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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    The IgA test (Immunoglobulin A/antibodies) are just ordered to see if the celiac tests: 1. TTG IgA, 2. DGP IgA or the 3. EMA IgA work. Those three tests I listed are for celiac disease. The IgA test (your result is 465) just means you make Immunoglobulin A and plenty of it. It is not too high. My lab range for that test goes to 400. Lab ranges are...
  2. cyclinglady
    Welcome! It would be nice to have a benchmark to know the extent of your small intestinal damage. The GI can biopsy your stomach too to check for concurrent illness like H.Pylori, etc. Once the endoscopy and biopsies have been completed, you can go gluten free. Research all that you can to learn about the diet. Ask any questions. Soon, you...
  3. cyclinglady
    Welcome! The IgA (Immunoglobulin A) test Has many uses. For diagnosing celiac disease, a number within range or above indicates that any celiac IgA test given is valid. It is a control test. Your doctor also ordered the TTG IgA to test you for celiac disease. The range you provided seems strange. It was a 10. I think that a positive would...
  4. cyclinglady
    No. Celiac disease is like a chameleon with symptoms always changing, along with systemic damage. I ate tons of gluten always and yet my only symptom I struggled with years prior to my diagnosis was anemia. So bad, that it finally caught up with me. I was shocked that I had celiac disease. Really shocked. But my positive DGP IgA on the panel and biopsies...
  5. cyclinglady
    Ah, the Gluten Free Watchdog has commented! You can ready her post here: https://www.glutenfreewatchdog.org/news/ Botton line is to continue to follow safe kitchen practices. This study was flawed.
  6. cyclinglady
    You are not a pain! We are here to help! Believe me, I get your frustration. I had GI and allergy issues since I was a kid. Brushed off by many doctors (including 4 GIs). Then I heeded the advice of my allergist and did an elimination diet. Only, gluten did not seem to bother me, but eggs, milk, garlic, mushrooms, etc. oddly did. GI issues...
  7. cyclinglady
    Unfortunately, we are not doctors and we can not diagnose you. Celiac disease has over 200 known symptoms. We know that celiac disease is systemic (involving organs beyond the GI system). We also know that not all celiacs have GI problems. Some have no symptoms at all (those are usually caught when a relative is diagnosed and they have family tested)...
  8. cyclinglady
    And the study size was tiny. A little over 50 celiacs, if I recall.
  9. cyclinglady
    Just know that the current recommendation for celiac blood testing is 6 to 12 weeks of eating gluten daily. You said that you were gluten free for three weeks. That may impact your blood test results because some celiacs can heal in as little as two weeks (rare). I hope this helps! https://beyondceliac.org/celiac-disease/the-gluten-challenge/
  10. cyclinglady
    My gluten-free hubby can safely eat sausage that is clearly marked gluten free. But I can not. First, it has garlic (intolerant), and second, I can not digest anything with a casing. Give me a hot dog (and I will barf it up). Been that way since I was a kid. No matter the brand — organic, natural, whatever! It is not the nitrates because bacon g...
  11. cyclinglady
    Everything the GFinDC said. ?. Go to McDonalds and just order a soda or coffee for now. Enjoy your grandkids. Keep eating gluten until ALL testing is complete. This is critical!
  12. cyclinglady
    I suppose it depends on where you live and your provider. In the US, it takes about a week. Three weeks? I would follow-up.
  13. cyclinglady
    Wow, your symptoms sound like gluten ataxia. It is rare to find a doctor who recognized it. You are so lucky. ?
  14. cyclinglady
    A GI can test you for basic vitamin and mineral deficiencies. I can say that most of those resolve on a gluten free diet and a healed small intestine. For example, I was iron-deficient and supplemented for a few short months per my doctor. Since then, I take no additional supplements because they are not medically necessary for me. I have healed based...
  15. cyclinglady
    I am not a doctor, but I do have a kid. I never had gene testing either, but I am biopsy-confirmed. My hubby went gluten free 18 years ago per the poor advice of two medical doctors. He wishes he had a firm diagnosis (better support from family, friends and medical) but the fact is a gluten challenge is out of the question. Frankly, we like paying our...
  16. cyclinglady
    I am so sorry. It sounds like your GI does not have the latest in scopes. When I was diagnosed, my GI told me that everything looked good, but my biopsies revealed otherwise. My new GI did have a scope that had very strong magnification and my repeat endoscopy and biopsies revealed complete healing (remission). But that was five years later and after...
  17. cyclinglady
    Sounds like a wheat allergy to me. It takes time to ramp up antibodies. You can have both celiac disease and a wheat allergy. My kid (no celiac disease) and I get tingling in our mouths, with the first contact with garlic. You could try an antihistamine. That is what we take for allergies in general.
  18. cyclinglady
    Keep us posted. ?. Your case, like many, may help someone else with comparable symptoms.
  19. cyclinglady
    It could be celiac disease related. Celiac disease is systemic and affects many organ systems. It might be better related to connective tissue autoimmune disorders like lupus, rheumatoid arthritis or scleroderma. I guess the only way to find out is to go gluten free if you get a diagnosis (or trial the diet even if your tests results are negative). ...
  20. cyclinglady
    No worries, @Awol cast iron stomach. My message was directed to Posterboy who has been way too enthusiastic in trying to diagnose members when he has no medical experience and his agenda is the same repeated topic (vitamin deficiencies) regardless of the OP’s situation or question.
  21. cyclinglady
    Get a new dentist! My dentist insures that all his products are gluten free. To ease my mind when I was initially diagnosed, I asked to read the ingredients myself. My dentist complied with my request every single time. He takes me seriously and cares! He says now that almost all dental suppliers are aware about the need to be gluten free. My...
  22. cyclinglady
    SIBO is real. My GI brought it up when I was experiencing all those symptoms. https://www.hopkinsmedicine.org/gastroenterology_hepatology/diseases_conditions/small_large_intestine/small-intestinal-bacterial-overgrowth.html https://www.gastro.org/on-demand/small-bowel-bacterial-overgrowth https://www.gastro.org/on-demand/small-bowel-bacterial...
  23. cyclinglady
    I don’t think plantar faciitis is related to celiac disease (but anything is possible). Hubby had it after being gluten free for over a decade. It resolved in about a year. He was given shoe inserts and he massaged and stretched his feet per the doctor’s advice. Fat pad atrophy of the foot could be related to autoimmune but it is really com...
  24. cyclinglady
    Did you keep copies of your initial celiac disease blood test? (This is so critical for all people to keep copies of all their medical records.) If you did not and want a firm diagnosis, you should consider a gluten challenge. If that seems like a terrible choice for you, consider the Fasano diet for the next three months or so. Do not eat out. This...
  25. cyclinglady
    Hi! Many members have had swollen lymph nodes due to either celiac disease or a concurrent illness. You can use the search box and see their comments. I would get a second opinion if my lymph nodes were swollen for more than a month. I think it is wise. Chances are, it is nothing, but sometimes piece of mind is priceless.
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