Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    It depends. Some celiacs lose weight, remain weight stable or gain weight before diagnosis. My own weight has been pretty consistent throughout my life.
  2. cyclinglady
    Here are my thoughts: Quote: “So many celiac parents, including me....” Spoken by a parent who does NOT have celiac disease. Is the author’s child healed? Does she understand that some celiacs can have no symptoms or their symptoms can change? That follow-up blood tests are not very accurate in terms of dietary compliance? No offense meant to th...
  3. cyclinglady
    Someone like me! I only test positive to the DGP IgA. So, when I had a gluten exposure that would not resolve (even after months and months and on the Fasano diet), I caved in and had a repeat biopsy. My villi had healed despite a still elevated DGP IgA. I was diagnosed with Chronic Autoimmune Gastritis though. My research has unveiled that the...
  4. cyclinglady
    Welcome! If you are scared, you should see a doctor. Make sure that everything is okay as your reaction might not all be blamed on an active flare up of celiac disease. You could have something else going on. For me, I am the queen of passing out. I have been this way since a kid, so my family is used to it. My doctors think I have Mast...
  5. cyclinglady
    I am so sorry to hear about your son. Your best bet is to use the search box. Type in “DGP IgG” and see various posts about this topic. Here is a great example (and one that supports that you can just have a positive DGP IgG and still have celiac disease). Be sure to read the entire thread: Me? I test positive to ONLY the DGP IgA and I have had...
  6. cyclinglady
    How old is your daughter? Small children (under 3) take a while to develop antibodies. It is a shame they did not run the entire celiac panel. I am not IgA deficient, yet the only positive for me was the DG IgA. Negative on the common TTG IgA and EMA IgA even on follow-up Testing many times. Know that some celiacs are seronegative (about 10% if I recall...
  7. cyclinglady
    Oh no! I am so sorry, but I am glad you figured it out. You have been doing so well managing your UC.
  8. cyclinglady
    I agree with Rancher’s wife. It really sounds like your GI is not very celiac-savvy. ☹️
  9. cyclinglady
    It can be much easier to purchase only those supplements that are marked gluten free or even certified. That way, you can be assured that the product is really gluten free (or meet the gluten free definition). It might give you some piece of mind, especially if you are sick. Consider working with a compounding pharmacist if you also have a corn allergy...
  10. cyclinglady
    My hubby uses Coffee Mate. It states gluten free on the label. Sometimes I get him the almond-based one. I prefer half and half. But I confess, I had International Delight this summer. My cousin loves the chocolate one. She is gluten free too. But it is too sweet for more than a once in a while treat if you have diabetes like me. I get the anxiety...
  11. cyclinglady
    Plain Coffee is gluten free. So, no worries. But be careful with Instant coffees that may not be gluten free. Make it a date and head over to a big box store. Cheap coffee makers work just as well as fancy ones. If you are into being green, avoid a Keurig machine. It is kind of expensive, but might be worth it keeping coffee fresher if you both...
  12. cyclinglady
    Unfortunately, I can not delete the post. I am only a moderator and have limited functions. Once you post on the internet, it can have lasting effects. You have celiac disease and have experienced many things in your personal life that may help other celiacs. Consider just discussing those personal experiences and to avoid dispensing medical advice...
  13. cyclinglady
    If I am running hyper (thyroid), I struggle with insomnia. When was the last time you had your hormones checked? I also need to stop drinking coffee by 3:00 pm.
  14. cyclinglady
    AWOL suggested that Fourgift’s daughter should be checked by a doctor for deficiencies and then shared her personal experiences about her own deficiencies and experiences. She did not suggest that this poor girl should take supplements without a doctor consult. Please stop trying to diagnose members. This girl does not have CFS (Chronic fatigue S...
  15. cyclinglady
    Please do think about it. Posterboy is obsessed with vitamins, in my opinion. He thinks they will cure anything and that everyone is deficient. Please consult with your daughter’s PED/GI before supplementing with vitamins. You can help to insure she is consuming a well-rounded, healthy gluten free diet. Consider consulting with a dietitian w...
  16. cyclinglady
    This is terrible advice. Kids should not be given Pepto Bismo unless it is the new kid version and depending on the child’s age. Kids should not take aspirin-based medication due to Reye Syndrome. This child was not diagnosed with anything. You do not know this child. This is why giving out medical advice without being a doctor, having a clinical h...
  17. cyclinglady
    I never get pizza unless it is from a 100% Dedicated gluten-free restaurant. Never. Too much potential for cross contamination and the fact that wheat flour goes everywhere. Best to make your own pizza at home or buy a frozen one and add additional toppings.
  18. cyclinglady
    There is no known smell for a person who has celiac disease. You should have your daughter tested to determine if she has celiac disease. She must be on a full gluten diet for 8 to 12 weeks or the tests could be invalid. All celiac disease testing (including intestinal biopsies) requires the patient to be on a gluten diet. You should determine the...
  19. cyclinglady
    Pan-fried flounder (lightly breaded), acorn squash (butter and cinnamon) and a butter lettuce salad with apples, cranberries, walnuts, and feta cheese tossed with orange juice olive oil dressing. Grabbed that orange right off the backyard tree! I am going to make this on one of the weekends my kid comes home to visit!
  20. cyclinglady
    I confess that I do not have DH, but I have read the DH section of the forum which you might find helpful too. Know that the antibodies can take forever to exit the skin. The rash can flare for no specific reason (or easily traced reason). DH sufferers seem to be super sensitive. Even to tiny trace amounts that might be fine for the average celiac...
  21. cyclinglady
    I get anxiety and am very irritable when I am exposed to gluten. Do you have good gluten free kitchen procedures in place? Maybe consider having the entire house go 100% gluten free, at least for a few months? Avoid going out to eat for a few months? Finally, she is 16 (I have a teen myself). She wants to fit in. It can be so hard! I was reading...
  22. cyclinglady
    My niece has Crohn’s and is successfully being treated. She recently had severe abdominal pain that landed her in the ER. It was not a Crohn’s flare-up, but was a ruptured ovarian cyst. You might want to see your doctor. He or she can also run another celiac blood panel to see if your celiac disease is active. I have done that a few times after a sus...
  23. cyclinglady
    Take a look at my response to your comment in another thread. If you can commit to the diet and your doctor will give you an official diagnosis, then it can be done. My own husband went gluten-free 12 years before me (poor advice from two medical doctors). The diet worked. He will tell you that I have received way more support from family, friends...
  24. cyclinglady
    I think they are many factors to consider based on the patient’s history, medical condition, etc. on whether or not an endoscopy is required. For me, it provided a baseline (villi damage) and encouraged me to adhere to the gluten-free diet. It also ruled out any concurrent illnesses. Five years later, I had GI issues. I was sure that gluten was getting i...
  25. cyclinglady
    I am so sorry. You need a hug! I am assuming you have talked with your doctor. Taking a medication to help you through this stressful time may be helpful. The medication just needs to be gluten free and we can help you navigate that (as can your doctor or pharmacist). Otherwise, I can offer some tips that help me. First, I make darn sure...
×
×
  • Create New...