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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ah, did I say that my vertebrae fractures occurred while I was doing NOTHING? No falls. Just spontaneous. My back was numb for months. This happened two months after my celiac disease diagnosis. I was so depressed. The good news is that I got out of a lot of housework! The gluten free diet helped me absorb nutrients for building good bones ...
  2. cyclinglady
    So he ordered a pill camera and then told you to go gluten free before the test? That does not make sense. Three weeks on a gluten free diet can cause healing to occur especially, (you would think) if damage to begin with, is slight. You need to be on a full gluten diet for all celiac testing (even the pill camera). I do not think you should rule out celiac...
  3. cyclinglady
    Wow! You have had a lot done. You might have celiac disease. Perhaps it was just starting when you had your endoscopy. Perhaps the GI missed the damaged areas as celiac disease can be patchy. You should find out how many intestinal biopsies were taken. At least your GI was willing to work with you. I had a positive DGP IgA and I have celiac...
  4. cyclinglady
    My option would be to pack a gluten-free lunch, but that is just me. I do not gamble and avoid taking risks. Keeps me healthy. Have any other celiac rated this particular restaurant on “Find Me gluten Free”?
  5. cyclinglady
    But can’t you just cool the broth in the refrigerator and take off the hardened fat when it congeals at the top? I think the enterade will just help with dehydration not necessarily healing. But I am not a doctor.
  6. cyclinglady
    If it were me, I would eat as much gluten as possible up until the test. One to two slices of bread or equivalent. I ended up consuming a loaf of sourdough daily (lots of butter) and plenty of cookies and cakes leading up to my endoscopy seven weeks after a positive DGP IgA blood test. But it is up to you. Here is a walk in lab website example....
  7. cyclinglady
    I am so sorry. I can not answer your pregnancy question. Only time will tell. I would suggest a non-processed gluten-free foods diet while you are pregnant. Become strict, very strict. No eating out. No eating food prepared by someone else. Consider no gluten in your home or put in strict safe food practices. I would make sure that your...
  8. cyclinglady
    Yes....it is possible. Just get back on gluten (eat something yummy!) and get the test. You can even go to a walk in lab and make the request and pay cash/credit. You probably would not need to do a 6 to 12 week gluten challenge since you were off for only three weeks. Most celiacs take a long time to heal, but in theory some can heal in little as...
  9. cyclinglady
    So sorry to hear this. I am glad you called your GI. This is just my opinion, but why the powdered stuff? Can you not make your own bone broth? And ground turkey. There was a huge recall this past year. Make sure it is cooked to eliminate the bacteria. Be careful!
  10. cyclinglady
    Celiac disease is an autoimmune disorder. So, simply eliminating gluten for the short term is not to help with healing that fast. Gluten triggers the autoimmune flare-up (response) that can last for weeks or months (like a lupus or rheumatoid arthritis flare up). The response does not end with the physical exiting of the gluten offender (wheat, rye and...
  11. cyclinglady
    Sorry, there are no tests for celiac disease that do not require you to be on a full gluten diet. You can get genetic testing, but that just narrows down your odds since about 35% of population carries the genes that MIGHT develop into celiac disease. That is a lot of people! While I am formally diagnosed with celiac disease (7 years), my hubby is...
  12. cyclinglady
    No joint pain, but I experience GI issues for a month and other systemic issues (like daily hives for six months) after a serious gluten exposure.
  13. cyclinglady
    Please heed my advice about not pushing too hard. You do not need to develop an new illness. You will get back to normal — just not “soon”. After my vertebrae fractures (osteoporosis due to undiagnosed celiac disease) I was devastated. With osteoporosis I could have more fractures. I was afraid to ride my bike for good reason — crashing. I tho...
  14. cyclinglady
    An ANA test is not used to diagnose celiac disease. It can indicate that you might have some autoimmune issue going on or not. Ask your doctor for lab tests specific to celiac disease as listed by GFinDC.
  15. cyclinglady
    Rheumatoid Arthritis (Autoimmune) can be related to celiac disease as you can develop additional autoimmune disorders. Osteoarthritis? Nah, lots of people get that as they age. Your joints just wear out. Now, joint issues may resolve on a gluten-free diet. It is common to have joint pain with celiac disease and other AI disorders like Crohn’s.
  16. cyclinglady
    I am sorry that you are struggling. You sound normal for someone who has celiac disease. Your antibodies are coming down and you have seen some progress. Congratulations! Six months. Did you know that most celiacs take a year or longer to heal? It takes time to really master the gluten-free diet. Mistakes or accidental cross contamination is...
  17. cyclinglady
    Feel free to research the types of Hypersensitivity (which includes type 4 — celiac disease) more (be sure to scroll down the page to the chart. It is technical and made for med students: https://www.amboss.com/us/knowledge/Hypersensitivity_reactions And then just learning more about celiac disease, Zonulin and leaky gut helps explain additional f...
  18. cyclinglady
    What is your definition of being gluten free? Do you eat out? Eat processed foods? Does anyone else prepare your food? Do you live with gluten eaters? Do you have safe kitchen practices? Ennis and I addressed this in a previous post. We could really use some input from you. As it stands now, we can only guess that you are not diet compliant...
  19. cyclinglady
    Ennis offered excellent advice and insight. I do not think I can add more except that with time, you can heal. Six months is such a short time. It takes most celiacs a year or more. Why? dietary mistakes are made. That is normal! You have a lot to learn. But it gets easier, I promise. You can get well. Odds of you getting refractory celiac disease...
  20. cyclinglady
    You can always find Lays even in Europe! I eat them.
  21. cyclinglady
    Orchestra practice for me tonight. Hubby gets a salad and chili I made two nights ago. Last night we had pan-fried flounder. It was so good. Served with roasted sweet potatoes and some zucchini. For lunch today, I made chicken salad (I grilled chicken the other day). I made my own avocado oil-based mayonnaise seasoned with wine vinegar...
  22. cyclinglady
    Congratulations! I hope it works out well. Just know that you have been sick. Be patient. Give it a year. I know you want to recover quickly, but it really does take time. A year goes by fast. Believe me, I am a very active almost 60 year old. I suffered from vertebrae fractures two months after my celiac disease diagnosis doing NOTHING. Unfortunately...
  23. cyclinglady
    I like this debate. After being a member of this forum for over five years, diagnosed six years and having lived with a gluten free spouse for over 18 years, I have determined that each celiac is uniquely different. Symptoms, concurrent illnesses, additional food intolerances or allergies all vary among members. Celiacs and those with Non-Celiac...
  24. cyclinglady
    What? If you have a positive DH diagnosis from your dermatologist based on a skin biopsy, you have celiac disease. Those celiacs who have DH often have little or no intestinal damage. That is because the antibodies gravitate to the skin instead of the small intestine. Also, small intestinal damage can be spotty. It can also heal in as little as two weeks...
  25. cyclinglady
    Just be sure if they are going to biopsy (4 to 8 biopsies) your small intestine, you need to be on a full gluten diet. You should also get the blood tests to check for antibodies. They can also biopsy your stomach as well which is probably what they are looking into (gastric) because of your GERD issues. Celiac disease is systemic. It can impact...
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