Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Elevated antibodies after diagnosis are not very accurate. When I had a repeat endoscopy, I still had very elevated antibodies. But my biopsies revealed healthy villi. I was doing a great job of being compliant on my gluten-free diet. We think my elevated antibodies were due to other autoimmune disorders. I drink wine. Not often because I have autoimmune...
  2. cyclinglady
    @NNowak Wow! Your story really resonates with me. I am trying to find out how to keep my autoimmune response suppressed by using diet, exercise and maybe reducing stress. I know that gluten exposures trigger more than just my celiac disease. I am hoping to prevent a 4th autoimmune disease. I bet most of your family is not diagnosed (like...
  3. cyclinglady
    Welcome! Celiac disease can feel like you have the flu. Body aches are common, along with extreme fatigue. You can have both constipation or diarrhea with celiac disease. Everyone is different. There are actually 200+ symptoms. 25 years ago celiac disease was thought to be non-existent in the states and then, like type 1 diabetes, was thought...
  4. cyclinglady
    So safe to eat.
  5. cyclinglady
    We both agree that undiagnosed celiacs could have deficiencies as well as non-compliant celiacs! I would not worry about becoming deficient after a course of antibiotics. The body is pretty resilient. As winter approaches, get into the sun! I read something about sitting under LED lights. Something worth investigating. Enjoy your Thanksgiving...
  6. cyclinglady
    I have been gluten free for about six years. My iron levels are normal now. Those improved within a few months of the diet based on lab tests. I assume I was able to absorb the nutrients needed to build bone. I think my bones would have been worse had I not been an active person prior to my diagnosis. Did the HRT help? Who knows? Since I was...
  7. cyclinglady
    That works as long as you do not have a nut allergy, like me! ?
  8. cyclinglady
    Since I was within six months of menopause, I opted for HRT for a year. After my back healed, I made sure to focus on weights and exercise (run, bike, walk, swim). My diet is rich in nutrients. I take no supplements. My last bone scan showed no worsening, which is a good thing. I went in for a routine colonoscopy (all my friends were getting the...
  9. cyclinglady
    I am not a doctor, but with both the TTG and the EMA going down (or normalizing), it seems like you are in the right track. You might have just been developing celiac disease at the time of your endoscopy or your GI missed the damage. You could get a copy of the pathologist’s report to determine how many biopsies were taken (the more the better). Keeping y...
  10. cyclinglady
    Me too! Hives. I do have Hashimoto’s and Autoimmune Gastritis (which is commonly linked to Hashimoto’s, so heads up). A celiac disease flare up, will trigger my hives. Like clockwork, they would erupt every afternoon — head to toe. My allergist suspect Mast Cell issues too as bug bites and medications will caused me to faint, vomit, and swell, in addit...
  11. cyclinglady
    You beat me to it, Karen! ?
  12. cyclinglady
    But most labeled gluten free products are in fact gluten free. This is based on the Gluten Free Watchdog Reports. The GFW tests products that are requested by her subscribers. It is like a tiny Consumer Reports. The GFW takes no donations from any manufacturers. The founder, Trisha Thompson has celiac disease and is a dietician. She works with the FDA...
  13. cyclinglady
    Good to know! ?
  14. cyclinglady
    Having a certified gluten-free label should insure that the products are around 10 ppm or less. https://www.verywellfit.com/certified-gluten-free-products-562767 I think that would assure you that the yeast used in this product is safe for celiacs.
  15. cyclinglady
    I worry about the safety of our supplements as I also worry about genetic pharmaceutical drugs. “The FDA also has limited capabilities when it comes to overseeing manufacturing standards for supplements. There are by most estimates at least 15,000 domestic and international manufacturers of supplements sold in the United States, with most of the r...
  16. cyclinglady
    You did not receive the entire panel. If my doctor had just ordered the TTG, my diagnosis would never have been caught. I just went in for a screening colonoscopy (am over 50) and my GI noticed that I was anemic and had Hashimoto’s. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  17. cyclinglady
    Find out which celiac blood tests were given. I test positive ONLY to the DGP IgA. For a long time, I could not figure out why. But it might have something to do with autoimmune thyroiditis or other autoimmune. Also, if your doctor was not looking for celiac disease, he may not have obtained enough tissue samples. Celiac disease damage can be patchy...
  18. cyclinglady
    Undiagnosed or poorly-managed people with celiac disease may be deficient in vitamins and minerals. I was iron deficient (oddly nothing else) when I was diagnosed. My doctor recommended an iron supplement just until my iron levels improved. Once they improved, I stopped taking a supplement and focused on getting my iron from food sources. But with...
  19. cyclinglady
    You can not diagnose celiac disease based on symptoms. That is because the 200 or so symptoms overlap with many other illnesses. If you suspect celiac disease, consider getting tested. You must be on gluten for any of the celiac disease tests to work. Fast weight loss can be serious without significantly reducing your calories. You should consult...
  20. cyclinglady
    Hi! From my research, celiac disease blood testing was meant to help diagnosis celiac disease and not to monitor diet. But doctors repeat blood tests because it is the only non-evasive “tool-in-the-toolbox” for dietary compliance. About two years ago, I had a gluten exposure after a tooth I infection, the flu and a cold all within six weeks. I...
  21. cyclinglady
    So glad that you were able to get to the specialist! ?
  22. cyclinglady
    While you might not actually have celiac disease, it sounds like gluten is not for you! Have you looked into the Autoimmune Paleo Diet (which is gluten free too)? It starts off strict (e.g. fruit, meats, fish, veggies) and adds in possible reactive foods. https://autoimmunewellness.com These two ladies at Autoimmune Wellness crowd-funded a small...
  23. cyclinglady
    Yes. Since many things can damage intestinal villi, your doctor should run a celiac blood panel. You have to still be on gluten in order to get a result though.
  24. cyclinglady
    There are already a few apps, like “Find Me Gluten Free” which are based on user reviews and thus, not super reliable. Consider developing an app for something like Paleo or Keto to combat, say, diabetes. If mistakes are made during Paleo or Keto food prep, it will not make anyone ill. If the restaurant is not gluten free dedicated, I do not eat...
  25. cyclinglady
    Well, not much else has been published about this topic since 2014. I am assuming it might not be very effective. There is no easy fix for celiac disease. I saw Dr. Shelia Crowe a year or so ago. She is the President of the Gastroenterologist Association. She said that there are sadly fewer therapies or drugs being worked on for celiac disease...
×
×
  • Create New...