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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I suggest seeing your doctor and asking for standard celiac disease testing. If positive, you will need to be referred to a Gastroenterologist. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ By the way, when I was diagnosed, anemia was my only symptom. Get checked. Do not go gluten free until all testing has been completed...
  2. cyclinglady
    I am not a doctor but might mean the pathologist could not say for sure that it was celiac disease as many illnesses can cause small intestinal damage. To help confirm, you just need a complete celiac disease blood panel. Ask your doctor to run the panel before you even consider going gluten free. All celiac testing requires you to be eating gluten or...
  3. cyclinglady
    Again, my issue was not whether gluten-reduced beers are safe for celiacs (this is a controversial topic in the celiac community) but that you based your article on “The Blast” which is a celebrity and entertainment website. https://theblast.com/about But since you brought the topic of Europeans being the leader of celiac disease research and...
  4. cyclinglady
    I was not disputing the study. I said that gluten-removed beers are a controversial topic within the celiac community. I suggested that celiacs or NCGS patients follow the recommendations of celiac research centers or non-profit organizations who work with celiac research centers. My link to one celiac organization was just one example, but you can find...
  5. cyclinglady
    Please do not take this member’s response to heart. You can look up and see her four last unsympathetic responses. She rarely contributes and has not been following your previous posts. I can only imagine that she is having an off day or that maybe someone has told her that she complains too much about her own illness. She might even come to celiac.c...
  6. cyclinglady
    I can not consume mushrooms. There is a specific name for a mushroom intolerance. You can google more about it. Here is a quick article, but I do not know if the source is reliable. But it is a place to start. https://www.xcode.life/23andme-raw-data/mushroom-intolerance/ I am not promoting 23 and Me, which is discussed in this article. I...
  7. cyclinglady
    Do you normally drink glasses of milk without issue? It maybe just a touch of lactose intolerance. This is common in unhealed celiacs. Even if healed, your chances of being lactose intolerant are as high as 65% — even higher in some groups. That is a lot of people! https://ghr.nlm.nih.gov/condition/lactose-intolerance
  8. cyclinglady
    Here are comments from Dr. A. Fasano, (one of the world’s leading celiac disease researchers), about this study:
  9. cyclinglady
    You can always look up the Material Safety Data Sheets for most products if the manufacturer does not disclose ingredients on their website or on the label. https://www.msdsonline.com/sds-search/ In a dishwasher, all ingredients, food and bacteria would be rinsed away, right?
  10. cyclinglady
    Simple foods? Think one to five ingredients. Like any fresh fruit or veggies. Meats, fish, poultry, and eggs. Nuts or seeds. Use processed foods like mayonnaise but read the labels. The fewer the ingredients, the less chance you will make a mistake until you master the diet (all those forms of gluten). Like tonight I am baking chicken, mashed...
  11. cyclinglady
    Your IgA is just below range. It does not mean that you are IgA deficient. https://www.merckmanuals.com/professional/immunology-allergic-disorders/immunodeficiency-disorders/selective-iga-deficiency
  12. cyclinglady
    Please do not take advice from a non-celiac disease publication — the Blast. Gluten-removed beers are hugely controversial in the celiac disease world. This article should be removed fro celiac.com. Another example of shoddy journalism. Read real news from celiac disease organizations linked with celiac disease research centers. https:/...
  13. cyclinglady
    The good news is that he may get dairy back. I did! But it can only occur if there is villi healing and you are lucky enough not to be genetically lactose intolerant (like a huge chunk of the world’s population). (A true milk protein allergy is different.) I would opt for a celiac-savvy dietician who can work with you both. Once healing occurs, ...
  14. cyclinglady
    This is my experience. In a nutshell, five years after my diagnosis, I had abdominal pain, GERD, etc. My DGP IgA was very elevated. I refused to do a repeat endoscopy as suggested by my GI. Instead, I opted for the Fasano diet. But after a few months, the diet was not helping. I finally caved in (about one year from developing various GI symptoms...
  15. cyclinglady
    This looks delicious! I fried up some flounder last night but dipped it in gluten-free flour with a little bit of bread crumbs from hubby’s Canyon House gluten-free whole grain bread, so it was not Keto. It also was delicious.
  16. cyclinglady
    It does not. But he did not order the complete panel, and about 10% of celiacs are seronegative. What makes him think you have celiac disease? Do you have risk factors like autoimmune thyroiditis, type 1 diabetes, anemia, a diagnosed family member? I would recommend a second opinion. From what you described, your doctor is not celiac-savvy. That...
  17. cyclinglady
    Welcome, Here is a link to Beyond Celiac which is a celiac disease group dedicated to helping celiacs. https://www.beyondceliac.org/celiac-disease/additional-information/support-groups/ How long has your daughter been gluten free? Is she seeing a Gastroenterologist? Have other illnesses been ruled out (like enzyme deficiencies, SIBO, other...
  18. cyclinglady
    Welcome! What was the TTG IgA lab range? I assume that your result was pretty low or below range. Those tests seem to be negative and while you might be IgA (Immunoglobulin A) low, it is enough to validate the IgA tests. A very low IgA test that would invalidate the IgA celiac tests (EMA, TTG, or DGP) would have to be close to zero. Did they...
  19. cyclinglady
    If it is so amazing, why is this product not being recommended by the world’s leading celiac disease research centers? Could it be due to the study participant size of just 18 people and that more research is needed?
  20. cyclinglady
    I could have sworn my little niece (teen) had celiac disease. She was thoroughly tested and celiac disease was firmly ruled out. Finally, her 4th GI ordered a pill camera. It found severe damage beyond the reach of both scopes. She was diagnosed with Crohn’s. While celiac disease has a strong genetic component, you might not ever develop it, you c...
  21. cyclinglady
    I think you need to get copies of what blood tests were given and do more research. For example, what IgA test was raised? A TTG IgA, a DGP IGA or EMA IgA or just a plain Immunoglobulin A (IgA) test? We are getting confused because we do not have the correct data. I assume you are not in the US, but perhaps the UK. If so, the NHS usually orders...
  22. cyclinglady
    Your doctor should have run a normal blood panel too. Your hormones could really be out of wack. Taking hormones might help if the blood tests reveal an imbalance. Your Thyroid should be checked as well. Get checked. This could be a sign of cancer: https://www.medicalnewstoday.com/articles/322832.php You should not go gluten free if you...
  23. cyclinglady
    No worries with dried beans. Like any raw agricultural product, sort and wash. I have yet to find a kernel of wheat, but found plenty of rocks in my day.
  24. cyclinglady
    Hi Jennifer! If you tested positive to the antibodies found in those with celiac disease, the next step is to see a Gastroenterologist for confirmation. Usually an endoscopy is needed to confirm. You should get your medical records and work towards getting a Gastroenterologist’s appointment. You need to still consume gluten daily. It w...
  25. cyclinglady
    Great! She is like my little niece (though not so little as she is in college now). Anyway, the AIP diet, which is strict for just a few weeks, might be very beneficial. Trying to figure out how to reduce the inflammatory response is the goal (as is the medications). Basically it is a non-processed foods diet. It helps to identify foods that might...
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