TTG, DGP and EMA) would be valid. Do you have the test results in hand? You should keep copies of all your medical records. It is your right! It only takes one positive on the celiac...
  23. cyclinglady
    Unfortunately, support groups are dwindling. I live in Southern California and you would think there would be a very active group. I guess people like joking on-line groups better. More convenient.
  24. cyclinglady
    Do not just take a vitamin because you are anemic. Your doctor should be able to tell you which kind of anemia you have (there are many types). For example, I was very anemic. My doctors knew that I had a genetic anemia called Thalassemia which there is nothing to be done except for blood transfusions when medically necessary. It masked my iron-deficiency...
  25. cyclinglady
    I would not eat them and I have celiac disease. But, I do not take a lot of risks. At 7-11, I would grab a bag of certified gluten-free chips, a cheese stick, yogurt or banana. Maybe a cup of plain coffee if it were in the morning.
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