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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I agree with Karen. Gluten is what makes wheat bread so elastic and able to expand. Using Xanthan Gum or guar Gum can help mimic traditional wheat, barley or rye gluten (look at the ingredients on a Schar bread package which I know they sell in Poland). Do you have access to gums like this? https://www.bobsredmill.com/xanthan-gum.html Are...
  2. cyclinglady
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  3. cyclinglady
    As a mom, teacher and a former kid, I would just point out that kids will eat anything! A teacher can not prevent this from occurring. There is not enough time for kids to always clean up. Best to just keep the PlayDoh and dry pasta out of the classroom (in my opinion), if a student has celiac disease.
  4. cyclinglady
    Sorry, but all celiac testing requires a patient to be on a full gluten diet. Since you were gluten free, you could consider a challenge which is about 1/2 slice to 1 slice of bread per day (or equivalent) for 8 to 12 weeks and get retested. Be sure to ask for the complete celiac disease panel. If my doctor had not ordered it, my diagnosis would not have...
  5. cyclinglady
    @Agent0124 Wow! How funny about the lack of clear fingerprints and the possible correlation with celiac disease. I do not have enough prints and I have been fingerprinted by many government agencies. I thought it was due to lots of cleaning. Despite having healed (repeat biopsy confirmed), I think I still have fingerprint issues. I can not use that...
  6. cyclinglady
    I read that zinc does not reduce colds by much.....☹️ https://www.consumerreports.org/vitamins-supplements/6-reasons-not-to-take-zinc-for-your-cold/ However, my retired doctor was a firm believer in dispensing old-fashioned cures. He said that the placebo effect is strong. If you think zinc works, consider taking it. Just be aware of the pos...
  7. cyclinglady
    My ballerina niece had a fatty liver. She gave up all soda, and greatly reduced sugary foods (e.g. candy, cookies, etc). In a year her liver was fine, when her PCP retested her. (She does not have celiac disease — just a sweet tooth.) Many celiacs who are actively flaring, have liver issues that often resolve once they heal from celiac disease. ...
  8. cyclinglady
    There is a difference between distilled and fermented. Soy sauce is not gluten free. https://www.glutenfreeliving.com/gluten-free-foods/diet/is-soy-sauce-gluten-free/ As far as gluten removed beer, it is questionable. https://www.glutenfreewatchdog.org/news/can-individuals-with-celiac-disease-drink-barley-based-gluten-removed-beers-such...
  9. cyclinglady
    Have anyone considered the following besides recommended medication? 1. Cleansing with water after urinating (like a rinsing bottle given in the hospital after childbirth) 2. Local Vaginal estrogen cream to improve skin tissue https://www.clinicaladvisor.com/home/topics/ob-gyn-information-center/vulvar-lichen-sclerosus-breaking-the-silence...
  10. cyclinglady
    Just sort on a cookie sheet and the wash the beans. We have always done that even before my diagnosis of celiac disease. Beans can have twigs or rocks. They are a raw agricultural product. They are gluten free.
  11. cyclinglady
    Whether it is a tiny amount or a huge amount, the body will react and start building antibodies. Symptoms are not always consistent. Take each day as it comes and avoid gluten 100%. You can heal!
  12. cyclinglady
    I second that your doctor should screen you for vitamin and mineral deficiencies as recommended by all leading celiac disease research centers. Annual follow up testing should occur. https://celiac.org/about-celiac-disease/treatment-and-follow-up/ If your uveitis is related to celiac disease, your goal should be to put celiac disease into remission...
  13. cyclinglady
    What a story! Although bits of it are different, it shares a common theme that so many celiac.com members have shared. I am glad that you are on your way to a complete recovery! Like you, I was anemic always. It was blamed on a genetic anemia, Thalassemia and the fact I was a menstruating women. Just by luck, I went in for a routine colonoscopy...
  14. cyclinglady
    All those symptoms can be attributed to active celiac disease. Make sure your doctor re-runs the complete antibodies panel. This is considered normal standard of care to be retested within six months of diagnosis. It could be due to hyperthyroidism, but since you have only been diagnosed with celiac disease six months ago, I would guess your problems...
  15. cyclinglady
    This is the place to have a pity party! ? I am sorry that you had a gluten exposure. The first year after a celiac disease diagnosis is tough. What other illness requires the patient to treat themselves? I am concerned that you are low in minerals and vitamins. Supplementation might be necessary. If you were low in iron, were you anemic as...
  16. cyclinglady
    Ah....the fatigue may very well be due to gluten exposures like the one you had right before Christmas even though your GI issues may have resolved within days. Each exposure can set you back. If frequent, it can prevent healing. For me, a gluten exposure can last for weeks or months and trigger flare ups from my other autoimmune disorders. If...
  17. cyclinglady
    You were just diagnosed four months ago, correct? It takes most adults a year or longer to heal per Dr. Murray at Mayo: What were the results of your iron, blood glucose tests that were taken at the beginning of December? What did your doctor say? After three months post diagnosis, has your doctor rerun a celiac panel? Are your antibodies...
  18. cyclinglady
    Are you supplementing? Mine was high (2,000+) when I was substituting fortified soy milk for dairy before my celiac disease diagnosis. Maybe I was not able to use the cheaper cobalamin (B-12) used in the soy milk. Just a theory. I really did not use THAT much soy. I never had liver issues. Now it is in the normal range. It took about a year or...
  19. cyclinglady
    Why would your doctor (is she a board-certified allergist) suggest allergy treatment when you have no usual IgE related symptoms (itching, hives, swelling, sneezing, runny nose, etc.)? I am not a doctor, but my IgE allergies can be made worse when my autoimmune disorders are flaring (all fall under the umbrella of hypersensitivity, google it). Your tests...
  20. cyclinglady
    I think I need to try to clarify the miscommunication that is occurring this thread. For those of us who have dealt with a gluten free diet for decades, the definition of “gluten intolerance” meant celiac disease. You can see one example (a 2005 study) in the link just below this paragraph proving this. Even if you just Google “gluten intol...
  21. cyclinglady
    Welcome! Relax! While your children might have the potential to develop celiac disease, odds are they never will. About 30% of the population carries the genes that COULD (not will) develop into celiac disease. That is a lot of people. Know one knows what triggers celiac disease. It could be stress, a virus, whatever. I tend to compare...
  22. cyclinglady
    While you might have developed a casein allergy, your current symptoms might not even be related to celiac disease. When was your last celiac disease follow-up visit with your doctor? Have you had repeat celiac disease blood testing? Another endoscopy? I thought I was getting gluten exposures. Turns out mysmall intestine had healed (repeat endoscopy...
  23. cyclinglady
    Do any of these gluten-free products contain oats? Soy? I use Pamela’s Flour because it does not include Xanthan Gum. But I think the rest you mentioned all use Xanthan Gum. So that might not be it. I personally do not do well with commercially produced gluten-free products. I suggest avoiding them for a few weeks. These products are v...
  24. cyclinglady
    You are probably not dying. You might have been exposed to gluten. It sounds like it. Did you eat any other food prepared by someone else lately? Like a restaurant, friend or family member? Do you have good safe kitchen practices in place? Do you eat processed foods not marked gluten free? Are your meds gluten free? Anxiety is common if you...
  25. cyclinglady
    The video indicated that the least amount of gluten was found in cake flour. Normally, you do not bake bread with cake flour. It is for delicate cakes that do not require kneading or rising before baking. I can not image trying cake flour in a sourdough recipe — maybe all purpose, but not cake flour. Maybe @kiwifrutais not gluten intolerant and h...
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