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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    About 30% or more of the total population carries those same high risk genes that could develop into celiac disease, except only a very few do. That is a tone of people! If you think you have celiac disease, continue to consume gluten daily and get tested. All celiac disease testing requires you to be on gluten daily months before a blood draw. Usually...
  2. cyclinglady
    I agree! I can completely sympathize with members who have odd celiac antibodies test results. I only test positive to the DGP IgA (biopsy confirmed) which is really weird and I can find only a few studies that imply this can occur in the very young or elderly. I guess I am elderly? ?
  3. cyclinglady
    Have you looked into FODMAPS? These sugars can cause GI issues in many people and may be the cause of IBS symptoms in some people.
  4. cyclinglady
    I am sorry you are unwell. Like you, a gluten exposure sets me back for months. Problems with my gut last a month or so and then residual issues from triggering my other autoimmune diseases. The last time I developed chronic daily hives all over my body that lasted over six months. I also developed GERD-like symptoms. A repeat endoscopy (which I kept...
  5. cyclinglady
    But you have positive IgA tests too? Unfortunately, some people do not have good insurance coverage or none at all. Others live in countries where there are long wait times for medical procedures, so their primary care physicians suggest trialing the diet. Hoping for better blood tests or less invasive diagnostic testing.
  6. cyclinglady
    True! I use antihistamines that are just labeled gluten free. No celiac reaction. At least OTC drugs will label gluten free unlike prescription drugs!
  7. cyclinglady
    Yes, but I know an elevated TTG IgG or DGP IGG is possible, but normally that occurs when someone is IgA (Immunoglobulin A) deficient. I was looking for elevated IGG and biopsy-confirmed. Changing the subject, are you feeling better on the diet? I know it is pretty early on, but I hope you are seeing signs of improvement.
  8. cyclinglady
    My gluten-free hubby takes an aspirin daily per his doctor’s recommendation. He uses Target brand or the Kirkland brand. Aspirin is so cheap that no one is going to certify it. I am allergic to it, so I can not use it. I have tried but my face swells up, but no celiac reaction.
  9. cyclinglady
    But did you ever get positives on the IgG versions? I think the uncertainty comes from negative celiac IgA tests but getting a positive on the IgG celiac tests. It is much less clear. Another reason why celiac experts still recommend an endoscopy.
  10. cyclinglady
    I have used Bio-K. It is certified gluten-free and was recommended by my now retired doctor. It can be found at my local health food store market. https://www.biokplus.com/en_us/products
  11. cyclinglady
    Three months after my diagnosis, I fractured two vertebrae doing NOTHING! Found out that I had osteoporosis. So, I spent the next six months doing just gentle exercise and stayed off my bike for a year. I never did a full marathon, but did many mini-triathalons and century rides. I did a 1/2 marathon despite being anemic just before my diagnosis...
  12. cyclinglady
    While a slightly elevated TTG IgA can be attributed to other autoimmune diseases, if it is very elevated, it is more likely due to celiac disease . Do you have the lab range? Each lab is different but the most common lab celiac disease positive is anything over 20. Your daughter’s result seems very high. However, she did have the flu and that might i...
  13. cyclinglady
    Cez, This product appears to be safe per this website (and it should be safe for a celiac based on the manufacturer’s website and I would use it), but talk to your doctor. https://www.skinsafeproducts.com/mustela-stelatopia-moisturizing-cream-for-dry-eczema-prone-skin-fragrance-free-6-7-oz How allergic to wheat is he? Was he diagnosed b...
  14. cyclinglady
    While I have a firm diagnosis, my hubby does not. He went gluten-free 12 years before me per the advice of his GP and my allergist. The diet worked. It is obvious to everyone that gluten makes him sick. He refuses to do a gluten challenge. I guess I am trying to say that if you feel good on the diet, then stick with it. If you are not getting...
  15. cyclinglady
    It is an unclear result. It is not common. Did you get tested for an IgA (Immunoglobulin A) deficiency? This happens to about 5 to 10 % of celiacs and in the case of celiac disease testing means the IgA type tests will not work. It is why the IgG tests are offered. Personally, I test positive to only the DGP IgA even in many follow-up tests, yet...
  16. cyclinglady
    Try using the search box located at the top. Lots of members have discussed this. Just type in TTG IgG. I am sorry that you are doubting your diagnosis. The blood tests are pretty good, but most celiac disease specialists like take a look inside your small intestine. An endoscopy is still the gold standard in diagnosing celiac disease. You...
  17. cyclinglady
    Some celiacs do have immune issues like CVID. It is why the celiac IgG tests were developed in conjunction to the IgA tests. https://ghr.nlm.nih.gov/condition/common-variable-immune-deficiency I imagine doctors recall this fact and encourage all celiacs to get their vaccinations. I do not yet qualify for the pneumonia shot due to my age...
  18. cyclinglady
    I am a healed celiac (repeat biopsy confirmed) and I drink red wine on occasion. No gluten reactions. I do not drink it on a regular basis because it triggers my facial Rosacea which is probably due to the tannins found in red wine (grape skin). Try drinking white. Another possibility. If you are newly diagnosed or undiagnosed, you may find wine...
  19. cyclinglady
    An endoscopy is something to consider. Your symptoms could be celiac disease or they could be something like Crohn’s which is common in young adults/teens. Seven years of struggling with GI symptoms indicates that something is clearly wrong. I thought my little niece had celiac disease, but it turns out she had Crohn’s instead. Her diagnosis was...
  20. cyclinglady
    Great! My insurance radar is on this week. I am paying for all our insurance (we are self-employed) and it is...I can not find the words, but frustrating is one of them! Good luck on your certifications! ?
  21. cyclinglady
    You should look into liability insurance as a trainer, unless the gym you work at covers you. Unless you have a degree and/or certification as a dietician or nutritionist (and are insured), you probably should not dispense any medical related dietary advice at all to anyone is is not perfectly healthy. Every fitness training I have taken strongly recommends...
  22. cyclinglady
    Thanks for the follow-up! Your post will surely help another DH sufferer. I hope your husband recovers fast.
  23. cyclinglady
    You should talk with your doctor. Celiac disease is systemic and it is triggered by the Gluten found in wheat, barley and rye. Maybe you have a wheat allergy or a FODMAP issue. That is something you can test for without going in a full, daily gluten diet for 2 or three months. I wish you well.
  24. cyclinglady
    Have your doctors check for Mast Cell Activation Syndrome, which is still pretty new and not well known (not an IgE response, but similar in terms of symptoms). It can be extreme or mild. My triggers are insect bites and medications like ibuprofen. Also celiac disease falls under hypersensitivity. They can be linked. If I am exposed to gluten...
  25. cyclinglady
    After a diagnosis, your body can crave nourishing food to make up for deficiencies. Eating without pain can pretty nice. But many celiacs just convert from a Standard American Diet (SAD) to a gluten free Standard American Diet. That SAD diet is not working out for anyone. We are are an unhealthy nation! Cut out gluten-free processed foods (junk...
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