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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I have autoimmune gastritis (AIG) which was diagnosed during a repeat endoscopy/biopsies (healed from celiac disease though). There is nothing to do for it (based on medical literature) until it starts impacting my ability to absorb iron and B-12 which can lead to pernicious anemia (what the heck, I already have Thalassemia, and dealt with iron-deficiency...
  2. cyclinglady
    You are lucky to have a doctor who is on top of things! I love that he or she recommended the AIP diet. Though not much research has been done (some IBD patients at Scripps in San Diego achieved 78% remission in a tiny study which is promising), I think eating real food (non-processed) is a great idea for everyone. It will take time to heal from celiac...
  3. cyclinglady
    @NNowak Was your endoscopy done at a hospital? If so, you can order your records there. (There May be a small fee, at least there is at my local hospital). Waiting two months seems odd. Your new GI either doesn’t think you have any concerning issues or he is incompetent. I once waited for a mono result for my kid. She kept calling for a...
  4. cyclinglady
    Who knows? What is clear is that your experiment might have failed. Three weeks is not the recommended gluten challenge, especially if you had been gluten light prior. Your TTG could be increasing due to celiac disease developing or (another autoimmune illness) or it could just be “off”. The blood tests are not perfect and I do not think they can det...
  5. cyclinglady
    Have you researched Mast Cell Activation Syndrome? You can use the search bar and see comments from other members who struggle with allergies (IgE) or “allergy like” symptoms (Mast Cell Activation). Autoimmune disorders, allergies, etc. fall under the Hypersensitivity Umbrella: https://en.m.wikipedia.org/wiki/Hypersensitivity Me? I...
  6. cyclinglady
    Why did I not think of the gallbladder? Good call. I had my gallbladder removed (non-functioning). A HIDA scan confirmed it. Looking back I wonder if I had been diagnosed sooner with celiac disease, my gallbladder might have healed.
  7. cyclinglady
    It looks like you had the TTG and maybe the EMA or they did not do the EMA test because your TTG was negative. In any case, the DGP IgA or DGP IgG tests were not given. Again, I tested negative to the TTG and EMA even on follow-up testing. Not common, but it happens. You can ask the GI when you go for the endoscopy to run the DGP tests. Often, primary...
  8. cyclinglady
    Ditto what GFinDC said. You should ask for the complete panel. I never get a positive on the standard popular screening tests: TTG or EMA. Good thing my GI ordered the entire panel or my diagnosis would have been missed. Just want to clarify....where you consuming 1 to 2 slices of bread (or equivalent) 8 to 12 weeks prior to the blood test? If...
  9. cyclinglady
    Research corn allergies. That would be the number one suspect between the two products. Who know what was in the popcorn served at the restaurant? You could always call and ask.
  10. cyclinglady
    Hey Reid! Welcome to the forum. Please see my response about ovens. You might find it helpful. Since my diagnosis, I have learned that not all symptoms are due to celiac disease. I learned that healing takes about a year or longer for most Celic.com members when in theory (actually a fact), healing should occur within a few weeks. But celiacs...
  11. cyclinglady
    I suppose you could be glutened by an oven. One that is crusty and disgusting (never cleaned), shared with a home baker, or one that is in constant use (like a pizza oven or one in a bakery). Then wrapping your gluten-free food in foil or parchment would be helpful. But who lets their oven get that disgusting? Wait that would be people like my co-workers...
  12. cyclinglady
    Hey, Charles! It sounds like you are really doing a good job of being gluten free. Everyone has given you excellent advice, but I am going to offer something different to consider.......maybe gluten is not the cause of your current woes. You mentioned your stomach (pain, nausea, burning). I had that after a gluten exposure (unknown source...
  13. cyclinglady
    Welcome! Your hair loss could very well be due to active celiac disease. Celiac disease is autoimmune. That means you are at risk for other autoimmune disorders like thyroiditis or alopecia. Make sure your thyroid is functioning properly and because you have diagnosed celiac disease, insist on a full thyroid panel which includes thyroid antibodies...
  14. cyclinglady
    Maybe you should try the AIP diet. I know you cook as a profession, but for yourself. Consider the diet. It contains only real food and it can be just a temporary measure. You seem to eat lots of processed foods that mimic the old foods you used to love. Like those artificial sweeteners, flavorings, gums, etc. The AIP diet did achieve a 78% reduction...
  15. cyclinglady
    Yes! This is so critical! I urge everyone to take the time to do this. Follow the link that GFinDC provided. I am sick and tired of having to confirm whether or not gluten might be in my medications. Right now the Food and Drug Administration (FDA) just monitors food, not drugs! How did that happen? Big Pharma. Let’s get this bill passed!
  16. cyclinglady
    Know that Type 1 diabetes is commonly linked with celiac disease (same genes and affects about 6% of patients). It can develop at ANY age. It can develop slowly. Often the “honeymoon” period can last up to five years. Your doctor should run antibodies that effect the pancreas. Learn more: https://gluten.org/resources/health-wellness/diabetes-and...
  17. cyclinglady
    As a mom, I would listen to your heart. You know your child best. Get a second or even third opinion. Know that your child must be on gluten for about 8 to 12 weeks for the blood test and 2 to 4 weeks before intestinal biopsies otherwise the tests will be negative.
  18. cyclinglady
    Usually, we dip the corn tortillas in warm, watery, enchilada sauce in a small frying pan before filling and rolling. It softens them and keeps them moist. The rest of the sauce is added on top. The tortillas need to be as fresh as possible. I dig through the tortillas found in the back of the market shelf too. Ennis probably some great advice...
  19. cyclinglady
    I follow a strict gluten free diet. I know that I am doing a good job because I have had repeat biopsies and they revealed healthy, healed villi. However, since my celiac disease diagnosis, I have developed Autoimmune Gastritis (as diagnosed by my GI and the pathologist). I learned that not everything is due to a gluten exposure/celiac disease flare...
  20. cyclinglady
    If her celiac blood test normalized and her second endoscopy and colonoscopy (with the pathologist confirming this besides the GI) revealed a healed small intestine, but found ulcers, she may be dealing with something else like Inflammatory Bowel Disease. Did your GI/pathologist say what the root cause of the ulcers were? Where were they located? My...
  21. cyclinglady
    About 30% or a bit more of the entire population has the celiac genes. Only a tiny few actually develop celiac disease. The gene test just rules out celiac disease. My advice is to find a medical doctor who is celiac savvy. One that follows all the national celiac disease research centers guidelines. Those guidelines do not include stool testing...
  22. cyclinglady
    Genetic testing will just lump your son into the possibility of developing celiac disease, along with almost a 1/3 of the population! That is a lot of people! Even if he has the genes, what will you do? I understand your position. My hubby went gluten-free almost 20 years ago. Twelve years before my celiac disease diagnosis. It was recommended...
  23. cyclinglady
    Hi! The old AGA (anti-gliadin antibodies) tests are no longer in use, but I am not sure what country you are in. These AGA (IgA and IgG versions) were replaced by the better and more accurate DGP tests. I think you need to confirm with the lab as to which tests were run. The EMA is even older. While very specific to celiac disease, it is less sensitive...
  24. cyclinglady
    Mistakes can set you back. Remember, celiac disease is an autoimmune response. Once triggered, it can go off for days, weeks or months. Like my family member who has MS. She would have severe flares that would last for six weeks or more. Time. One month is not enough time to truly heal. Most forum members report taking a year or longer to heal...
  25. cyclinglady
    Please post your question under the food/recipe section of the forum. You will get a better response. ?
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